long term supplement/probiotic use

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Regular Member

Date Joined Sep 2007
Total Posts : 43
   Posted 10/14/2008 4:01 PM (GMT -6)   
Just saw my internist/family Dr. He said something about supplements and probiotics that I'm questioning. I had never really discussed probiotic usage with him but he suggested that now that I've stabilized and my colon is absorbing as it should that I might try stopping the probiotics since my good bacteria is now re-established. He also felt supplements were not indicated based on my current blood work. He said when my body needs the supplementation it will show up in blood work. I'm rather of the opinion that I am where I am because of the medicine, supplements and probiotics. I'm not really considering changing anything but was curious what your thoughts were on this approach. He seemed genuinely concerned that I was wasting my money and stated a recent study by a medical dr./nutritionist that I didn't take the time to get names date etc.
dx:2003 Pancolitis
current meds:
Colazol 1500 TID, Imuran 100mg, Healthy Trinity Probiotic, Grape Seed Ext. Biotin, Vit. E., Selenium, Flax Oil, Calcium, Zinc and Emergen-C

Regular Member

Date Joined Aug 2008
Total Posts : 149
   Posted 10/14/2008 5:09 PM (GMT -6)   
Ya know probiotics isnt going to show up in a routine blood work ever. Its healthy and good for you, if you have no problems with it i would continue use. Asking you to stop taking your multivitamin is the same thing...why...
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
Current daily treatment:                               Probiotics & supplements:
2400mg oral asacol                                      Digestive enzymes
5mg prednisone tapering                               50 Billion CFU's acidopholis&Bifidobacterium daily
75mg azathioprine                                        folic acid & calcuim with V-D
20mg Nexum                                               VSL#3 450billion bacteria packets
Diet:Little/no sugars, fats, carbs, caffine,yeast,breads. Stay natural as possible.  
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 10/14/2008 5:21 PM (GMT -6)   
I wouldn't change a thing if I was you, if you had my GI he would encourage you to continue with what you're taking indefinitely so long as the Grape Seed Ext. Biotin, Vit. E., Selenium, Calcium, Zinc and Emergen-C is all 100% non-toxic...my GI told me to continue with my regiment he said everything I was taking is safe to take indefinitely...and as far as the probiotics go, likely once you stop taking them, the bad bacteria will at some point likely take over again, so it being safe to take probiotics indefinitely why bother stopping.

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Mar 2007
Total Posts : 2832
   Posted 10/14/2008 9:12 PM (GMT -6)   
My sense of the literature is that probiotics are most effective in maintaining remission, and least effective in obtaining it. So I wouldn't cut them out in a long remission. I wish I had known about probiotics back when i had a 9-10 year total and med free remission. Sadly for me, I falsely believed I never ahd UC at all bur rather some freak, undoagnosed parasite attack causing my original UC outbreak, so I lived on borrowed time.

Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade next

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