What are you thankful for...

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/7/2008 9:11 PM (GMT -6)   
After reading kiss 520's thread about what we miss - and we certainly miss some things sometimes - I felt we need to look at what we can be thankful for.
1.  A wonderful husband (who is fighting cancer) who tries really hard to
    understand what I am going through.
2.  Family and friends - all of them!!
3.  The fact that I did not get this disease when younger - although I have had IBS most of my life so dealt with a lot of digestive/bowel problems.
4.  Thankful for the variety of food and medications we can take advantage of - therefore thankful to be American.
5.  Thankful  for my computer, you guys and other forums that help me with my very painful knees and my husband's cancer.
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 10/7/2008 9:19 PM (GMT -6)   

1.  I'm thankful that I got this disease after the birth of my son.

2.  I'm thankful that I have a supportive family, when I hear others say that theirs is not.

3.  I'm thankful that I get to stay home with my son during this precious time in his life.

4.  I'm thankful that I've never had an UC accident (knock on wood).

5.  I'm thankful that, aside from this stupid disease, I have an absolutely wonderful life.

 

I'm also thankful for kops2da for posting this thread to balance out my "misses" thread.


Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/7/2008 9:19 PM (GMT -6)   
I am thankful that I can stay at home to recover!
I am very thankful for this forum.

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 10/7/2008 9:30 PM (GMT -6)   

1.I am thankful for my husband. He is a great man with my UC. He takes real good care of me and is cautious of my can's and cannot's with food.

2. I am thankful for a supportive family who helps out when needed like when I was first diagnosed and was in and out of the hospital.

3. Thankful I got this disease before I had any children.

4. Thankful for meds that WORK!!!!

5. Thankful for constant remission. tongue


26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 10/7/2008 10:00 PM (GMT -6)   
It's not worse and there really is a cure : ) (plus so many other blessings)
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 10/7/2008 10:35 PM (GMT -6)   

This disease is very grounding, yet encourages analytical research. 

It can definitely help you stay in the present, which is frequently hard to do in our culture.  And if you don't, it has lots of ways to remind you!

I think this disease has a very strong mind/body/spirit connection, and I appreciate that I'm learning to use that more.   

 

 



Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) pm rowasa every other day 
culturelle, benefiber wafers  generic acidophilus, metamucil wafers, activia yogurt, spinach & sunflower diet, primadophilus reuteri
children's vitamin, Vitamin E 400 mg, omeprazole 2xday
oxazepam when needed, lomotil or ImodiumAD when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 
 
 
 
 
 

Post Edited (potato) : 10/7/2008 9:58:42 PM (GMT-6)


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/7/2008 10:48 PM (GMT -6)   
I'm thankful for my parents & brother, for living in a westernized country, for health insurance, for the fact that I got this disease after high school, and for this forum.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 10/7/2008 11:16 PM (GMT -6)   
+1
potato said...

This disease is very grounding, yet encourages analytical research. 

It can definitely help you stay in the present, which is frequently hard to do in our culture.  And if you don't, it has lots of ways to remind you!

I think this disease has a very strong mind/body/spirit connection, and I appreciate that I'm learning to use that more.   

 

 



Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/8/2008 1:04 AM (GMT -6)   
I'm thankful that so far the rest of my body is functioning as well as it is which is why I treat it like a temple with diet and exercise (minus the smoking but it is only 6/day and I am human after all), I'm happy for all the good things in my life, people (family and friends), material things that I'm fortunate enough to have and I'm thankful for HW and all the support groups out there that bring us together to support and inform eachother in regards to this DD and more.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


piper_chris
Regular Member


Date Joined Jun 2008
Total Posts : 73
   Posted 10/8/2008 1:15 AM (GMT -6)   
I'm thankful for every day that I'm alive.

That sounds really simple, but ever since I got out of the hospital in May I am aware of the blessing and thankful for another day of life. Its the first thing I say each morning (in between hitting snooze on my alarm).
- female 41, diagnosed ulcerative colitis Feb 2005
- just got off prednisone after a 5month taper from 80mg down to 0mg!!
- currently 6-MP/mercaptopurine/purinethol 75 mg, asacol/mesalamine 4800mg (4 pills x 3 times day), Canasa 1000mg nightly
- VSL#3, fiber supplements, multivitamin, chewable calcium, fish oil, biotin, sometimes iron pills


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/8/2008 7:13 AM (GMT -6)   
I am thankful for a husband that has accepted my disease and a supportive family.

I am thankful that I have not gone back to smoking which quitting threw me into my UC

But mostly, I am thankful for Life and I have my precious sister, Pam, who taught me that. Now she looks over me from Heaven and still touches my life each and every day!

Always live life to it's fullest - relish in it and love it!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 10/8/2008 7:19 AM (GMT -6)   
1. I am thankful for my husband. He is the most caring and understanding man that I have ever met. He has been with me since the beginning of this ordeal and not once has he ever been inconsiderate of anything. He is my rock.

2. I am thankful for my wonderful children. They have helped me so much when I am flaring. They never press me to do things if I tell them that I don't feel good. And other then a small blip with my daughter, they don't cause me too much stress because they are really good kids.

3. I am thankful for my husband's family. They are there for me as well and won't hesitate to jump at the chance to offer a hand.

4. I am thankful for my awesome friends. Some I have known for close to 30 years and without them, I would be despondant. They are part of my world and I love them to pieces.

5. I am thankful that I don't have this DD worse then I have it now. I am glad that I didn't end up with something more serious such as cancer.

I am thankful for so many things that I could go on and on! Thanks Elaine for starting this inspiring thread :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 10/8/2008 7:20 AM (GMT -6)   
     I am thankful I didn't get this disease until age 52 and was able to care for my aging  parents beforehand (I was an only child).  Thankful for my supportive husband and two grown daughters.  Thankful I have such a good relationship with my GI doctor (he is trying soooo hard to help me).  Thankful that I live in this wonderful USA where I can receive treatment whenever and wherever I need it.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring.   Afraid that I am pred dependant.  Back on Pred 40 mgm for five days, then taper.  Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 10/8/2008 7:27 AM (GMT -6)   
Im thankful for my kind and caring husband(though he does drive me nuts sometimes)
For my three wonderful children
My loving family
And that im almost in remission
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Salofalk supps 1gm 26/6/08
  Mesalazine 400mg 2 tabsx2 day


Limeycricketlover
Regular Member


Date Joined Oct 2008
Total Posts : 67
   Posted 10/8/2008 2:46 PM (GMT -6)   
Thanks to my sister for emailing me a wonderful pic of my neice and nephew. Cheered me up after a rubbish day today.

Thanks to you for you for bringing up such a positive subject. Big smacker (kiss)!
UC - diagnosed Sep 2008
Seeing GI for first post hospitalization consultation Oct 9th - should get full diagnosis then

Omeprazole 40mg
Prednisolone 20mg
Calcium (Adcal-D3) 3000mg
Mesalazine 4000mg
Mesalazine foam enema
Multivitamins
Probiotic (acidophilus)
FOODS FOR ME TO AVOID:
Any types of green leaf - big time.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/8/2008 4:46 PM (GMT -6)   
I am thankful for a terrific husband, who loves me and cares about me so much!
I am thankful for a great job that gives me the ability to take really good care of myself and my husband, be generous and have an easy life, even with this disease.
 
I am also thankful that golf courses have bathrooms.


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 2400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy, dairy-free diet. Replete probiotic. 
Achieved remission for the first time in many, many years!? 
Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & now recovering from irritation scope caused. Will be using Rowasa again. But I AM better.
 
 

Post Edited (Peety) : 10/8/2008 3:59:40 PM (GMT-6)


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/8/2008 5:14 PM (GMT -6)   
I'm thankful for my husband, my daughter, my always-supportive sisters, my brother who shares this DD, my mother who is in the recovery room after knee surgery today, my father who is the best dad imaginable given the parenting culture in which he was raised, my dear friends who have supported me by taking my daughter on playdates and even bringing dinner one time when I felt worst, and all the people on this forum who've supported me. Relationships really are what matter most in life.

I'm also thankful for my cat, who knows just when I need a snuggle and has the most wonderful purr around. I'm thankful for my comfortable home filled with the thrift-store treasures that this material girl craves, for a work environment that's working out for now, and for the beautiful landscape surrounding me.

Like potato, I'm thankful that this disease is teaching me to stay in the present when I'm all too likely to let worries about the future spin out of control. And I'm really thankful that my symptoms are abating, at least for now.

Thank you, Elaine, for starting this great thread. May the chain of gratitude go on and on...
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/8/2008 6:32 PM (GMT -6)   

I am truly touched by the response from my asking!

No doubt that some days I feel very sorry for myself.  I tell people to take one trip to our Veterans Hospital (which I do with my husband), look around, talk to some of the veterans, see so much worse going on than UC or Crohns.  My husband has COPD and lung cancer. His attitude and most every day cheerfulness is mind boggling!  He is 72 and in his mind could live to be 100.  In reality we will be lucky if he lives another 5 years.  So, we don't hang around (only once ina while) worrying about tomorrow or next week, etc.  WE are busy right now planning a trip to Las Vegas for veterans reunion.  It takes planning when handicapped but we will be there. 

Some said the other day - "live in the day, not yesterday or tomorrow".

My UC is stubborn - cutting back medication is not working too great but no one ever called me a quitter!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Winter
Regular Member


Date Joined Sep 2005
Total Posts : 210
   Posted 10/8/2008 7:53 PM (GMT -6)   
I am thankful that God is with me every step of the way with this DD & that he has given a supportive husband & 2 wonderful sons. I am thankful that my boys don't have this DD & I pray everyday that they will not get it.. I am thankful for all my family, friends & my career. I am truly blessed.
Lialda 3 tablets  daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Align Probiotic
 


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 10/8/2008 8:01 PM (GMT -6)   
I am thankful for my faith in God, and for my family. I am thankful I have not been hospitalized in over 2 years, and I am also thankful for sites like healing well that allow so many of us the chance to learn about our disease process, and options for getting better.

----------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily

JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
   Posted 10/15/2008 12:14 AM (GMT -6)   
I am thankful for my friends and family who took the time to understand what this disease intails.
I'm thankful for my doctor who knew life was getting to tough for me to work and i'm on disability.
I'm thankful for the therapist I found about a month ago.
I'm thankful for this forum , for when I need it , its here for me and all of us to share our thoughts and get help :-)
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Pentasa 2x4 a day
Lexapro ~ 20 mgs daily for sanity  :-)
 


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 10/15/2008 10:55 AM (GMT -6)   
I have to agree with piper_chris, when I had my heart attack it was touch and go. So I am happy every day that I still wake up. But I have to admit there is some days I wish I could sleep through. On those days When I feel like crap.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

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