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zeebeez
New Member


Date Joined Jun 2007
Total Posts : 11
   Posted 10/8/2008 9:10 AM (GMT -6)   
Hello all!

First let me thank everyone for all the wonderful support and info on this forum! I've been reading and learning since diagnosed. I don't know what I'd do without this site! :)

I just received my first remicade infusion a couple days ago and was curious about everyone's opinions about it... good/bad results from it?

Thank you again,
z
female dxed w/UC (30cm) in 2006
Remicade - 1st infusion 10/08, Colazal - 12 daily, Imuran - 100 mg daily, Mesalamine enemas - 8 g (2 daily A.N.), Dicyclamine - 20 mg (up to 4 daily A.N)
Prednisone - last dose in 7/08
OTC Probiotic Acidophylus & Super B Complex vitamins


jeffereyr123
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 10/8/2008 10:27 AM (GMT -6)   
When I was on remicade I had no reactions or side effects whatsoever. The worst part was having to sit through a hour and half long infusion. It didn't start working until my third treatment and then it worked for about six months before I developed anti-bodies to it. When it did work though it made me feel very near normal, but not quite 100%. remission.

Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 10/8/2008 10:43 AM (GMT -6)   
I just started I have definitely improved but I am not in complete remission I go for my 3rd treatment next week. I know a person in remission for 4 years with it.
Prednisone 40mg a day
Clotrimazole Troche (keeps the thrush away from the Pred.)
just started Remicaid hope it works

Just back from 19 days in hospital with 2 blood transfusions for Anemia


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 10/8/2008 11:21 AM (GMT -6)   
I've been on it for several years and it's been wonderful for me and so far has kept me in remission from day one. I haven't had any reactions to it, and I'm now on what they call the fast track; one hour infusions. So, total time it takes me; about 1 1/2 hours.

Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


zeebeez
New Member


Date Joined Jun 2007
Total Posts : 11
   Posted 10/9/2008 8:29 AM (GMT -6)   
Thank you for your replies.

So far my urgency and amount of blood is definitely less than before and at this point, I'll take whatever relief I can get.

z :)
female dxed w/UC (30cm) in 2006
Remicade - 1st infusion 10/08, Colazal - 12 daily, Imuran - 100 mg daily, Mesalamine enemas - 8 g (2 daily A.N.), Dicyclamine - 20 mg (up to 4 daily A.N)
Prednisone - last dose in 7/08
OTC Probiotic Acidophylus & Super B Complex vitamins


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 10/9/2008 12:40 PM (GMT -6)   
I'm going in for IV #3 tomorrow, my first one was on a Monday and by that friday I was having less pain and by week 2 I was seeing formation in the stools. I was one of the lucky ones that responded quickly. Today I'm having regular formed movements once or twice a day at most and no discomfort or urgentcy.

To my husband's dismay I can now pass gas without worrying it might not just be gas and running to the facilities.. .. oh the fun gas wars we've had has been worth the time I sit for the iv! (o:
Kim
~ Married ~ 36
~ Mom of Nathaniel aka "Peanut" almost 2 (12/08)
"The List "
- UC dx 8/2000 - Remicade 8/08 - 3rd 10/10- Align 1x day
Colazal,6mp, pred asacol
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/9/2008 1:34 PM (GMT -6)   
I responded quickly, and was in remission within a month. I've now been in remission since April, 2006 and my latest colonoscopy was absolutely normal. If it works for you, it can be a life-changing experience.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Twiggy-girl
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/9/2008 6:05 PM (GMT -6)   
Hi everyone! I am so excited to be a part of this web site. I have enjoyed reading all of your inspiring comments. I have UC, or I think. I have been on the Remicade infusions for almost 3 years only to be told by my new doctor, I may have UC, or Crohn's. I also have IBS. I have been trying to do my own research on these illness, but they are all so much alike. Today I read information about another one called, "Pancoitis" and I have had and still have some of the same symp. I want to stop the Remicade Infusions, but am afraid of the outcome. I know this is a lot for a first timer, but just have so many questions and am praying for some answers. Does anyone know what could happen if you stop the Remicade Infusions?
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