After a colonscopy Tuesday Doctor says

New Topic Post Reply Printable Version
31 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 7:42 AM (GMT -6)   
You have a normal mucosa throughout. You're healed.

I dunno.

Drink more beer?
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/10/2008 7:55 AM (GMT -6)   
Congratulations, that means you've achieved full remission! Celebrate cautiously and don't stop your meds, because the DD is still there, you've just got the upper hand now.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 8:03 AM (GMT -6)   
Whats the Double D ?
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 10/10/2008 8:10 AM (GMT -6)   
Dreaded disease.

That's great news!
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 8:12 AM (GMT -6)   
You know... I never accepted that I had a disease.. ( I tested negative on both markers for crones or colitis) I always said "I don't have a disease, I have some inflammation that isn't properly identified.."

Oh yeah .. Stress... LET IT GO... I think it was paramount for me.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin

Post Edited (Harpo) : 10/10/2008 8:24:57 AM (GMT-6)


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/10/2008 8:47 AM (GMT -6)   
When did you get your first diagnosis? and congratulations!!

Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 9:08 AM (GMT -6)   
Sunshineonmyface~ said...
When did you get your first diagnosis? and congratulations!!


Thanks ! and I'd say about 7 years ago..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/10/2008 9:09 AM (GMT -6)   
how long did you flare for? Was it only one flare?

Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 9:18 AM (GMT -6)   
My case is weird.. At first it was classic Ulcerative colitis symptoms... Then after time it turned into patchy inflammation.. Then this colonoscopy Tuesday... clean.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 10/10/2008 10:57 AM (GMT -6)   

Harpo, I haven't talked to you in so long. How's the mortgage biz, slow huh? I remember you went on Lialda, are you saying that worked for you? I was told all my inflammation was gone, but the urgency and mushy stool was there. Are your stools normal now?

I'm curious to find out b/c maybe I should try lialda.


First scope 7/05 should no UC, but I was bleeding with urgency. Sigmoid showed UC at rectum, 2nd colonoscopy & Endoscopy 7/27/07, Left sided colitis and near cecum (mild)
8/1/08 on sulfasalazine 2 2x's a day, canasa often.


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 11:02 AM (GMT -6)   
therearemiracles said...
Harpo, I haven't talked to you in so long. How's the mortgage biz, slow huh? I remember you went on Lialda, are you saying that worked for you? I was told all my inflammation was gone, but the urgency and mushy stool was there. Are your stools normal now?

I'm curious to find out b/c maybe I should try lialda.


Hey ! Good to see you..

Try the Lialda.. it seemed to work for me.. But know that it takes months to work (in my case). As far as consistency that's hit and miss.. I think I get some trouble from the drug "protonix" It reduces stomach acid, which in turn affects the digestion of food.. The whole key is NO BLOOD.. That's what you ultimately want. (imo)
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 10/10/2008 11:09 AM (GMT -6)   

Right now I have no blood, but I've been going 3-5 times a day, not formed, mushy. Urgency is still bad. I can't run or take long walks, this is a bummer.

Thanks for emailing me back.


First scope 7/05 should no UC, but I was bleeding with urgency. Sigmoid showed UC at rectum, 2nd colonoscopy & Endoscopy 7/27/07, Left sided colitis and near cecum (mild)
8/1/08 on sulfasalazine 2 2x's a day, canasa often.


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 11:17 AM (GMT -6)   
How's your stress level?
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 10/10/2008 11:57 AM (GMT -6)   
That's how I feel Harpo - I have always tested negative in all the tests but have indeterminate colitis - blood with stools from proctitis. I have always felt well and never had a single day off work (God willing) from Colitis except for the anxiety. I had a "perfect colon" in June, and then in August the colitis was back after a stressful period with a stomach ulcer.

You might be right stress is the reason - and I need to lose the stress - any suggestions? St John's Wort? Also does fish oil work?

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day.


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 12:04 PM (GMT -6)   
I just do my best to 'let it go' and not sweat the small stuff..

It's tough for me though because my wheels are always turning..

Beer helps.


As far as the fish oil, Im not impressed..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 10/10/2008 12:24 PM (GMT -6)   
I am sceptical about the natural stuff too. I might ask my doc for Lialda.

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 12:29 PM (GMT -6)   
You know, They say everybody responds in different ways to different things. Natural things aren't bad if they fill that void the body is looking for. But as far as fish oil being a Miracle drug in my specific case.. I don't think it is.. Is it bad? No.. Is it a natural anti-inflammatory? they say it is.. Can it hurt? I don't think so.. Plus it does have the positive heart benefits of Omega 3 fatty acids. Its worth a cheap shot imo..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 10/10/2008 12:38 PM (GMT -6)   
My next target is Fish Oil, and Tumeric - currently trying Digestive Advantage.

I think everyone has different inflammatory triggers hence why different things work for each of us.. I also believe there is Chrinish Inflammationn that is IBD and Chronic Inflammation that isn't.

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 12:43 PM (GMT -6)   
I think we have as much as a chance to figure out whats going on as our doctors do with the knowledge we have about our own bodies and the wealth of information the internet holds. in this case.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 10/10/2008 1:01 PM (GMT -6)   
HARPO are you on msn etc? Email? Be good to talk to you given our diagnosis'. I too think doctors know nothing, especially around dietry management.

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 1:08 PM (GMT -6)   
Red, Im not on any IM.. I'm at work right now. squeaking out posts trying to not get caught.. When Im not here Im at home running around in circles chasing 3 kids.. We can talk in here.. Its all good.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 10/10/2008 1:11 PM (GMT -6)   

We’ve seen thus far that, in just about every case of inflammatory bowel disease, conventional treatment involves the use of anti-inflammatories. Well, researchers at the Washington University in St. Louis took a bold step and did a study where they offered patients with Crohn’s disease an immune stimulant instead.12 They used a medicine called Leukine--a naturally-occuring molecule called Granulocyte-Macrophage Colony Stimulating Factor (GM-CSF).

Rather, they should learn from this study: by giving an immune booster, these doctors were able to put 53 percent of the cases into total remission. That almost implies that an infection is at the root of the disease, and that by assisting the body’s immune system the medication helped the body overcome the "infection," or the disease.

Typically, an anti-inflammatory medicine merely controls the symptoms of the disease--it doesn’t cure it. That’s because it rarely addresses the true cause of the disease. In other words, if the wrong diet is constantly consumed, or if damage (i.e. yeast overgrowth) is never reversed from previous antibiotic use, a cure can almost never be achieved. In this case, we feel that the "infection" in the intestines of Crohn’s patients is caused by fungi and their mycotoxins.

Incidentally, you can boost your immune system much less expensively and without a prescription by taking beta-glucans (see seagateproducts.com or nsc24.com). Using probiotics--Lactobacillus acidophilus, etc. (see natren.com)--is also extremely vital in reversing antibiotic damage, since these good bacteria can keep yeast and fungi from re-establishing themselves in the intestines.

Anyone who has been diagnosed with ulcerative colitis or Crohn’s disease knows the misery these diseases can cause. Given the alternatives for treatment--more immune-suppressing drugs and surgery--we think it would be worth a trial on a program that includes a low-carb diet and antifungal medications or supplements. A 1944 Johns Hopkins Clinical Mycology book stressed the importance of following a low-carb diet while treating yeasts.13 If a fungus or mycotoxin is truly involved, all of these approaches will do more than just suppress the symptoms of or "manage" the disease--they can actually cure it.

Hi all what do you think about this article?
First scope 7/05 should no UC, but I was bleeding with urgency. Sigmoid showed UC at rectum, 2nd colonoscopy & Endoscopy 7/27/07, Left sided colitis and near cecum (mild)
8/1/08 on sulfasalazine 2 2x's a day, canasa often.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 10/10/2008 1:37 PM (GMT -6)   
I have seen that article and those drugs cost $1000's for one dose., I think.

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 10/10/2008 1:43 PM (GMT -6)   
drugs or the naturopath supplements? The supplements are not expensive. I'm going to post Anyone taking Beta Glucan?

First scope 7/05 should no UC, but I was bleeding with urgency. Sigmoid showed UC at rectum, 2nd colonoscopy & Endoscopy 7/27/07, Left sided colitis and near cecum (mild)
8/1/08 on sulfasalazine 2 2x's a day, canasa often.


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/10/2008 2:01 PM (GMT -6)   
I read Lialda boasts a 85% success rate as a maintenance therapy.

www.ccfa.org/reuters/mmxuc
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin

New Topic Post Reply Printable Version
31 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, June 21, 2018 6:45 AM (GMT -6)
There are a total of 2,973,983 posts in 326,150 threads.
View Active Threads


Who's Online
This forum has 161228 registered members. Please welcome our newest member, lorazapora1.
352 Guest(s), 6 Registered Member(s) are currently online.  Details
torontolyme, Dogdays, Garion, Pratoman, NiceCupOfTea, countrymusic