I had my colonoscopy 2 weeks ago which showed moderate UC to 30cm - I can't remember what it was last scope 4 yrs ago (proctitis?) but I think it's spread.
I was put on predfoam and given a 2 week supply but no instructions how long to stay on it or if I should stop the pentata supposotories. So I took it for 2 weeks symptoms getting better and now getting a bit worse (signs of blood now) I was expecting a follow up appointment but with no sign of one it looks like it is the end of november so 2 months to tell me my results and prescribe the correct medication seems a bit pi$$ poor. (this is Coventry hospital) my last hospital (warwick) send me an appointment while I was on holiday for 3 weeks for while I was on holiday and then discharged me because i didn't turn up. Coventry didn't have my medical records but said they would try to get them and I have no idea where they are.
The thing that's a bit of a shame is none of my doctors seem to want to help me get better. What's the point of waiting 2 months after a colonoscopy to go through the results or review my medication properly? Why won't they prescribe VSL3 since it can only help and has few side effects?
I spoke to the nurse today to explain things and she said 4-6 weeks for a follow up was normal and I'm waiting for her to ring back but even if she recommends continuing predfoam it will take 3-5 days to get hold of the stuff via my GP then pharmacy.
Anyway I've been trying to pay more attention to keeping a food diary and it looks like I got worse after eating baked potato last week which sort of confirms what I suspected. Anyway i've also paid to have a York food allergy test but am waiting until i have eaten enough 'normal' food before submitting it to try and get as good a result as possible.
My sister was also recently diagnosed with UC - she is in NZ now and has been for 1.5 years I think stress and or the move to NZ may have contributed to it - I hope the NZ healthcare is better than the UK! How rare is it for brother and sisters to both be diagnosed ?
Currently in no mans land between flare and remission