has anyone here been diagnosed with IBD, the term alone?

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Regular Member

Date Joined Sep 2008
Total Posts : 202
   Posted 10/8/2008 12:26 PM (GMT -6)   
My doctor says I have IBD, Crohns/Colitis. He said there is no way for him to determine yet which one it is. He feels like it is UC, but can't make a definite diagnosis.  He said there are blood tests, but he feels like they are essentially useless because they don't have a good rate of accuracy. So he mostly just says its IBD. Has anyone else had this type of diagnosis?

Regular Member

Date Joined Aug 2008
Total Posts : 95
   Posted 10/8/2008 12:37 PM (GMT -6)   
I believe it's pretty hard to tell without a c-scope/ biopsys done. There are some other ways like barium enema but it can be less accurate.
http://asilentocean.blogspot.com/  -> My blog
Diagnosed 7/27/08
Prednisone 40mg/Day- Tapering down currently.

Regular Member

Date Joined Sep 2008
Total Posts : 202
   Posted 10/8/2008 12:40 PM (GMT -6)   
I had biopsys done, but he said they just came back inflammatory bowel disease. Thats why I am a little confused. Thanks for responding.

Regular Member

Date Joined Oct 2008
Total Posts : 67
   Posted 10/8/2008 1:11 PM (GMT -6)   
He should be referring you to a gastroenterologist if he's not sure (bugbear of mine). The majority of the time an accurate diagnosis between Ulcerative Colitis and Crohn's Disease CAN be made, but not often from blood tests alone - did you have a c-scope done and a sample for biopsy taken from your colon? When there isn't a clear diagnosis the correct (accepted) term is "indeterminate colitis". May help to do a search on this, as there is some information on this on the net.

Anyway, if he's not referred you to a gastro doc already, ask your doc to do so ASAP, as I don't think he's explained the situation as well as perhaps a specialist could. There's a certain amount of trial and error with the treatment for the two (main) types of IBD, so I'd guess it may take longer for the medicos to find the best treatment in your case if a clear diagnosis can't be made. The sooner a specialist gets involved the better!

X-Rays can also help with diagnosis - Crohn's and UC usually attack different parts of the stomach.

Good luck!

"A definitive diagnosis of IBD is established by a combination of radiographic, endoscopic and histologic criteria with differentiation between ulcerative colitis and Crohn's disease being established in most cases. However, in 10-15% of patients, a distinction between UC and CD cannot be made with certainty even after a thorough pathological investigation. These patients are classified as having indeterminate colitis."
UC - diagnosed Sep 2008
Seeing GI for first post hospitalization consultation Oct 9th - should get full diagnosis then

Omeprazole 40mg
Prednisolone 20mg
Calcium (Adcal-D3) 3000mg
Mesalazine 4000mg
Mesalazine foam enema
Probiotic (acidophilus)
Any types of green leaf - big time.

Regular Member

Date Joined Sep 2008
Total Posts : 202
   Posted 10/8/2008 1:15 PM (GMT -6)   
Actually he is a gastroenterologist, uugghh. I had a sigmoidascope or whatever it is called. Hmmm I don't know what think. He said the biopsies came back as IBD, but sometimes it is hard to know which one it is ie: Crohns or UC. He thinks it is UC. I just see people here so sure about their diagnosis, so it made me question how come I don't know for sure.

On the other side, my friend had an ostomy done for her UC, and then it turned out to be Crohns. So I don't know what to think.

Regular Member

Date Joined Sep 2008
Total Posts : 202
   Posted 10/8/2008 1:15 PM (GMT -6)   
btw thank you for your posts.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 10/8/2008 1:38 PM (GMT -6)   
crohn's colitis is CD of the colon (col=colon, itis=inflammation).

Differences that can be seen via colonoscopy are;

with CD the disease can affect the many layers of the intestinal lining (often the reason leading to fistulas which UCers are not prone to getting) with UC the inflammation remains on the surface of the lining only.

with CD there are skipped patterns of inflammation (healthy tissues in between diseased tissues) with UC the entire area will be inflamed.

The same meds are used to treat UC as used to treat crohn's colitis.

Crohn's can affect the entire GI tract (anus to mouth), where as UC is limted to the colon/rectom only...both UCers and CDers can have issues with extraintestinal manifestations, issues with skin, eyes, joints, bones.

If your GI isn't able to tell visually via colonoscopy, a good GI will order stool and blood tests and tests to check out the small intestines and do a biopsy as well to try and help determine which form of IBD a patient is dealing with.

A sigmoidoscopy doesn't go up near as far as a colonsocopy so you should request a colonoscopy, which a good GI will do in the first place to try and DX a patient from either having CD or UC.

My bum is broken....there's a big crack down the middle of it! LOL :)

Post Edited (pb4) : 10/8/2008 1:43:27 PM (GMT-6)

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