How does your blood work look?

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glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 10/15/2008 9:20 AM (GMT -6)   
Every time I get blood work, I always get a call from the nurse to see how I'm feeling because my labs are always horrible!!  Even when I'm feeling great (like right now) I'm told that my colon is severely inflamed.  My sed. rate right now is 120 which I'm told is the worst it can get.  I'm going to the bathroom 2-3 times a day and still bleeding but I feel wonderful.  My energy level feels normal, I don't feel flu like, nothing!
 
My GI wants me to consider Remicade or Humira or surgery.  Both drugs scare me to death as does surgery and I tried to explain to the nurse that it's hard to make a decision for such a radical form of treatment when I don't feel sick.  She argued with me and said that it's a pre-cursor and could mean that next week I'll be really sick..lol.  OK, then why do my labs come back horrible every time and I never end up getting that sick?  It's so frustrating to be told that I should be on my death bed when I feel wonderful.
 
Anyone else have horrible labs when they feel fine?
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 10/15/2008 10:59 AM (GMT -6)   
Hi That is a high sed rate but there is hope. Mine was over 115 and I was in the hospital for for 19 days I was going at least once an hour so it sounds like your 3 times a day is not bad. I was was told surgery was my option but I had a turn around. I am currently taking 40 mg of prednisone and I have had 2 remicade treatments. Last week my SED rate was 60! my doc was shocked and happy. I have hdd no bleeding for two months since I left the hospital and have started eating normal foods no spicy things but eggs, chicken, bread, yogurt. Remicade is a big choice but some people get results, research it. Good luck I hope your next lab shows a decrease.
Prednisone 40mg a day
Clotrimazole Troche (keeps the thrush away from the Pred.)
just started Remicaid hope it works

Just back from 19 days in hospital with 2 blood transfusions for Anemia


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/15/2008 12:03 PM (GMT -6)   
None of my docs have done incessant inflammatory marker testing. They treat my symptoms and physical findings, not my labs. Remember your sed rate says absolutely nothing about UC. It merely signifies that you have inflammation in your body. If you're flaring at all, that contributes to it. If you cut your finger and your body is fighting off a tiny infection, that contributes. If you were exposed to a cold yesterday and your immune system is conquering that virus it contributes.

The last time I fired a doctor it was for treating my lab results instead of me.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 10/15/2008 12:23 PM (GMT -6)   
Very interesting Judy. Thanks for the insight! It made me feel better!!

The nurse has called me back 3 times and keeps arguing with me and saying that since my labs are so bad it means I'm about to get really sick. When I remind her that my labs are always bad she keeps saying "not this bad" UGH! I'm ready to scream. I hate fighting with her but I'm also not going to start a drug like Humira when I feel fine. I'm frustrated because I don't know if I'm in denial. Obviously if I felt healthy and was told I had cancer, I would treat the cancer so why am I refusing to treat my so called horrible colon because of my labs????????
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/15/2008 12:30 PM (GMT -6)   
I would get a second opinion and bring copies of your medical records. I would also look into it a bit yourself and talk to your primary about any secondary reasons to show high inflammation, it could be something else that is causing it.

I dont think I have ever had a sed rate test? I go for my quarterly Aza bloodwork tomorrow, I will ask what's on there.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 5mg/2.5mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

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