Culturelle seems to work

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Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/7/2008 7:57 PM (GMT -6)   
After a scary year and some months of chronic D, with antiparasitic meds making it worse, I have tapered my Pentasa down to 2 a day and have taken Culturelle for the past 36 days. It has started to make a big big difference in the past week. I pray this is not a coincidence or a temporary false remission.
 
Any ideas or miracle stories about Culturelle, anyone?
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/7/2008 8:20 PM (GMT -6)   
what is your dose on culturelle? I am new to this. I take Jarrow eps. My naturopath said it was a good brand.

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 10/7/2008 8:23 PM (GMT -6)   
I've only taken Culturell for C-Diff. It worked for me in that situation.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/8/2008 5:10 AM (GMT -6)   
I have been taking the recommended one pill of Culturelle a day. It took about a month to kick in, after causing bloating and other messiness at first.

21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 10/8/2008 6:47 AM (GMT -6)   
I started taking Culturelle two weeks ago. I read some posts (on another site) from users who said they didn't get bloating or gas like I did from the probiotic suggested by my GI, Kefir. I have since found that I am really lactose intolerant, so that was likely the issue with Kefir.
 
I am in about the best shape that I've been in for the past couple years and am really hoping that the Culturelle can improve that to the point where I can say bye-bye to the 10mg of Pred. I seem to need to stay in remission.
Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Meds:
Colazol, 6 per day / Methotrexate, one 5mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Good news? Never seem to have complications from any meds.


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/8/2008 7:59 PM (GMT -6)   
Let's keep each other posted about the success of Culturelle.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 10/9/2008 12:30 AM (GMT -6)   
I used to take culturelle and had mediocre results. I now take Bifidus and Reuteri and have seen very good results. Remember Bifidus is the big daddy of the colon and helps with stool regulation. Thats why certain yogurt companies pimp their product as a digestive regulator. Bifidus Regularis is what they call it, although it is mainly for the constipated.

UC patients can take advantage of Bifidus to regulate diarrhea. The Reuteri is for immune purposes and actively combats bad bacteria. Should be worth a try my friend.

FYI- Grapefruit seed extract is used the world over as an anti-parasitic. It bitters anything you put it in or on but it works.

LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 10/9/2008 11:57 AM (GMT -6)   
Since others have reported that any improvements from taking a probiotic won't be seen for at least a month, I'm hoping to report some good results about Culturelle in a few weeks. Right out of the chute I can say that I haven't gotten gas from it as I did when I was on Kefir.
Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Meds:
Colazol, 6 per day / Methotrexate, one 5mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Good news? Never seem to have complications from any meds.


Mrsarcasm
Regular Member


Date Joined Oct 2003
Total Posts : 80
   Posted 10/9/2008 1:45 PM (GMT -6)   
I started with 1 pill a day and I started to see results. Then those positive results of eating new foods went away. So I increased it to 3 times a day.
That seemed to help. However the montly cost of 3 pills a day was equal to a box of VSL#3 which has 250Billion backteria per dosage.
So I switched to it. I went from blood 5 straight days to no blood after 2 days and going 12 times a day to the bathroom to NONE yesterday. Yesterday was only 4 days since I have been taking it. 1 dosage is the minium of VSL#3. Yesterday and today I started taking 2 dosages to ensure it.
Please read up on VSL#3. Don't let the cost scare you away. Its about $75 for 30 dosages.
Its been the best thing I have ever tried.


___________________________________________________
 
Colazal - 9 pills
Rowassa Enema - 1 nightly
VSL#3- 1 packet daily
Multi Vitiam - 1 daily
Vitiam C - 500mg daily
Nexium - 1 pill daily
Asacol - 9 pills
Lialda - 4 pills daily
Culturelle- 1 daily


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/9/2008 5:36 PM (GMT -6)   
I have thought about the VSL3, but am waiting to see if Culturelle keeps working like this. If it works for me, then it works, and I don't need anything else.

Maybe.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


Mrsarcasm
Regular Member


Date Joined Oct 2003
Total Posts : 80
   Posted 10/9/2008 6:00 PM (GMT -6)   
i was wrong about the amount of bacteria in VSL#3, Its 450Billion
I also found out that VSL#3DS (double strength) IS in perscription form. My insurance covers it.
___________________________________________________
 
Colazal - 9 pills
Rowassa Enema - 1 nightly
VSL#3- 1 packet daily
Multi Vitiam - 1 daily
Vitiam C - 500mg daily
Nexium - 1 pill daily
Asacol - 9 pills
Lialda - 4 pills daily
Culturelle- 1 daily


saskia
Regular Member


Date Joined Dec 2007
Total Posts : 31
   Posted 10/10/2008 1:15 PM (GMT -6)   

mitzo, I have thought about taking Culturelle but do not know where to find it in Ottawa.  (I have taken VSL#3 before and it is not always easy to find a Canadian supplier, besides which it is very expensive and not generally covered under drug plans.  Where do you get Culturelle?  By the way, great to hear that you are finally getting some relief.


*saskia*
pan colitis (diag: Nov 05)
Meds: salofalk7 to 10 tabs/day depending on disease status; imuran 75mg/day; entocort when flaring; cortifoam when flaring; pantoloc; VSL#3; vitamin D and calcium; fosomax


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 10/10/2008 1:41 PM (GMT -6)   
VSL3 is now avilable on prescription.

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 2:03 PM (GMT -6)   
You can get Culterelle at any Walmart.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/10/2008 4:38 PM (GMT -6)   
Culturelle has improved things for me a lot. I've never been able to find it at a WalMart, but my local Giant began carrying it recently, saving me a trip to Vitamin Shoppe.
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Thinking seriously about the surgery option.
Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/10/2008 8:31 PM (GMT -6)   
If you live here in Ottawa Canada you can order Culturelle from this site: http://www.spectrumsupplements.ca/en/c314949/p16788005.html
 
$30 for 30 pills, enough for a month, shipped from Montreal in a day or two.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/11/2008 3:58 PM (GMT -6)   
Some D and yucky bloating stuff was back today after a long stretch of being better. Oy vey. I guess 1)the Culturelle is helping to make more good than bad days, or 2) it will take even longer to make things better for good, or 3) it isn't working and the good days were just a coincidence. Mind you, last night's blast of spicy Korean barbeque might have had an influence on this...

21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/11/2008 4:50 PM (GMT -6)   
Mitzo -

While I agree that probiotics can help quite a bit, you still have to keep tabs on you diet, or you will never know if someting is helping, or just muting some of the negative feects of trying to eat normally. I was in denial for my first couple of years of UC, and I tried my hardest to maintain a regular diet so that no one would know about my "terrible secret". It wasn't until I truly put effort into modifying my diet, low residual foods, less fat, low carbs, eating smaller meals thorugh out the day, that helped me to figure out the probiotics really did help, but they required me to help them.

I've also noticed that when switching probiotics, it usually takes anywhere from a couple of days to a cople of weeks before my intestinal flora adjust to the new bacteria being introduced. You intestines are an enclosed environment, and aren't used to much change. It is kind of like the TV show Survivior. When you introduce something new, it takes a little while for all the bacteria to meet each other, become friends, and decide if the new strains are better than the some of the older strains. And if an older strain is voted out of the gut, it puts up some resistance. You have to give it time, and take it easy during the crossover.

As the old show Kung Fu said "Patience grasshopper. All will become clear when you are ready." I think I've been watching way too much TV lately. If I start quoting CSI, someone please pull the plug. lol
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/11/2008 7:57 PM (GMT -6)   
Thanks Beartooth, what you say makes perfect sense. I have a pretty good sense of what food hurts me and doesn't, I have had years and years of UC, but this year of D has taken me pretty low. Anyway I have been on the Culurelle 36 days now, so it should be doing what it should. And it seems to probably be helping. More good days than bad.

21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/14/2008 8:37 AM (GMT -6)   
Hmm... have had three bad days now, after a fairly long run of better ones. Culturelle, after almost 40 days, should work better than that, I should think. How defeating.
 
Anyone else had this kind of cat-and-mouse situation with Culturelle or other probiotics like this? Improvement, backsliding, improvement, backsliding...


21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 10/14/2008 9:03 AM (GMT -6)   
Honestly Mitzo, I have never noticed any bit of difference while on probiotics- I do take a Culturelle every day, & have been taking one daily for a long time now. I figure it can't hurt, & I may as well try to up the amount of good bacteria vs. bad. I've never adjusted my dose due to being on antibiotics, & just stop taking them if I do have to go on antibiotics. To no ill effect either- luckily I handle antibiotics fairly well. And stopping the probiotics doesn't do anything either! I really can't say that the probiotics have made any noticeable difference in my bathroom habits at all. I also took Florastor for a while, & another type of refrigerated probiotic. The only supplement that made a major difference was the fiber wafers.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/14/2008 9:22 AM (GMT -6)   
has anyone taken ultraflora?

Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 10/14/2008 6:04 PM (GMT -6)   
Eva Lou, that is my big fear, that the probiotics will not work except at the beginning and then whoops back to the same old. It sure seems that 40 days is long enough for good effects to settle in. I am thinking of going for VSL#3 but I guess I will keep the Culturelle flowing for a few weeks more. Another big international trip coming up, I guess it is back to Imodium again for that.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 2 500mg Pentasa a day
  • Psyllium powder
  • Culturelle probiotic


Rainbowbird
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/14/2008 11:13 PM (GMT -6)   
I've been on Culturelle for two days and have had really bad intestinal gas.  Is this normal or at least a side effect for some?  How long should it last?  It is getting embarrassing. 

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/15/2008 9:07 AM (GMT -6)   
I'm like Eva Lou--probiotics have done nothing to help me. I still take them b/c they can't hurt. I'm using Florastor right now but as soon as that runs out, my GI wants me to try Culturelle.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 

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