Wow, thanks everyone for the support. So many of you are right, by sugar coating it or not discussing it, I am keeping people in the dark, so how could they understand. Like Peety and Eva Lou, I tell as few people as possible about
my condition. At work, only my two shift-mates that are directly affected by my bathroom trips know, and if I had my choice, they would be in the dark as well. I wish only my immediate family knew, but extended family know as well. What I really hate is that when I do see extended family, that is just about
we all talk about
. I try to steer clear of UC, or give somewhat vague answers, but conversation somehow ends back on UC. I wonder if its because I don't much else besides go to work, sleep, and use the restroom?
Fitzy, I admire your
your condition and the fact that you are doing volunteer work for the CCFA (I did read that somewhere, right?). You are one busy woman! I guess I see my condition as a liability that is better suffered alone. It does make sense that I should be trying to educate others about
this condition instead of hiding it, but I'm such a private person.
JJC, being diagnosed back in the dark ages of medicine must have really sucked. Nowadays there is more
openness and awareness about
illnesses, it makes it somewhat easier, plus having this venting board is one of the greatest discoveries I've made in the last few years. You've been through so much in your life, I'm hoping that you are able to find some peace now. A question: When they diagnosed you, did the witch doctor recommend leeches or an exorcism to get the bad stuff out? Was that what the transfusions were for? Or was he more of the traditional type, burning incense and chanting all night long?
I think I'll try to be a little more
this with my family so they have more understanding. I'm not real enthused about
letting my sister know how much things really suck most of the time. I don't need her to feel sorry for me, but it would be nice to not have to dance around the subject with her. I just hope it doesn't push her away. It's no fun talking to someone who complains about
stuff all the time.
I just want to get healthy, and get some semblance of a normal life back. I want to not worry about
taking airplane trips, I want to be able to exercise without accidental leaks, be able to get involved in projects at work without having to run to the loo every hour, go for long drives without worrying where the nearest restroom is, not have to carry TP with me just in case, be able to have a conversation with family that involve the words UC, and be able to come on this board with my miraculous recovery. Is that too much to ask for? UC frustrates me to no end!
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)