Lialda and side effects

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 10/15/2008 5:14 PM (GMT -6)   
Hello -
 
I have a question about Lialda...I have been taking it for nine months or so.  It did not work to stop a bad flare so I was put on pred too.  I took my last dose of pred on Sept 30th but was told by my doctor to stay on 2 Lialda daily.  I usually have at least one BM a day with pretty soft stool.  Since the pred I have not had bleeding or serious urgency or cramping.  On occasion I still have some very mild cramping and mucus but it is not every day...
 
I am wondering if the soft stools and occasional mucus could be caused by the Lialda????  I am tempted to stop taking it for a few days to see if it helps but also do not want to have another flare since I am just getting over a flare that lasted almost a year....any thoughts or suggestions???  Thanks!

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 10/15/2008 6:14 PM (GMT -6)   
no i don't think so. that would likely be just from the colitis. i would not stop taking it, especially this time of the year for us seasonal flarer's.
UC since age 22, now 27.  Several huge flares since then.
 
Currently tapering prednisone(35 mg from 80 mg).  Also just starting 6mp again and lialda.   I definately am not liking these drugs.  Maybe surgery one day?


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 10/16/2008 9:36 AM (GMT -6)   
Thanks - you are probably right about seasonal flares.  The one I am just getting over started last October and the one before that started in October-Novemeber 2006...it does seem to hit around this time of year.
 
Do you think that if I am still having some mild symptoms I should ask to go back on pred or could this just be as good as it will get for me?  I know for some remission is not completely symptom free.  I am so much better than I was.  Just the fact that I am not bleeding anymore is a HUGE improvement for me.
 
Thanks again!

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 10/16/2008 2:51 PM (GMT -6)   
its hard to say. for me, once i got mild symptoms, it usually always progressed into a nasty nasty flare. but thats just me. remission is symtpom free! ive only had it for about 2 years in the past 5. its a very nice thing indeed :) what are your symptoms now? tired, sick feeling, cramping, multiple movements a day?

I'd definatly talk to your doctor about it
UC since age 22, now 27.  Several huge flares since then.
 
Currently tapering prednisone(35 mg from 80 mg).  Also just starting 6mp again and lialda.   I definately am not liking these drugs.  Maybe surgery one day?


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 10/16/2008 7:05 PM (GMT -6)   
Hi Vin, I also was only diagnosed about two years ago so I am still new to this.  I just stopped pred so I can't imagine that I am going into another flare already but maybe I am.  The only symptom I am having is soft stool and slight cramping sometimes - not every day.  I am only having one to two BM's a day...some days none at all...  When I was for sure in a bad flare I was having anywhere from 5-10+ BM's a day with LOTS of bleeding, mucus, D, cramping, urgency, and all that fun stuff - I was also often tired and drained feeling...I am not experiencing any of that right now so I am not sure what the deal is...just concerned right now about the soft stools and sometimes undigested food in the stools...I HOPE that I am not headed to another flare! 

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 10/16/2008 7:54 PM (GMT -6)   
Time will tell. Just keep on your lialda and keep your doctor informed if you start getting worse. Sometimes you will only go into mild or very mild flares like you are now and it will not progress past that point and then it will settle down a bit. Certain things like colds, stress, or even foods can make your symptoms worse. Try avoiding high fiber foods right now, alcohol, uncooked veggies like lettuce, carrots, and also things that give you gas like white castle!! Be proactive and take some probiotics as well.

When I was in remission, there were times when i'd get some cramps after eating something bad or drinking too much and i'd get some slight urgency, but it would pass within a few days.

I've been flares where i was going to the bathroom with pain and urgency 7 times a day, but felt perfectly normal, and i've had flares where i was only going three times a day, but had severe pain and was so tired i couldn't move! Colitis sure is a PITA literally. It seems to have different courses of onsets and different flare characteristics. I guess it depends on exactly where your disease is located. Mine happens to be most of my colon. So if i just am flaring in my upper colon, i may not get the urgency, etc that is associated with severe rectal inflammation.

Keep researching about colitis, and even keep a journal of your symptoms to see if you can find patterns of when your hurting, cramping, what you ate that day, what your poop looked like, etc. When you go back and look at it, you can usually see some patterns and hopefully you will understand a bit more how the disease has manifested itself with you specifically. You can start to identify foods/drinks that may cause cramping, if you cramp worse on a day where you were stressed out, so on and so forth.

I know, i say the same thing even when i am in remission. " i hope I am not heading for another flare!!!"

Anymore questions let me know.
UC since age 22, now 27.  Several huge flares since then.
 
Currently tapering prednisone(35 mg from 80 mg).  Also just starting 6mp again and lialda.   I definately am not liking these drugs.  Maybe surgery one day?


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 10/16/2008 9:44 PM (GMT -6)   
Great insights - thank you so much.  This last flare I had was so terrible I know I am super concerned now about every little thing.  I like the journal idea.  Thanks again Vin!

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/17/2008 1:39 AM (GMT -6)   
I was dxed back in July '06, and immediately put on Asacol, I actually felt human for close to a year. Then I began to get rashes, and extreme fatigue. So we stopped the Asacol in July, just in time for the fall flare season. Working on getting back to somewhat regularity. Pred down to 5mg, colocort every other night, continue taking VSL#3 and Lialda religiously. Recently added Omega 3s and glucosamine at the recommendation of the hippy at my health food store. I honestly think I might be turning the corner, and getting things under semi-control.

Lialda helps to maintain remission, but if your body wants to flare, it is going to regardless of anything else meds wise you are taking. The main side-effects I get are a slight rash on my shins and neck. I'm supposed tp see an allergist, but I'll have to wait until the checkbook balances out before I consider spending more money on doctor visits.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC, first 70 cm of intestine back in May '06
MEds & supplements:  Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema every other night, Prednisone (down to 5mg, YAY!), recently added Omega 3, 6, & 9 from flaxseed oil 2 pills 3x.  Also trying out glucosamine, 1 pill 2x.  Bowels have been fairly happy lately. 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 6:56 PM (GMT -6)
There are a total of 3,005,249 posts in 329,204 threads.
View Active Threads


Who's Online
This forum has 161765 registered members. Please welcome our newest member, lori6666.
321 Guest(s), 8 Registered Member(s) are currently online.  Details
OzLyme, Artist Mark, Emmons, sebreg, 18yearsandcounting, Relentlesswill, rpgdancer, iPoop