how often do you see your GI doc

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Regular Member

Date Joined Sep 2008
Total Posts : 91
   Posted 10/8/2008 7:00 PM (GMT -6)   
Just curious. How often do you see you GI? I was diagnosed in Feb this year and so far have had 4 follow up appts and am going for my next one next week. This just seems too often to me. Why shouldn't I just be able to call and schedule an appt if I feel a flare coming on.
31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks 6 weeks
Rowasa enemas nightly
Omega 3 supp, calcium supp, probiotics
metamucil wafers
Prednisone again!!  30mg

Regular Member

Date Joined Jun 2007
Total Posts : 364
   Posted 10/8/2008 7:27 PM (GMT -6)   
My kids see their doctors every 3 months when all is well. This is because they are on immune suppressors (Imuran for my son and 6mp for my daughter). When my son was not on immune supp. his doctor liked to see him at the very least annually, but preferred every 6 months. When flaring they see the doctor more frequently. My son just started flaring and saw the doctor yesterday. Doctor adjusted his meds, added rectal meds and my son will go back next week for labs and recheck. At times when things were going better, my son's doctor would often just let us have labs drawn and if they were fine we could put off a visit.

I would think your doctor might want to see you so frequently because of the remicade and prednisone? Both are pretty intense drugs. Does you doctor do labs at those visits?

Glad you're feeling well. If your labs are looking good, maybe you could talk to your doctor about less frequent office visits.

Mom of Son 17 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle

Regular Member

Date Joined Sep 2005
Total Posts : 210
   Posted 10/8/2008 7:37 PM (GMT -6)   
I see my GI every 3 months unless I am having problems then I call them to set up an appointment,
Lialda 3 tablets  daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Align Probiotic

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 10/8/2008 7:46 PM (GMT -6)   
I only see mine every couple of years now, for a colonoscopy. She will write scrips for Asacol refills and for prednisone or Rowasa when I ask. No infusions. It takes months to get a regular appointment, what good would that be? I know she is probably busy with folks who are in crisis, and that's not me.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 2400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy, dairy-free diet. Replete probiotic. 
Achieved remission for the first time in many, many years!? 
Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & now recovering from irritation scope caused. Will be using Rowasa again. But I AM better.

tooth fairy
Regular Member

Date Joined Jan 2008
Total Posts : 98
   Posted 10/8/2008 8:17 PM (GMT -6)   
Every three months, but I get labs drawn every 2 months because of my imuran. He sees me as needed for flare-ups.
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 10/8/2008 9:12 PM (GMT -6)   
From your signature, it looks like you're not controlled and stable in your symptoms. That usually means more visits. My old GI went from every six weeks to three months when I got into remission, then to every six months after another year. Now that I've moved, I saw my new GI last week and will see her again next month for a follow-up.

I wouldn't say five visits in almost nine months is unusual when you're newly diagnosed and not in remission.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 10/8/2008 9:16 PM (GMT -6)   
every couple of years unless I start feeling really bad then I go.

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

Regular Member

Date Joined Sep 2008
Total Posts : 91
   Posted 10/9/2008 8:43 AM (GMT -6)   
Thank you everyone for all the input. I'm still pretty new to all this so I was just curious what the routine was.

31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks 6 weeks
Rowasa enemas nightly
Omega 3 supp, calcium supp, probiotics
metamucil wafers
Prednisone again!!  30mg

Eva Lou
Veteran Member

Date Joined Sep 2006
Total Posts : 3442
   Posted 10/9/2008 12:37 PM (GMT -6)   
mine goes back & forth- when badly flaring, I used to see him at least once a month. When I started prednisone, & then Remicade, I saw him about the same, once a month. Now, I do blood work every time I go for an infusion, it's written into the order so the infusion nurses draw labs before we start the infusion. If everything looks fine I don't hear from him. Sometimes we call each other just to touch base, if it's been awhile. Right now, I last saw him about 2 months ago, & I don't have any appointments scheduled for the future. Unfortunately, something always seems to crop up so that we talk every 3-4 months!

diagnosed with UC '02
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Fiber supplement

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 10/9/2008 1:54 PM (GMT -6)   
once a year when not flaring. As needed when flaring. I am seeing him again in Dec for regular visit (hopefully!).
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 5mg/2.5mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Regular Member

Date Joined Oct 2007
Total Posts : 135
   Posted 10/9/2008 3:41 PM (GMT -6)   
I see my GI doc every 6 months and get bloodwork done every three months thanks to good ol' Imuran. I also see my primary doc yearly.

Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Calcium with Vit. D Tablets

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