LOL... it can get overwhelming sometimes. It's difficult, but necessary to keep it all in perspective. Not all of us get liver disease, some get that and more...it all sucks, but knowledge is power.Small bites can be easier to take in and digest than too much.
I don't relate to everyone, and some issues I don't even enter a thread. Try to keep it all in perspective.
I know this isn't any consolation, but when it was suspect that I had PSC over 10 years ago, I didn't have the internet. My best friend works at a college library and photocopied about
a 3 inch stack of PSC information.
I cried for 3 weeks ingesting all the information..hilighting...thinking my life was over just when I was starting a new profession.
There was one small article written by a doctor who stated that the testing for confirmation was flawed and that the ERCP could trigger the disease into an exacerbated active state as well as cause pancreatitis (my sister had 3 ERCP tests done and has chronic pancreatitis..she suffers in an attack). That one article gave me the power to say NO which I believe bought me a lot of time...and eventually, the MRI test for PSC (MRCP) came about
and I had that a few years ago..which did confirm early
PSC. will hold off on an ERCP forever if I can.
Remember, you can always click to another site to get your mind off of what you read here. There are also different reasons why we get what we have...good to know, but not necessarily the norm.
hope this helps somewhat...
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!