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men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 10/16/2008 6:38 AM (GMT -6)   
I had my colonoscopy 2 weeks ago which showed moderate UC to 30cm - I can't remember what it was last scope 4 yrs ago (proctitis?) but I think it's spread.
 
I was put on predfoam and given a 2 week supply but no instructions how long to stay on it or if I should stop the pentata supposotories. So I took it for 2 weeks symptoms getting better and now getting a bit worse (signs of blood now) I was expecting a follow up appointment but with no sign of one it looks like it is the end of november so 2 months to tell me my results and prescribe the correct medication seems a bit pi$$ poor. (this is Coventry hospital) my last hospital (warwick) send me an appointment while I was on holiday for 3 weeks for while I was on holiday and then discharged me because i didn't turn up. Coventry didn't have my medical records but said they would try to get them and I have no idea where they are.
 
The thing that's a bit of a shame is none of my doctors seem to want to help me get better. What's the point of waiting 2 months after a colonoscopy to go through the results or review my medication properly? Why won't they prescribe VSL3 since it can only help and has few side effects?
 
I spoke to the nurse today to explain things and she said 4-6 weeks for a follow up was normal and I'm waiting for her to ring back but even if she recommends continuing predfoam it will take 3-5 days to get hold of the stuff via my GP then pharmacy.
 
Anyway I've been trying to pay more attention to keeping a food diary and it looks like I got worse after eating baked potato last week which sort of confirms what I suspected. Anyway i've also paid to have a York food allergy test but am waiting until i have eaten enough 'normal' food before submitting it to try and get as good a result as possible.
 
My sister was also recently diagnosed with UC - she is in NZ now and has been for 1.5 years I think stress and or the move to NZ may have contributed to it - I hope the NZ healthcare is better than the UK! How rare is it for brother and sisters to both be diagnosed ?
 
ho hum
Ian

Currently in no mans land between flare and remission


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/16/2008 10:00 AM (GMT -6)   
Ian, I wouldn't think it's rare for brother and sister to both have it. I have seen it here on the board. What is stranger to me is the husband and wives that have it. I know of one couple personally, and seen a few around on the boards.

Potatoes don't work for me either. Or sugar :( :(

Sometimes it is hard to get in to see the doctor. Please call and keep in contact on the phone. My doctor is pretty good about returning phone calls, and his nurse always does. Any changes to your body or medication should be talked about with them.

Sometimes you have to change doctors. I had pretty classic symptoms for 14 months, and my old GI chalked it up to hemmies and panic!! I ended up changing doctors after my diagnosis, and I have one that really seems supportive now.


I know this can be really frustrating. We are here to support you!

men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 10/20/2008 9:17 AM (GMT -6)   
Yes they agreed to see me this friday but i'm still waiting for an appointment I should ring them tomorrow if nothing has turned up.
Ian

Currently in no mans land between flare and remission


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/20/2008 10:39 AM (GMT -6)   
I hope you feel better soon.
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