I was wondering if many of you suffer from a persistent gut pain in one spot of the abdomen which doesn't correlate to anything especially when you are scoped, nor to other tests to rule out other things (eg upper GI, ulcers, gallstones, hernias, etc etc). I have pancolitis and am currently fighting a flare, but whether flaring or not (and it's worse in flares), I have a persistent burning pain a couple inches above my navel, centered laterally (left and right) on my abdomen. When in remission, GIs will dismiss it as IBS (which, of course is no diagnosis at all except to say "we don't know what the h*ll it is"), while when flaring, it gets worse and the pains spread, but that area never becomes pain free ever, 365/24, though on rare very good remission days it almost goes away completely.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring or simmering on and off ever since
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO,
boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)