Anyone suffer from UC and Celiac disease?

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cooper67
Regular Member


Date Joined Oct 2008
Total Posts : 30
   Posted 10/13/2008 9:10 PM (GMT -6)   
I started a thread earlier,but forgot to put a subject.I would love to hear from anyone that suffers from both of these diseases(Ulcerative Colitis and Celiac Disease)I have some questions about food,medicine etc.
 
 
Ulcerative Colitis 2003
Celiac disease Oct.2008
On Colozal for UC 4caps 2x aday
Have not started gluten free diet yet waiting for more lab results.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/13/2008 9:15 PM (GMT -6)   
haha, we crossed posts. I'll repeat here:

Me. Hi, you already heard from me!
Amy's has good stuff. Several brands of cookies were good, especially the shortbread kind.
And Ruffles potato chips, yumm. Sushi, but no soy sauce!!

Simple meals, meat and veggies. The hard part is that restaurant eating isn't much fun. There are usually only a couple of things on the menu that work.

I had immediate results, worth the sacrifice. Keep in touch!!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


cooper67
Regular Member


Date Joined Oct 2008
Total Posts : 30
   Posted 10/13/2008 9:53 PM (GMT -6)   
Thanks Peety-- that helps alot and I will probably have more questions for you at some point! When I cook it is almost always a meat-fish,chicken and occasionally steak and steamed or stirfry veggies-very boring,but it keeps the weight down.I rarely eat sweets or bread,but if I have a craving it is good to know what GF snacks are out there,so I can keep them on hand.I drink wine so I am ok there ,but I guess I will test out some GF beer to decide which one I like.Is the food store you mentioned in your first reply a chain or local in your area- I am in SC.So glad I can eat sushi-oh well about the soy -maks me swell anyway!!
Thanks for getting back to me--I am anxious to find out all I can and I will be heading to the store to stock up on things this week!!Beth

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 10/14/2008 12:27 PM (GMT -6)   
I've been tested and told I don't have celiac disease, but I know from experience that I feel much worse when eating gluten. I tend to eat a naturally GF diet - eggs, poultry, veggies, nut butters, etc. I indulge in occasional GF treats like waffles or cookies, but I find I feel better when I avoid grains altogether.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


cooper67
Regular Member


Date Joined Oct 2008
Total Posts : 30
   Posted 10/14/2008 4:56 PM (GMT -6)   
Thanks Princesa,I was talking to the girl that cuts my hair today about all of this(hair stylists hear it all!)just to see what some of her other clients have told her over the years about gastro problems and she was saying that someone told her that going GF even if you are not a celiac makes people feel better even if they really don't have any real symptoms- just want to do some thing more healthy for themselves.Also that men who have belly fat alot of times go off of gluten and lose that fat-has something to do with storing gluten in that area.I dont know how true that is,but I can believe it after all I have read about gluten so far.I am new to all this,so any info you can give me would be great!I really wish I could get more replies about having the combo UC and celiacs-I know that Peety and I aren't the only two out there???

lad22424
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 10/14/2008 6:37 PM (GMT -6)   
Hi everyone, I'm so glad there are other people curious about the linkage between UC and celiac disease. I have always found that I have more GI problems when eating bread, pasta, etc, before I was ever diagnosed with UC. Recently, I was reading about Celiac disease, and am wondering if I have it.

Was wondering 2 things-

1- are there a lot of UCers who feel the same way about gluten products? and

2- I'm wondering how important it is to get formally tested for celiac disease by a Doctor and be diagnosed?? Is the testing extensive? I was reading online and a variety of procedures were listed so I'm not sure how exhaustive the process is. Thanks.

Diagnosed Aug 2007
Remission since Oct 2007
Lialda 2 daily

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/14/2008 7:44 PM (GMT -6)   
Lad - the testing for Celiac Disease is very easy. There is a blood test. However, if you have been GF for some time, the antibodies will not show up.

There are lots of great recipes out there for GF foods. My father is a celiac. There are so many more store bought options now than there were eight years ago. The main thing to watch for is the hidden glutens! Those are the ones that will "poison" you and cause GI distress without you realizing you've ingested them. Caramel color is a biggie - sometimes made from wheat. There's a whole lot of them - I can't remember off of the top of my head. But the information is out there. There is a soy sauce that is GF. I want to say La Choy, but check to be sure. Try not to get anything that is pre-marinated - many commercial marinades contain hidden glutens.

There are lots of baking mixes for those with a sweet tooth. Many restaurants are now listed gluten free options.

Best of luck to you!

BTW - my mom will only make GF waffles now. They are a family favorite. She'll make them for guests, then ask how they liked them, then she'll tell them they're GF. So many get a shocked look on their face because the waffles are so tasty!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


cooper67
Regular Member


Date Joined Oct 2008
Total Posts : 30
   Posted 10/14/2008 8:10 PM (GMT -6)   
Lad,I have had UC since 2003 and recently started having symptoms that were different than when I would have a flare in the past,but I kept thinking it was the UC.So I put off going to mt gastro until I could take it no more.He scheduled a colonoscopy as well as an EGD(down the throat).He took some biopsies and the EDG biopsies showed celiacs,but in order to verifiy 100% i had to go to the lab for blood work and that is how they determine celiacs.I have not started GF diet yet,because this was just last week that I found this out and I have to go to my nutritionist to get me started-I have however, been very careful of what I eat until I see her.People that I have talked to about going gluton free-even if they dont have celiacs or maybe a slight wheat intolerance- feel unbelievably better after going GF.We shall see!!

lad22424
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 10/15/2008 9:10 AM (GMT -6)   
Thanks everyone! I really appreciate the information. :)
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