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Charles Nesby
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 10/12/2008 7:41 AM (GMT -6)   
Will I ever have a day when I'm pain free again? Or is this just my life from now on.

Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/12/2008 7:59 AM (GMT -6)   
I'm so sorry your hurting and we have all been there done that and it's no fun! However, it does subside over time. Keep on your meds and the right diet regamine for you. I began my first flare last May, still in it, but the pain is better.

Ah, wishing you to feel better real soon and welcome to our forum you will learn alot!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/12/2008 2:33 PM (GMT -6)   
In 20+ years I have had my share of pain but then it's better. And that's before/without a lot of the meds being used now. Try to rest, let your body relax, and find peace. Then pat yourself on the back for how strong you are! That's what I do.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 10/12/2008 4:23 PM (GMT -6)   
Dont let your doctors not prescribe you pain medicine. They go through sensitivity training. Tell them you hurt if you hurt. Pain sucks, and only inhibits the healing process. You have no reason to feel bad in any way for asking for pain medicine.

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/12/2008 4:36 PM (GMT -6)   
I agree with SocalJohn - your doc should give you pain meds if you need them. My first GI prescribed me Darvocet when the cramps (from coming off of pred) were hurting me. Thankfully I can usually make do with Tylenol (rapid release!) and don't need to use the Darvocet often. It's great to know I have it if I need it though!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/12/2008 5:52 PM (GMT -6)   
My pain comes and goes. I'm somewhat reluctant to take anything stronger than Tylenol due to substance abuse issues in my past. It if gets unbearable, I'll have my doc do a couple of pills, but I never keep things around the house. What I've noticed helps keep the pain at bay is eating low residue foods, and using fiber additives to help keep things moving along. The better I feel, the less pain I have.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 10/12/2008 7:14 PM (GMT -6)   
Definitely get pain meds if substance abuse is not an issue.  Why suffer?  And I agree that over time you'll find other ways to alleviate the pain.  How long have you had UC?

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/12/2008 8:48 PM (GMT -6)   
is this something that hycocimine can help with? I think thats the generic for something like nulev??

quincy
Elite Member


Date Joined May 2003
Total Posts : 30687
   Posted 10/12/2008 11:32 PM (GMT -6)   
pain can be because of various reasons....gas, inflammation, spasming, ...

Food can cause gas and pain...I think you would have to determine if adjusting your diet somewhat can help.

Is your pain consistent? after you eat? upper gastro? rectal? before or during bms? etc...

interesting...there was an article in one of the CCFC newsletters where a doctor stated that there's not much pain associated with UC.....bwahahahhaaaaaa...yeah right!

I use an antispasmodic just about daily....when there is nausea, I take Gravol. I've not needed anything stronger except for tylenol a few times.
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 10/13/2008 8:13 AM (GMT -6)   
quincy said...
interesting...there was an article in one of the CCFC newsletters where a doctor stated that there's not much pain associated with UC.....bwahahahhaaaaaa...yeah right!
Are you serious???  I've almost blacked out on the toilet!  I love when people who don't have UC write articles about how it feels.  rolleyes
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 2X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed, Multivitamin.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/13/2008 8:45 AM (GMT -6)   
Until you get prescription pain meds, you could try using a heating pad. My pain is never too bad and a heating pad definitely helps.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/13/2008 9:37 AM (GMT -6)   
Pain is an interesting phenomenon. It really exists only in the brain. Your muscles or organs have inflammation, stretching, pulling, etc., but it doesn't become pain until the sensation reaches the brain and is interpreted. Because of this, it's a very individual thing. Two people could have exactly the same physiological situation, yet one would say their pain is a 1 and the other an 8.

Pain is also easier to prevent than to relieve. That may be partly due to the mental/emotional component. If I'm anticipating pain, my brain and body release stress hormones that actually increase my feelings of pain and discomfort. That's why so many hospitals have gone to patient-controlled analgesia (the beloved PCA pump), because it gives us a feeling of control over when we get pain relief. I find that extremely comforting when I'm having surgery, to know I won't have to lie and wait for relief.

And yes, I love it when they say there's not much pain. I once had a new doctor who said right before my gyn exam "Just relax, this won't hurt." He caught me in just the wrong mood, and I sat up on the table and said "And how would you know? When was your last exam?" He sort of stuttered, and I said "Then don't tell me whether or not it will hurt. As it happens, it won't hurt me, but you have no way of knowing that!" He never made that mistake with me again - maybe never with any patient.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/13/2008 2:31 PM (GMT -6)   
heating pad did wonders for me, especially at night, it never helped me w/any other type of pain before, and I was surprised it did.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 5mg/2.5mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/13/2008 2:35 PM (GMT -6)   
supersaw said...
Judilyn said...
Pain is an interesting phenomenon. It really exists only in the brain. Your muscles or organs have inflammation, stretching, pulling, etc., but it doesn't become pain until the sensation reaches the brain and is interpreted. Because of this, it's a very individual thing. Two people could have exactly the same physiological situation, yet one would say their pain is a 1 and the other an 8.

Yea!  This is how I dealt with a lot of pain, before it became too much.  You could actually convince yourself that pain is just a feeling, and its not that big of a deal and can kind of avoid it.
 
Until you got like a broken bone of course, then it doesn't work anymore.
Um, yes, well...... I actually walked on a left leg with both tibia and fibula fractured for almost three months. It hurt, but since it was just above the ankle, I thought it was just my joint pain that I get with the UC (it actually is that bad sometimes.) By the time I got to the orthopedist with it, she had to re-break the leg and put a metal plate in it to hold the bone in the proper alignment. Good times......not!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30687
   Posted 10/13/2008 3:02 PM (GMT -6)   
All pain is received in the brain....but one cannot deny its happening or find a reason for the "why".
Accupuncture could work as well as biofeedback if one is to the point where it's uncontrollable and one doesn't want to get to the point of using stronger pain meds.

Those attachable heat pads have worked for many...but can be expensive if it's a daily thing.

I too use a microwave grain bag to help ease the reaction to the pain...sometimes that's enough.

It may not be the initial pain, but the reaction by our bodies such as tensing muscles, rectum, etc. Kind of goes from bad to worse...

Preventing, as per pb4, is definitely easier than after the pain has started. Don't wait too long to use a remedy that could be successful.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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