Interested in what's helping in terms of natural alternatives.

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JingleBell
Regular Member


Date Joined Oct 2008
Total Posts : 80
   Posted 10/13/2008 1:06 PM (GMT -6)   
I am new to this website and forum. Diagosed with UC when I was 8, now 35. Have tried most classes of drugs. Nothing seems to be the magic elixer that puts me into remission. Doctor is now talking about surgery. Would love to hear from anyone who has taken a holistic approach to UC and whether or not it is helping. Also, would like to know exactly what regimen you are following and specific brands/doses.
 
Currently taking 6-MP, Omega-3 fish oil, probiotic, iron supplement, also follow Specific Carbohydrate Diet.

mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 10/13/2008 2:07 PM (GMT -6)   
What helped me
 
Vitamin E enema (the king of natural treatments)
Cinnamon tea (be careful of the Chinese grounded cinnamon. It's mixed with leaves)
Saccharomyces boulardi (the best probiotic for me)
Physllium seeds (bulks stools)
Humic Acid (fantastic anti-inflammatory also helps with joint pain)
DMSO (relives pain instantly)
Propolis
saffron (the only thing that helps me from 'morning flares')
Lemon juice fast (lemon is acidic but alkaline forming)
 
Five years ago no medication was helping and my doctor suggested surgery which I refused. I experimented using different herbs and for the last 5 years I have not used any medication and I am in remission.
 
 
 
 
 

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/13/2008 2:16 PM (GMT -6)   
bee propolis (natural anti-inflammatory)
omegas 3-6-9
probitoc (primadophilus reuteri made by natures way)
vitamin C-calcium asorbate
vitamin A
vitamin B12
fibre supplement as recommended by my GI (Prodiem which is similar to metamucil)
chamomile tea (bought in bulk at a tea store, not the tea bag brands)

all daily and indefinitely and I've gone from having 30+ bm's/day to 5, all formed stools, no bleeding, no excess mucus, no more lower back pain.

I've also altered my diet cutting out animal fats, caffeine, refined sugar, processed foods/beverages, fast foods and exercise regularly.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 10/13/2008 2:16 PM (GMT -6)   
I have tried loads of stuff for my bleeding and stomach cramps - Bee Propolis, L-Glutamin, Aloe Vera, Alow Elite, etc etc.

The one that works and soothes the best is Camomile Tea, and I have to say the Digestive Advantage is slowly working too. I'd say the only real natural thing I'd "recommend" is a powerful pro-biotic, fibre and a soothing tea.


Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 10/13/2008 2:17 PM (GMT -6)   
Mudua - how do you use the Vitamin E Enema and how do you put it in?

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 10/13/2008 2:30 PM (GMT -6)   

 

 

Hi please click on the link below. It's Sheldon's discovery

 

http://www.whale.to/a/ulc.html


JingleBell
Regular Member


Date Joined Oct 2008
Total Posts : 80
   Posted 10/13/2008 2:41 PM (GMT -6)   
Great info! thanks for all the posts.
Mudua - wondering how to take the saffron. Mornings are the worst for me.
Thanks
Living with UC for 27 years
Current Meds:
75mg - 6 MP
325mg - Iron supplement
1000mg - Omega-3 Fish Oil
PB 8 - Probiotic


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 10/13/2008 2:50 PM (GMT -6)   
 
 
Taking saffron
 
Put 3 'strings' of saffron in a  glass tumbler (half filled) of boiling water and than place a plate on top of the glass and allow it to distill for 20 minutes. It's best to take it just before you go to bed as it makes you slightly drowsy. It took 5 days before I had results, so be patient

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/13/2008 8:59 PM (GMT 0)   
It might be worth the time and money for you to visit with a Naturopathic doctor. Mine seems to know a lot about the combinations of things to set things right. Find one who specializes in digestive disorders (I found one in my area who has written a lot on the topic, for example).
I also was never really achieving a good remission but am much better now, and didn't really make too many changes yet. Just strong probiotics and avoiding foods I tested (blood test) sensitive to, B-12 shots. He gave me other herbal meds that I plan to start taking now.

Good luck, let us know how you are doing.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 10/13/2008 3:22 PM (GMT -6)   
I started a natural approach and have felt great since and been in an awsome remission since ( 1 solid bowel movement in the moring no blood, no gas, no urgency.) Heres what i did...

First was diet changes starting around August 3rd this year i was wieghing 214 and flaring since may this year, i stopped alcohol. Then cut my sugars, carbs, fats etc...here is my M-F basic diet still to this day

Breakfast is a 2egg spinich and light cheese omlet and a cranberry drink.
Lunch is a protien shake, with 1 cup plain yogurt, 5g of glutamin, 1 bananna, 1tbsp of cinnamin, 1tsp of honey, 75g of protien.
Snack is a bananna.
Diner is Rice with either baked fish or chicken and fresh veggies and watermelon for desert.

While the diet helped it didnt cure my flare at the time. I noticed big results when i started a heavey dose of probiotics around Sept 4th. I bought Super Acidophilus from GNC its a 10b CFU pill. I started taking 4 a day before each meal, also started digestive enzymes, 2 before each meal. Four days later my syptoms lessened drastically then stopped soon after remission followed and remains to this day. Of course this sparked my interst in probiotics and natural healing, so i have been on a kick since. So fron there on i stuck with the diet and treating myself on the weekends (nothing too crazy) and started some more probiotics and even a yeast detox ( which ends tomorrow).
I started taking garlic tabs and fish oil 1x a day. Oil of oregano x1 a day. I also started taking bifidobacterium 4x a day along with the acidophilus ( also GNC brand 10b CFU). I started taking a prebiotic with FOS to help the probiotics.
At the begining of all this i saw huge chunks of what looked like mucos mixed in with my stool, after a few weeks it disappeared. I truly this it was my body expelling bad bacteria and mucos. Two weeks ago i started a Candida detox treatment, i used a YEASTMAX product, the liquid was brutal at first, and for the first week and half i felt like crap! Tired, headaches but i stuck with it..i even saw some more mucos in the stool at first but now its gone. I finish this detox tomorrow. I also started the Vitamin E enema like 2 weeks ago right before bed, i have old hydro cort enema bottles i used them just pured in the pure V-E and some water and presto. I havent done one in a few days though.
Today I just got VSL#3 and took my first dose, i just added to my protien shake.

I may have forgot something little but think thats the jist of it, i am doing great still. Mind you i am still on some drugs but almost of the prednisone and hope to slowly ween off them all if i maintain remission with just diet and probiotics. Good luck.
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
                                         50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes
5mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
                                                                Multivitamin
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 10/13/2008 3:35 PM (GMT -6)   
Nice post Mike - I think I might increase my Digestive Advantage to like 2 a day... I hate taking my Asacol Enema so won't be trying the Vitamin E one..I will be buying the Omega 3 Fish oild though or shall I just buy Flaxseed Oil? Any advice?

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 10/13/2008 4:13 PM (GMT -6)   
Mudua- how the heck do you create the vit E enemas? I tried that a couple times and it was hopeless- oil does not mix with water in any way, shape or form so you end up with as bunch of clumps of vit E oil (extremely thick, almost like grease) amidst lots of water.... no mix at all. Just wondering how you did/do it. I would love to do the same thing with lecithin (PC) as used in the German trials for UC with enteric-coated PC, but its the same problem= of anything lecithin is even thicker.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade next
 
 
 


JingleBell
Regular Member


Date Joined Oct 2008
Total Posts : 80
   Posted 10/13/2008 7:20 PM (GMT -6)   
Thank you all for the ideas. Has anyone every done acupuncture and if you have did it help?
 


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 10/13/2008 7:34 PM (GMT -6)   
IDk fish oil is good for your heart..

For V-E enema what i do is take the cap or nozzle thingy of my injector pure the V-E into it and hold my finger over the tip so it doesnt run out on your floor obviously. Then put some water in the bottle and raise the two together almost horizontal and tighten it up. Then i do a ninja backflip all quick like and land on all fours and insert, take it slow the V-E is viscious but the water will push it out and your getting the V-E in your bum for sure.

No never did acupuncture dont plan on it either.
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
                                         50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes
5mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
                                                                Multivitamin
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 10/13/2008 8:00 PM (GMT -6)   
Vit-E enema works great. I use 4 1000 IU caps of E with about 3 tablspoons of water. Once you know what 3 tablespoons look like you don't need to measure, lol. You won't get all of it out but just re-use the same bottle. Its not unsanitary unless you are sticking it in someone else butt too.

Homemade probiotic enemas works well too.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 3 day
Immuran
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 10/13/2008 8:09 PM (GMT -6)   
"Then i do a ninja backflip all quick like and land on all fours and insert" yeah yeah yeah yeah
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****Digestive Advantage IBS formula 2-4 a day


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/13/2008 11:52 PM (GMT -6)   
mh53mike:)

I'm pretty sure that taking digestive enzymes after meals rather than before is more effective so it can aid in breaking down the food you've just eaten.

Eating pineapple, kiwi, papaya or mango which are natural digestive enzymes after each meal is also effective if you can tolerate eating any of those fruits.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


sheldon33132
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 10/14/2008 12:41 AM (GMT -6)   

 

      

Vitamin E is a powerful antioxidant.
I CURED my severe condition of ulcerative colitis over 25 years
ago with a vitamin E enema you prepare yourself and diet.No
other
medication. No problems since.Results within one week.The correct
diet of fiber binds the stool,provides the proper environment for the
growth of good bacteria and removes the constant colon
irritation produced by wrong food choices which gives the open
sores a chance to heal.The vitamin E enema works with the body
immune system to heal the colon wall.
The enemas are made from the vitamin E you buy in a drugstore.
Additional infomation at http://www.curezone.com Type vitamin E
enema in the upper RIGHT hand corner of the opening page CureZone Google search
window The first posting issue 64 will take you to updated
information.On the same page under Support Forms Top,find additional postings
with the listing vitamin E enema #115

 

 

 


 


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 10/14/2008 1:17 AM (GMT -6)   
I tried everything natural and then some before I decided on surgery. I think it is important that each person try whatever they need to try for themselves before making the surgery decision. I have listed in my blog all the alternative stuff I tried, and also I found a really helpful webcast about alternative medicines and such for UC/CD. You may want to listen to it since it is a good medical but medical alternative info.
 
 
If you do find you are seriously considering surgery, you may want to check out my blog and you'll see that people do have good experiences and move on well with their lives - like I have - with their jpouch.
 
Take care,
Mark
Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/14/2008 8:59 AM (GMT -6)   
I have been to your website before, thanks for posting it!!

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 10/14/2008 12:25 PM (GMT -6)   
A combination of diet, natural supplements and an ASA for maintenance works for me. See specifics in my signature. Jini Patel Thompson's book Listen to Your Gut is the most comprehensive source I've found for alternative therapies for IBD.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


AnxiousMom
Regular Member


Date Joined Nov 2006
Total Posts : 30
   Posted 10/14/2008 12:47 PM (GMT -6)   
My 16 yo son constantly bled for almost 3 years. Typically he would have 1 BM a day but the blood would fill the toilet. ( There have been times when he had full blown D but usually not the case). He is refractory to most western meds so we tried alternative meds heavily. Bottom line what seems to work is RF+ and Isatis Cooling. I do add Relief which contains psyllium powder as well.

On his own accord, my son eats primarily red meats, eggs, coconut juice, all organic. He does take Jarrow probiotic, Bee propolis, fish oil. rejuvelac. We tried acupuncture for 1 1/2 years and boiled special Chinese herbs-helped a little in the beginning and then just stopped. I could go on & on...

~Sally
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