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LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 10/10/2008 12:53 PM (GMT -6)   
What differences are people seeing with meds? e.g. how were you in your first flare and how are you now with meds?
 
My first flare was blood with stools - that's it. No D or anything else.
My condition now is blood with stools - that's it. No D or anything else.
 
Do these meds actually work or are we getting remissions and flares in a cycle anyway?
 
Also can it be possible to have UC symptons e.g. urgency, diarrhoea, fatigue, weight loss, etc but only blood with stools?

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day.


tabitha m
Regular Member


Date Joined May 2007
Total Posts : 139
   Posted 10/10/2008 1:37 PM (GMT -6)   
Well , my maintenance meds ( pentasa ) are certainly working for me .
 
I got a bit lazy a few months ago and for about 2 weeks took them perhaps only once a day instead of twice and i started to flare , Took about 2 weeks of pred and predfoam to calm me back down  , but i tell you something i wont be doing that again and am taking them like clockwork.
 
I'd been in remmisson for a year after a 6 month flare , hospital stay , lost about 2 and a half stone in a month , you all know what i mean ,and i dont want to go back there again thanks !!!
 
Kerry
Diagnosed Proctitis 2003
leaped to Pancolitis May 2007
 
2000mg pentasa a day
omega 3
Allergic to Sulphalizine
In remission since june 07
Multivitamin and calcium supplement
 
 


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 10/10/2008 2:48 PM (GMT -6)   

My first flare was about 6 years ago but I was never diagnosed. I had the works. Urgency, bloody D, horribly painful cramps, mucus...you know the drill. It went away on it's own after about 4 months and I was back to normal. Because I was never diagnosed, I never got on any meds. It happened again in Feb of this year which is when I was diagnosed and started the meds. I went into remission within 3 weeks and stayed there until the end of August. The reason I believe I started flaring again is because for about a week I kept falling asleep before taking my night time meds. It was also the first time I went 8 weeks between remicade infusions.

So I have definately noticed improvements being on the meds and notice setbacks when I stop taking them regularly.


31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks 6 weeks
Rowasa enemas nightly
Omega 3 supp, calcium supp, probiotics
metamucil wafers
Prednisone again!!  30mg


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/10/2008 4:06 PM (GMT -6)   
I've wondered the same thing. It seems to just do it's own thing. But I'm not taking any chances, so I take my asacol, day after day...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 2400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy, dairy-free diet. Replete probiotic. 
Achieved remission for the first time in many, many years!? 
Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & now recovering from irritation scope caused. Will be using Rowasa again. But I AM better.
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/10/2008 4:10 PM (GMT -6)   
After 4 1/2 years of 15-30 stools a day, bleeding, mucus, and generally feeling awful, I've been in remission for 2 1/2 years. My last scope was normal. But if I go two weeks past my Remicade date, I start to feel like I might have UC again.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/10/2008 7:11 PM (GMT -6)   
I never officially had a "flare" until this summer. But I was diagnosed back in July '06 after an infection, and they put me on Asacol right away. For two years I rarely had d, occasional loose stool, no blood or mucous, and was actually constipated most of the time, so I guess I was in remission. Then I stopped the Asacol this last July, and I flared right up. Now I'm fighting to get things back under control. My "remission" had its drawbacks though, I was always tired and felt like anything beyond basic life was too much exertion. It was a chore to drag myself to work, and after work, I'd go home and sleep. On the weekends I'd sleep inordinate amounts of time. I'd fall asleep during lunch breaks, or even sitting and reading the paper at work. So while my digestive system was working, the rest of me wasn't.

I'm hoping for a more balanced approach to remission this time. Like maybe some energy to do a little exercising, maybe leave the house for more than work or doctor appts, maybe get a life and actively participate in it. It's been a long, difficult summer for me, but I've got my hopes that this winter will see some progress, and I'll be back to at least 75% of my old self by spring. While I've always been somewhat asocial, I've never been keen on almost total isolation, which is what I have now. Thank heavens for this forum.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 10/10/2008 7:45 PM (GMT -6)   
The only med that ever gave me any relief was prednisone. And even the last time i took prednisone it alone wasnt enough to get me into remission or stop the blood. This is when i started a heavey dosage of probiotics and changed my diet, and the results where fast and impressive. I was in a remission never achieved before.
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
                                         50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes
10mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
                                                                Multivitamin
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08

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