Had my C-scope on Monday and it seems my colon is pretty well healed, although my rectum is still pretty bad (GI said he'd call it a "7" where 10 is extremely ulcerated) and a bit above that is a "1." I started back with Rowasa Tuesday night. Kept it in all night, felt a bit better the next day. The fullness down there I had been feeling abated somewhat, although I still felt a bit nauseated in the morning for a couple of hours, nothing too bad though. Last night for some reason I just couldn't hold the Rowasa; it kept "bubbling" out even though I tried blocking things up with paper towel. At least it contained the mess somewhat. This morning I felt awful -- I hadn't slept well, I felt nauseated for most of the morning, went to the bathroom numerous times ...
My GI gave me two prescriptions, one for the Rowasa and one for Canasa. Said the Rowasa was much more effective. I am still using some Rowasa I had from awhile ago that is still good so I haven't filled either. If I start with Rowasa and can't keep it in, can I then use the Canasa on the same night? Or am I just SOL? I have a follow up with my GI in a week, but I was wondering what you all know about this.
Mainly, if I have apparently had success with Remicade and am mostly healed, why am I still feeling like crap most mornings and why am I still feeling really run down? I had a blood test just a few months ago and iron and vitamin stores were within normal ranges. I will likely get more bloodwork done next week as my GI is good about that. I was looking at mesalamine information again and saw that liver and kidney function should be tested perdiodically so I intend to ask if that's been done and if not have it done.
I used to work out daily at the gym but haven't in more than a year, maybe even two. It's been six months since I weaned off the Prednisone but the few times I went to the gym over the last month I haven't been able to complete a work out. The most I have been doing is long-ish walks with my dogs most afternoons. Today I came home and crashed for a couple of hours though.
It's very frustrating. I had gotten myself emotionally ready to pursue the surgical route, and then my colonscopy cameback rather hopeful, but I am still not feeling well, so I just don't get it. I had always been an active person and very healthy. I miss feeling well! It's kind of depressing. My husband is EXTREMELY supportive, but I feel like a slacker around the house. I am pleased that I have managed to keep up with my business and it's thriving despite how crappy I feel most days, I just tough it out and get out and work.
This forum is awesome, thanks in advance for your feedback.
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro