fissure/fistula in colitis

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

homern
New Member


Date Joined May 2008
Total Posts : 13
   Posted 10/11/2008 1:54 AM (GMT -6)   
i'm suffering from very sharp pain in the anus on every bowel movement. the proctologist diagnosed a fissure and now a week later he says its a fistula. the pain in very strong and because of the colitis i'm having many bowel movements a day which means more pain more times.

anyone ever suffered this kind of thing? any suggestions on how to relief the pain, at least until i can get proper surgical treatment for it which will take a awhile.

thanks .

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 10/11/2008 6:37 AM (GMT -6)   
sorry man, those are SO painful! I found sitting in a hot bath really helps, after each bm. Sure, you wind up spending half your day in the bathtub, but you're in the bathroom on & off all day anyway! When I developed a fistula, it started as an abscess which was horribly painful, then burst & turned into a fistula. Now, I have no pain at all- some irritation when I'm going a lot, but zero pain. Do you have an abscess, or is it an actual fistula? If you check it out with a mirror you may be able to see it. Mine is clearly visible to the naked eye. I am not planning surgical repair- the success rate for closing fistulas is pretty low, I'm on the meds that they use to try to heal them via drugs (which haven't helped), & I've learned to live with it. It doesn't bother me- now. At first I totally lost it. Go sit in the tub ASAP!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 10/11/2008 7:34 AM (GMT -6)   

Yes, baths are the way to go!  As many as you can find time for during the day. 

With all the pain you are having I too wonder if there is an abscess forming.  They are very painful and can make you quite sick if they are not treated.  I spent three days in the hospital due to my abscess.  Definetely take a look down there.  When I had the abscess I couldn't see it, but felt hardness and pain under the skin.  With the fistula, I could see a hole. It was sore and well, quite frankly, yucky stuff drained from it.   I had a fistulotomy - where they cut away the top of the fistula channel.  Not a perfect solution, but I would probably do it again.

Hope this helps

 


UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Culturelle Probiotic
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 10/11/2008 11:43 AM (GMT -6)   

baths or a sitz bath is the way to go to get immediate relief. I had a fistula and had surgery to fix it, they basically opened it up on the inside and let it heal itself...today, there are no signs of it.

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Mesaamaline (sp) Retention Enemas, herbal meds in the search to regain full health.


homern
New Member


Date Joined May 2008
Total Posts : 13
   Posted 10/11/2008 12:53 PM (GMT -6)   
well, if i look in the mirror i can see an ugly open bump and redness around the anus, but its not draining or bleeding or anything. the proctologist said its a fistula. i dont know about an abcess but there should be fever with abcess as far as i know. the pain i'm feeling (like a knife) is horrible with the bowel movement, and i take the baths afterwards, but is there nothing to do with the sharp pains you experience with every bowel movement??

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/11/2008 1:23 PM (GMT -6)   
Often a fistula will start out as an abcess this may likely be your case...The presence of a fistula in the more proximal portions of the colon is distinctly unusual in ulcerative colitis and is more characteristic of regional enteritis, granulomatous colitis (crohn's colitis), diverticulitis, or neoplastic degeneration of the stomach or colon.
A gastrojejunocolic fistula is almost invariably associated with a penetrating marginal or jejunal ulcer which may follow simple posterior gastroenterostomy performed for the amelioration of peptic ulcer disease.

It's very rare for UCers to get fistulas, it's slightly more common in UCers that have a pouch.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 10/11/2008 2:04 PM (GMT -6)   
when you say "open bump", I'm not sure what you mean- can you see a hole in the bump? If not, if it's closed then it probably is an abscess about to burst & turn into a fistula. I don't know what to tell you about the pain you experience with bm's- until my abscess did burst, the pain was terrible, the only relief I got was sitting in a hot tub & sleeping. Once it did burst, it was totally gross & drained all sorts of nasty stuff- again into the hot tub, about 6x a day to clean it out & prevent infection. And a course of Flagyl & Cipro to be on the safe side. The pain stopped immediately too- it actually felt good to have it drain. I don't know if I had a fever, but I did feel horrible all around. I thought it was a hemmorhoid, so didn't check my temp. They are quite rare in UC- my GI was amazed when I told him what happened. For a long time no one could even find it, I had cat scans & exams, nothing. Then my gynecologist finally saw it. I suppose one bright spot in having a fistula with UC is that it would probably make getting Humira (or any other Crohns drug) easier, as your GI could definitely diagnose it as indeterminate UC or Chron's Colitis. Talk about a silver lining, huh..... eyes I do like hearing others success stories with surgical repair- I probably will get it taken care of, someday.... I just had a rough time coming to terms with surgery for UC itself, so when the fistula happened, I had made up my mind not to pursue a j-pouch or ileostomy. So the thought of any surgery involving my rectum, colon, etc. just turned me off totally. Plus it's not causing me any problems at the moment. At first I was aghast. Now I'm indifferent. Just one more nuisance "down there"! Did your proctologist order any scans or scopes, or just do a visual exam to be able to tell you it's a fistula? And are you only having pain with bm's? It sounds like the pressure from the stool is pushing on the abscess, causing pain. Not much you can do about that, unfortunately. What did the proctologist suggest?
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


homern
New Member


Date Joined May 2008
Total Posts : 13
   Posted 10/12/2008 5:06 AM (GMT -6)   
eva lou- right now i'm trying to get an exam at a specialist proctologic clinic to get an accurate diagonsis. i've been told that i might need a trans rectal ultrasound.

the fistula looks like a red shiny wound on the side of the anus and its painful, no holes though.

i'm afraid that this is a risky thing that i can develop an infection, i really hope i can get quickly to that exam.

also i'm not to keen on getting humira treatment.

i have a tendency to develop abcsess wounds on the face (not your regular acne), i hope it has nothing to do with crohn's.

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 10/12/2008 9:34 AM (GMT -6)   
ugh, what a hassle! I hope the appt. is made quickly for you, & they can accurately tell you what is going on- it doesn't sound like a fistula YET, because you can actually see the hole on your skin with a fistula. It does sound like an abscess though- are you on any anti-biotics? If you catch it now, before it bursts, it may prevent it from becoming a true fistula. What does you GI say??? I know weird skin things seem to be very common in people with IBD. Keep us posted! And try the hot baths- they really do help & are nice & relaxing also. Which I found hard to do with a hole in my body leaking fecal matter! Baths are nice for the mind. :-)


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 10/12/2008 8:04 PM (GMT -6)   
I take a 15-20 sitz bath with Epsom salts or hydrogen peroxide after ever BM when my fissure acts up. Also I use analpram (prescription) cream which dramatically shrinks it in just a day. I also use herbal suppositories at night containing calendula. It soothes irritated tissues, reduces bleeding and inflammation. When my fizzure acts up i just do these things for a few days and then im all good.
diagnosed with UC Dec 2006 at 22
diagnosed with IBS at 15
5mg prednisone
1000mg of Curcumin twice a day, probiotics, fish oil-3,6,9, coral calcium, multivitamin, yellowdock, iron, mangosteen juice, aloe vera gel
allergic or intolerant to all 5ASAs and 6-mp


homern
New Member


Date Joined May 2008
Total Posts : 13
   Posted 10/13/2008 1:55 AM (GMT -6)   
ok, been to a surgeon, told me i got 2 problems- a fissure and a fistula, no abcsess yet thank god.
he prescribed me ointment for the fissure that relaxes the sphincter muscles which helps the fissure to heal quickly
he also raised the question about the fistula indicating maybe that it's crohn's colitis and not ulcerative colitis, which was my diagnosis for the past 8 years.

is there any way to determine if you have crohn's colitis or ulcerative colitis? i think i've heard once about a DNA test that does that, anyone else hear of that?
i also see that alot of you guys with uc, suffered from fistulas so its not that rare for colitis as far as i can see which kind of calms me down.

betsaronie- so your fissure doesnt heal completely? isnt it a problem that sould go away for good once healed?

thanks everybody for your comments! :-)

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/13/2008 12:32 PM (GMT -6)   
Differences between CD and UC are;

With CD there are skipped patterns of inflammation (healthy tissues in between inflamed), with UC the entire area will be inflamed with no healthy tissue in between the inflamed areas.

With CD the inflammation can go deeper through the intestinal lining (often leading to fistulas which is why fistulas are more commonly associated with crohn's and not UC) with UC the inflammation remains on the surface of the intestinal lining.

CD can affect the entire GI tract from mouth to anus, UC is limited to the colon/rectom...

crohn's colitis (as I also have) is CD affecting the colon----col=colon, itis=inflammation.

Proctitis is inflammation in the rectom from either CD or UC.

Generally a good GI can tell the differences between UC and CD going by things I mentioned above, but sometimes both diseases can be tricky so a biopsy is usually done to help better determine which disease the patient has, there are plenty of times when a GI (maybe a not very good GI) just can't tell so they label a patient as having indeterminant colitis meaning they cannot distinguish which IBD a patient has.

The good news (if you can find any good news in having an IBD) is the same meds used to treat UC are also used to treat CC (crohn's colitis).

It depends on how deep the fissure is, sometimes deep enough fissures will require surgery.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, April 27, 2018 12:49 AM (GMT -6)
There are a total of 2,956,137 posts in 324,294 threads.
View Active Threads


Who's Online
This forum has 162267 registered members. Please welcome our newest member, Florens Loy.
220 Guest(s), 3 Registered Member(s) are currently online.  Details
NiceCupOfTea, pmitra0123, BOB 46