Had our first infusion on Tues. In one day, my daughter felt better! She was hospitalized again, this time for 7 days. Nothing has worked.
We are hopeful. Second infusion is in 2 weeks, so we will see if this holds. No early side affects. She will have a scope at week 8 to see if there has been healing of the badly damaged colon.The infusion was done under close supervision in the hospital thru a Picc line(she was badly dehydrated, and had no veins to speak of)
Will keep you posted.
Daughter,15 diagnosed 1-08 w/ UC Learning from you all.
Asacol, Prevacid, Flagyl, Prednizone 50mg, major flare, now off!, Hosp. @ U of C, Comers three x this yr. Low residue diet still, and still in a flare.
6MP, Colazol ,horrible acne/moon. No more Pred,but 6mp isn't working. Remicade next up.
Trying probiotics, fish oil, and Mangosteen for kicks.