I feel for you and know what you are going through. I am trying to get pregnant right now and had my 1st MAJOR flare up after a miscarriage in January. Since then I was hospitalized and been in and out of flares. I also just had another miscarriage. I am not giving up just yet as we are doing a FET (frozen embryo cycle w/ IVF) next month. But I am steriod dependent and my GI says that I need to go on the higher class of meds to stop the bleeding (6-MP or remicade). As you can see from my siggy...I am doing rectal and oral meds.
I think it wouldn't hurt to go back on the pill. I would also get on a probiotic. I did VSL#3 and now I am taking Primal Defense Ultra. I also would take some fish oil. You should def. at least be trying some rectal meds.
I am just sick and tired of BLEEDING!!!!!!!!!! I am so happy to hear though your symptoms went away when you were pregnant. I am praying for that. And for a baby :)
ulcerative proctitis - march 05 diagnosed
current status - trying to see what works - still bleeding!!!!!
hospitalized - 3/08 for 6 days of IV steriods
colazal - 9 pills asacol - 12 pills, canasa 2x per day, nightly hydrocortisone enemas
VSL#3 Primal Defense Ultra Probiotic (2x per day)
fish oil, flaxseed oil, calcium w/ vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex