update and some advice needed

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chicagoatc
Regular Member


Date Joined Sep 2006
Total Posts : 133
   Posted 10/11/2008 11:09 AM (GMT -6)   
Hi all,
 
  I have a quick update.... I graduated from nursing school and passed my boards!  Working as a nurse has kept me busy!  I was taking Imuran and prednisone after failing Remicade.  I stopped the Imuran because it made me so fatigued about 3 months ago.  I can't be effective at work when I'm so tired.  My doctor understands and is willing to discuss other options.  My question is, do you have any suggestions?  I'm still on 12 Asacol a day and 5 mg of Prednisone.  I'm starting to see a little blood and am having some mucous and stuff so I know trouble is brewing.  I have an appt with the doctor on thursday 10/16.  I would like to go prepared with meds to talk about.  Any help would be much appreciated!

Thank you for your help!

Becky
30 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Prednisone 5 mg!
-Re-trying Imuran; I'm at 125 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D (for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/11/2008 6:27 PM (GMT -6)   
That level of prednisone probably isn't doing much, maybe go up to 15 or 20? It will give you energy! Blah, not a good reason to take it. But that level shouldn't be too uncomfortable. Maybe enemas will hit it too without disrupting your work. I don't have experience with Imuran.
Congrats on the successes. We need nurses!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 2400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy, dairy-free diet. Replete probiotic. 
Achieved remission for the first time in many, many years!? 
Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & now recovering from irritation scope caused. Will be using Rowasa again. But I AM better.
 
 


chicagoatc
Regular Member


Date Joined Sep 2006
Total Posts : 133
   Posted 10/11/2008 8:27 PM (GMT -6)   
  I'm on the 5mg dose of Prednisone trying to get off completely.  I've been on pred for almost 1 1/2 years consistently.  It seems like I can't go lower than 5 without having issues.  Going higher may give me energy but it makes me crazy and fat too!  I'm not sure what to do....

30 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Prednisone 5 mg!
-Re-trying Imuran; I'm at 125 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D (for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 10/12/2008 1:27 PM (GMT -6)   
An earlier post of mine may help you. See "New Online IBD Article Summarizes Current Medical Treatment Options"-- last updated here on 8/8/08. Several members report finding the article very helpful, including moderator Judilyn, who is also a nurse. Best wishes for you to find the info. you need. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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