Thanks and good luck to everyone else. I am psyched to try the Remi and see where things go. I know well the feeling of not wanting to jinx oneself with high hopes, while at the same time not wanting to lose the psychological benefit of hope- since the mind does play tricks. Even a small early improvement would make a huge difference in quality of life for me, especially in pain and feeling there is hope for getting off of pred. for good. I'm psychologically well prepared to switch high gear to surgery within a few months from now if it doesn't work at all.... though interesting that in some cases it can be months before you notice a difference (seems rare though). Will just have to see. I think if I see no results after a couple infusions, I'm going to ask for surgery. I may try acupuncture (which I did use for some pain benefit years back) as a stopgap while I wait to get slotted into starting Remi.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring or simmering on and off ever since
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO,
boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)