Like to discuss MORNINGS!!

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/10/2008 9:48 AM (GMT -6)   
Way before being dx'd with UC I had "spells" of waking up early morning - usually between 4 and 6 - sick!  Nauseated, cramping, sweating, sometimes bad, sometimes not too bad.  I took pepto bismal for nausea and Imoidum for D.  Then I had my gallbladder out (it had to go) but did not stop these spells - just tamed them a bit.
I KNOW mornings are worse for most those with UC.  Is there anything - including remission - that will stop these terrible mornings.  I am 68 and need my rest and sometimes need to get out of the house earlier than noon.  I am now taking one Lialda mornings and one Canasa at night.  I am so sensitive to medication - even this seems like too much.  However, the bleeding is less and stool seems more normal.
Ok - does everyone here have bad mornings.  I am happy it is only mornings right now. But usually makes the whole day crappy when it is worse in the morning.
I have seriously bad knees that need replacing and wanted to get into remission before surgery.  This morning about 8 a.m. I said (and I meant it) - I would trade never having surgery - putting up with the knee pain - the rest of my life if the morning sickness would go away!
Thanks for reading - had to get it off my chest!  We planned on going out today but will have to "wait and see" if I feel good enough! YUCK!
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 10/10/2008 11:12 AM (GMT -6)   
That sounds really awful.  Have you told your doc about how sick you get in the morning?  Could something else be going besides the UC making you ill? 
 
I am healing from a flare right now, but my bowels wake me up too, but all I get is cramping.  I don't experience any of the other stuff except for when I'm actually going to the bathroom and that was only when I was at my worst. 
 
Remember that old army commercial about their soldiers doing more before 7am than most people do all day -- I think there should be one for people with IBD....we poop more before 7am than most people poop all week.  sorry.....
UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Culturelle Probiotic
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 10/10/2008 12:11 PM (GMT -6)   
Now that I'm in remission, I no longer experience the terrible mornings. I go once or twice without urgency and I'm off to work or whatever needs doing.

I'm curious... have you been tested for celiac disease?
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/10/2008 2:09 PM (GMT -6)   

Yes, tested negative for celiac.  Two doctors thought I was having anxiety problems - taking Xanax for that and it helps a lot but not the morning nausea!

Another thought gallbladder (it is gone).  Does not seem to matter what I eat the night before.  AND - it never happens during the daytime - always early morning before 7 a.m. or so on empty stomach.  I also had an endoscopy and I don't have a stomach ulcer (that was my thought)  By the way, when I have this nausea/sweating/sometimes chills I DO NOT HAVE UC symptoms - no cramping, no urgency - that all comes later and pretty normal after breakfast.  Oh- and when I get up and eat a little something - toast, coffee, peppermint tea, etc. I get to feeling much better.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 10/10/2008 4:26 PM (GMT -6)   
Glad you clarified that you have none of the usual UC symptoms when you have these bouts. That IS very odd. Could it be a blood sugar issue?
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/10/2008 4:32 PM (GMT -6)   
My mornings are pretty miserable as well. I rarely wake up feeling rested and well. More often than not I wake up nauseated.

Elaine, have you tried eating a little something before bed? A couple of crackers? I wonder if it is a stomach acid issue.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted 10/10/2008 4:33 PM (GMT -6)   
My mornings were sick mornings until just recently. Sweats, 4am D, nausea..

TOok me a while to get used to al the meds, and the doc prescribed me phenegran for the times I get really nauseous. Remicade has been a godsend. Everything has changed now.

I really hope you feel better Elaine. I mean that.
Sean - 31
UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (4 am)
175mg Azathioprine
1-2 x Imodium (on days where I have to leave the house)
Remicade infusion x 2
1 x 1000mg Fish Oil Cap
Activia yogurt banananananas


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/10/2008 4:36 PM (GMT -6)   
I am in what I consider remission, for me (no blood or mucous or cramping, but a lot of BMs) but my mornings SUCK. From 5 am to about 7 am it's one trip to the bathroom after another, I feel a bit nauseated. This is just about daily for me. The rest of the day is usually fine, although I can't eat a thing until about 10 or later or I feel very nauseated.
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Thinking seriously about the surgery option.
Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/10/2008 5:26 PM (GMT -6)   

Thanks for all the info.  I do eat a snack at night before I go to bed.  I do think it is UC connected even though I had it years before be diagnosed (but worse before I had my gall bladder removed).

The thing is I see some of you take 3 or 4 Lialda and I am taking one a day and getting side effects.  Also, only one Canasa before bed.  I do believe these meds are working but sooo slowly. 

I am sorry others have morning problems but happy I am not alone.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 10/11/2008 1:04 AM (GMT -6)   
I have attacks just like this every once in awhile--it included 2 hours of sitting on the toilet with the strangest BMs.
I'm not too sure how to control them or what causes them but for me not eating a lot before bed helps. Also, limiting fat/oil/grease has helped. I'm also grazing throughout the day with one large meal. Doing all this has decreased my attacks.

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day
Imuran 150mg once a day


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 10/11/2008 4:50 AM (GMT -6)   
Though I don't suffer from nausea and sweats, my gut pain is by far the worst in the early early morning. Most likely for me it is that I take all or most of my pred in the morning, so it's simple decay of the pred effect. But even in those periods where I have been off pred, it seems that 4 am period is the peak of pain and suffering for me and it often drops off a bit once my body's natural adrenaline kicks in.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring or simmering on and off ever since
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)
 
 
 


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 10/12/2008 2:18 AM (GMT -6)   
I'd also just like to add that testing negative for Celiac isn't necessarily correct. Best way to determine it is to go on a gluten free diet for 2-3 weeks and then add it back. My test came back negative but I can not eat gluten at all.

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day
Imuran 150mg once a day


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/12/2008 3:14 AM (GMT -6)   
For those of us past the child rearing years, I thought we were done w/ morning sickness! Yes, I wake up most morning nauseated and wondering how long it will take before I am ready to start my day. I am blessed in that I only work 2 days a week. This is one crazy disease that's for sure.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/12/2008 9:37 AM (GMT -6)   

Just always happy to know I am not alone - although I wish we all could be cured!!

This morning it was about 4 a.m. - awake until about 7 and then slept until 10.  Xanax saves me as it helps me sleep.  Just hate groggy mornings.  However, I do believe my UC is improving - that is what really counts - if I can live through the medication side efffects LOL!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/12/2008 10:28 AM (GMT -6)   
I didn't realize until my pet-less friend suggested it, but I'm a light sleeper and my two cats are apparently waking me up at night. As soon as I start to wake my gut spasms and I have to go quick, when I'm flaring. Also, my lawn sprinklers were set to go off then, and that might have been waking me up.
I can't bear the thought of locking my cats out of the bedroom because there is nothing more calming to me than a soft, warm kitty curled up by my side (and they would probably howl all night),
but these things might be the culprit for others.


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

Post Edited (Peety) : 10/12/2008 1:39:48 PM (GMT-6)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/12/2008 11:03 AM (GMT -6)   

I know what you say about the kitty.  We can't have any now (used to) because of my husband's lungs - but we have Penny, our loveable poodle/shizu mix. 

I have to get up about 4 times in the night because of overactive bladder (have tried ALL the medications for that) but luckily I have not had any BM's at night since I stopped eating much late at night AND taking probiotics.  However, when I wake up around 3 or 4 I start sweating/chills sometimes and nausea.  Sometimes I can get back to sleep soon - other times I fight it. If I got up and became active I am sure I would have cramps and BM's in the night.  I take Pepto bismal if I really have to.  Lately, it has been better so maybe the UC getting better is helping - I HOPE!!

Right now I am determined to "hang in there" with side effects to go into remission - not fun or easy - but trying!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 

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