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Regular Member

Date Joined Dec 2007
Total Posts : 34
   Posted 10/15/2008 5:31 PM (GMT -6)   

Really, I've been on it for a few months not, and I'm surprised to say that its been going really well. I feel kind of tired and weird the day of the infusion, but other than that, it seems to be working.

Also: I was dumpster diving today and found a bike! Score!

skull skull skull

Diagnosed UC April 2003
Prednisone 20mg

Regular Member

Date Joined Dec 2007
Total Posts : 354
   Posted 10/15/2008 8:43 PM (GMT -6)   
I was amazed at how fast it worked for me also but the last few days I have been having problems again. I have been of pred for 4 days and it has been a few weeks since my last infustion and I am so mad. I thought the remicade fixed me and I wouldn't have to deal with this again - or at least for a while. It got me off pred but out of nowhere I went from perfect to back where I started in 4 days!!
Jessica 27/F
Lialda 2.4GM
Citalopram 40 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle, dicyclomine)

New Member

Date Joined Jun 2007
Total Posts : 11
   Posted 10/16/2008 10:42 AM (GMT -6)   
Remicade has worked amazingly quick for me so far. Within a few days of my first infusion I've had no more mucus, very little blood, only a small amount of cramping, no D, and way less urgency!

I actually went grocery shopping the other day without one single emergency trip to the public restroom.....

..... I could get used to THAT! :)
female dxed w/UC (30cm) in 2006
Remicade - 1st infusion 10/08, Colazal - 12 daily, Imuran - 100 mg daily, Mesalamine enemas - 8 g (2 daily A.N.), Dicyclamine - 20 mg (up to 4 daily A.N)
Prednisone - last dose in 7/08
OTC Probiotic Acidophylus & Super B Complex vitamins

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 10/16/2008 10:56 AM (GMT -6)   
When it works, it's amazing. I've been in remission since April, 2006 from Remicade after no combination of meds - even including Prednisone - could get me there. I wish it worked for everyone, unfortunately that isn't the case.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Regular Member

Date Joined Jul 2008
Total Posts : 100
   Posted 10/16/2008 12:29 PM (GMT -6)   
I just had my third infusion yesterday. I don't want to jinx myself(knock on wood) But I slept through the first night in 4 months without having to get up and go to the bathroom. I have had not had any urgency since yesterday afternoon this is major for me. I was going too many times to count just the day before. I was a little tired yesterday because the gave me a benadril before the infusion but I am impressed! I was hospitalized for 19 days and was at the point of surgery. in Sept. so this is a huge milestone for me.
Prednisone 40mg a day
Clotrimazole Troche (keeps the thrush away from the Pred.)
just started Remicaid hope it works

Just back from 19 days in hospital with 2 blood transfusions for Anemia

Regular Member

Date Joined Sep 2008
Total Posts : 125
   Posted 10/16/2008 1:16 PM (GMT -6)   
I've had two infusions of Remicade. Has worked wonders for me so far..... no symptoms returned yet. Knock on wood....!

Age 25
30 mg. prednisone (tapering)
2 Lialda
Oscal 500

Regular Member

Date Joined Dec 2007
Total Posts : 34
   Posted 10/16/2008 4:36 PM (GMT -6)   
Wow, what an overwhelmingly positive response.

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 10/16/2008 5:16 PM (GMT -6)   
Yes, it's been awesome for me too! I've been on it for a long time -- no problems or reactions. Socalsd, you might want to switch from Benedryl to Claritin or Zyrtec; I did that because the Benedryl made me so sleepy. Of course, when my infusions were longer I didn't mind the nice nap! Now they are about 2 hours total, so I don't want to be sleepy while driving home.


Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum

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