joint soreness

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anglfrmhvn69
Regular Member


Date Joined Dec 2006
Total Posts : 337
   Posted 10/17/2008 9:44 AM (GMT -6)   
i've also noticed since i have been flaring which has been over a month,not going to the bathroom but once or twice but the cramping is off and on all day. i have noticed that my joints in my arms in the elbow are is so sore. i've tried working it out it doesnt help at all it is so sore i want to cry. my legs has been getting stiff and sore as well not to bad yet. and my right foot has been so sore and swelling above the heel. my other one is starting to do the same. could this been due to the colitis? has this happened to anyone else? oh went to the e.r they said tendonitis in the foot but i dont think so my whole body feels this way.

pamela

 i was diagnosed with uc on april.16,2003. had my sec. colonoscopy on aug.22,2008 came back normal.

quit smoking almost a year ago,been having little flares since then.

i also take nexium 40mg once a day for acid reflux.

take one multivitamin a day

                                                                       

 


Discouraged
Regular Member


Date Joined Mar 2007
Total Posts : 54
   Posted 10/17/2008 9:52 AM (GMT -6)   
My joints and body hurt often.  I don't know if it's the UC or the drugs.  What do you take for your UC?
Diagnosed with UC (proctosigmoiditis) April 2006
Asacol 1200 mg (3 pills) 3 times a day
Canasa suppositories 1000mg at bedtime
Currently in a flare and taking Prednisone 30 mg per day to taper to zero in about 9 weeks *just had dosage increased to 40 mg because I am not responding* Back down to 30 mg and doing okay..so far
Aciphex
Colazal
Rowasa
Bentyl when needed
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/17/2008 11:03 AM (GMT -6)   
Pamela,

Google Nephrotic Syndrome + edema. I got this from taking sulfasalazine for my UC.

I have joint pain since lowering my pred dose, I have been @ 5mg for almost 2 mos now and it is only slightly better. My knees and heels really hurt.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 5mg/2.5mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 10/17/2008 12:33 PM (GMT -6)   
I have joint pain in my knees. Some days when i bend down, I can't get back up without a struggle. I have been taking glucosime and controitin. It has helped a little, but the pain is still there
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/17/2008 12:36 PM (GMT -6)   
I am in my first flare ever - was diagnosised 8/25/08.  I am past the most painful part and now have 4 - 5 formed movements a day.  However, I am 51 (a young 51 mind you!) I do have arthritis, and when I started flaring last May I noticed that my joints ached and when I wake up in the morning my hands are curled up in a C shape.  I run warm water over them and open them up.  So I think alot of this has to do w/ the UC.
 
Hope you feel better soon!
 
Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


KatieBwithUC
Regular Member


Date Joined Sep 2008
Total Posts : 125
   Posted 10/17/2008 3:59 PM (GMT -6)   
A lot of the time people with UC are potassium deficient. Potassium deficiency has certainly cause joint soreness. Keep that in mind. That could be part of your problem. If it is, and if you can handle it, try to eat some bananas and drink orange juice.



Katie
Age 25
Prednisone 30 MG (tapering)
Remicade
Multivitamin
Oscal
2 Lialda

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/17/2008 4:06 PM (GMT -6)   
The prednisone can cause the potassium deficiency, so since you're planning to take it again, you will want to eat lots of bananas. Otherwise, I get terrible muscle cramps in my feet and even in my hands.

I had an arthritis effect caused the UC once, in my rib cage, very uncomfortable. Just a short time on Voltarin and it was gone. So it can be just temporary and drugs will help.


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

Post Edited (Peety) : 10/18/2008 5:19:45 PM (GMT-6)


Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 10/18/2008 8:34 AM (GMT -6)   
Im with Peety I get horrible cramps on on my feet and toes and never when I am off it.
Prednisone 40mg a day
Clotrimazole Troche (keeps the thrush away from the Pred.)
just started Remicaid hope it works

Just back from 19 days in hospital with 2 blood transfusions for Anemia


Curlycomfy
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/18/2008 9:22 AM (GMT -6)   

This is just fabulous !! My right heel has had this wierd soreness off and on for the last couple of months...I couldn't make sence of it.  But you've helped me understand it.  Thank you !  tongue   tongue  I forget that the loss of nutrients cause by the UC will show up in many ways. 

I've been diagnosed with UC since Oct 2002 but have never gotten a handle on it.  I'm a very private person and try to fit in with everybody; only my family knew.  Well, I've started to share my diagnosis with friends and at work.  I found that people were filling in the silence with their own ideas of what was going on; some of them really whacky ! confused    By being more honest with everyone else, I think I'm coming to grips with this thing.


serothschild
Regular Member


Date Joined Jul 2008
Total Posts : 24
   Posted 10/18/2008 7:01 PM (GMT -6)   

Whenever I was in a bad flare, my joints would also get very stiff and sore, so much so that it was difficult to get up off the floor after playing with my kids and was tedious to climb steps.  Each flare carried with it different joint pains...sometimes wrists, sometimes knees,etc.  Talk to your doctor, but what mine said was essentially that people with uc can develop arthritis during flares.  Both diseases are related to the body's immune response which is why uc and arthritis often go hand in hand.  I never had arthritis before having uc though see why they are correlated. While on prednisone, my joints always felt terrific and after tapering off, pains often would return.  See if there is anything your doctor would recommend for the pain as you can't take ibuprofen.  I'm about to ask my own doctor the same thing because my right leg and hips are soar all the time.  Good luck.

 

 


Sandra


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/19/2008 2:33 PM (GMT -6)   
I hear your pain is all over, but it might help to try ice on sore joints. That works best for me. I use ice after yardwork and golf, and even after walking around on hard floors. It really does help! (Don't use heat!!)
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


anglfrmhvn69
Regular Member


Date Joined Dec 2006
Total Posts : 337
   Posted 10/20/2008 7:34 AM (GMT -6)   
tks for the reply's, peety you said dont use heat that's all i have been doing i've been taking alot of hot baths to try to ease it up, i know that is a big no no! it did make me worse. i started taking the pred. well tonight will make three nights on pred. it has helped alot with the joint stiffness and soreness i'm fine all day but when night comes the fever comes back and the soreness starts. my doctor has me on 60mg for three days and then 40mg for three days and then 20 mg for three days. and to be honest after tonight i have to start tapering off and it isnt even touching the cramping and bleeding. i'm scared he is tapering me to fast.

pamela

 i was diagnosed with uc on april.16,2003. had my sec. colonoscopy on aug.22,2008 came back normal.

quit smoking almost a year ago,been having little flares since then.

i also take nexium 40mg once a day for acid reflux.

take one multivitamin a day

                                                                       

 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/20/2008 1:27 PM (GMT -6)   
Maybe ask if you can stay at 40 or 30 until you start to notice improvement?

I used heat the first time I experienced back spasms, and made it worse and worse until someone said, ICE! Now I know better.
I hope it works for you ~
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

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