New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Oct 2008
Total Posts : 1
   Posted 10/17/2008 1:22 PM (GMT -6)   
My son is only 4 and was just diagnosed with colitis we just got home from the hospital a couple of days ago.
He's currently taking four medications as well as getting weaned off the steroids. But he'll be on the auto immune suppresent the rest of his life according to the doc.
He's never been in daycare much and when he did attend he was sick all the time that's originally how all this started.
So I'm sitting around trying to figure how I'm even going to let him go to school and they tell me he's not quite bad enough to be homebound, but am afraid that to much school will kick off yet another flare up and then they may tell me he has to stay home. Feel like I'm in a rock and a hard place.
I saw something on the internet called aloe elite that claims it's all natural and is made especially for colitis, that will improve his immune system, safe for kids and will help keep his body in a natural rythem.
When I called his doc she says that it's up to me but they want to suppress his immune system and that aloe may kick up another flare up.
My question is are they just trying to keep me away from a natural way to go here because they want to keep all the doc appts. going with the awful meds. for their own purposes because their the medical industry and thats how they make their money. Or are they being for real.
Can anyone give some advice on this subject? Not crazy about the medical industry and don't always have faith in them, although they did get him out of the hosp. quicker then they said they could. Course I think God had a hand in that even more than them cause they said that he'd be in there at least a month.
So in my head I give the credit to the man upstairs for his quick release. There were many times I hit the hosp. floor in prayer for my son and I can't help but believe he answered, they even said it was one of the quickest recoveries after such a long time with the diarrhea( that they took forever figuring out by the way.)
Any theories out there on this Aloe Elite?
Thanks, D

New Member

Date Joined Oct 2008
Total Posts : 11
   Posted 10/17/2008 4:50 PM (GMT -6)   
That's terrible that your son has this disease at such a young age.  I have also wondered about the Aloe Elite for myself.  It is quite expensive, however, I would be willing to spend any amount of money for it if it would help.  I know that you would do anything to help your child.  I have not posted on this forum before, but there is a lot of great info here.   I am currently on Prednisone trying to get this under control and I can't imagine having to put a small child on these drugs.  I hope he gets better soon.  I know how hard this must be on you also. 

Regular Member

Date Joined Aug 2008
Total Posts : 95
   Posted 10/18/2008 8:18 AM (GMT -6)   
Be wary of these natural cures, some people swear by them. Others like myself have tried and spent money on these products only to be sorely disappointed.  -> My blog
Diagnosed 7/27/08
Prednisone 20mg/day 40mg/day and tapering again....

New Member

Date Joined Oct 2008
Total Posts : 11
   Posted 10/18/2008 11:27 AM (GMT -6)   
I 100% agree, if it were that simple, we would all be cured.  That stuff costs $159.00 a bottle and I have read it can cause stomach upset, which I already have enough of right now.  I would also be careful with what I give a 4 year old.  I know you are trying to find something to help your child and this is a horrible disease for one so young.  Keep posting, I would like to know how your child is doing and best of luck finding a management solution.  I still haven't found one for myself, but keep working at it. 

Veteran Member

Date Joined Sep 2007
Total Posts : 955
   Posted 10/20/2008 2:41 AM (GMT -6)   
i tried it and spent a fortune and it made me worse.
steph - 32 - female - gold coast australia - UC since 2000
severe UC in descending colon and sigmoid colon ONLY
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
prednisolone 25mg x1 a day (ick ick and did i say ick?)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
tumeric capsules - if i remember to take the bloody things.
i still eat what i want, when i want, if i feel like eating at all :(

Regular Member

Date Joined Jul 2008
Total Posts : 124
   Posted 10/20/2008 6:36 AM (GMT -6)   
Buy (or read from a library) a book called the specific carbohydrate diet by elaine Gotchall - it helps a lot of people and was done originally for a young child perhaps this will help your son.

There are many natural products that have been scientifically tested for help with ulcerative colitis though there is certainly not one cure for all some people certainly find some of the following things helpful -

(spinach and sunflower seeds- search on here for threads relating to this)
food allergy test
many other stuff.

I would suggest you also buy a general book on UC which should list the current state of understanding and research and explain what current prescribed drugs do together with side effects.

If you want to see scientific tests on all aspects of UC goto pubmed on the web (google it) and type in ulcerative colitis xxxxx in e.g. xxxx=turmeric.
Start reading there's a lot to understand but you need to understand anything you give your son is OK for young children.

Currently in no mans land between flare and remission

Regular Member

Date Joined Oct 2008
Total Posts : 80
   Posted 10/20/2008 1:12 PM (GMT -6)   

I am so sorry for your son's diagnosis. I was diagnosed when I was 8 and have spent a lifetime in the medical institution with every doctor imaginable telling me of a new drug for UC. ( I am now 35). Looking back, I wish my parents had taken more of an initiative to understand my condition and help me homeopathically. It wasn't until I got older that I started looking into natural alternatives. I have recently started taking probiotics, omega-3 fish oil, oil of oregano, as well as folic acid and I have noticed a difference. I also continue to stay on my 6-mp which has been the only class of drug that has helped even slightly.  I follow the Specific Carbohydrate Diet and have scheduled my first acupuncture appointment for this coming Thr. If I notice a difference I will let you know, although I think the thought of needles to a 4 year old might be a bit scarry. Look into alternatives and keeping talking to people who have used them.

All the best to you and your son.


New Member

Date Joined Oct 2008
Total Posts : 11
   Posted 10/20/2008 3:06 PM (GMT -6)   
To those of you who use turmeric, does it help you?  I was wondering if it causes any stomach discomfort.  I am currently on prednisone 40mg a day and canasa suppositories every night.  Just recently had a really big flare with lots of bleeding, hence the steroids.  Has been a week, and still having intermittent problems.  Will see the doctor again tomorrow, but I am sick of the medications and would really like to try some alternatives.  Already on Omega 3 and recently started probiotics as well as other daily vitamins.   
Thanks for all the helpful ideas and support you give.  It's nice to be able to converse with other people who understand what you are going through. 

Veteran Member

Date Joined Oct 2007
Total Posts : 1194
   Posted 10/20/2008 4:15 PM (GMT -6)   
I found it a waste of money and gave me mucous for the first time in my life - stopped taking it and the mucous went with it. But I gues I didn't give it long enough and the mucous could well be a coincidence. Each to their own.

Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis - Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day, Digestive Advantage

Regular Member

Date Joined Jul 2008
Total Posts : 124
   Posted 10/21/2008 9:32 AM (GMT -6)   
I started taking Turmeric it after a year of contunuous bleeding and diaohrrea and the next day the blood was gone and i had normal stools - unbelievable! Sadly it doesn't seem to have the same effect now I wonder if my immune system or bacteria have somehow adapted to it? Never had a bad reaction with it - always took it in tablet form. (lamberts 10,000mg 3x/day is what gave me the results the first time)

As many things with this disease it's not one size fits all...

Currently in no mans land between flare and remission

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 10/21/2008 1:33 PM (GMT -6)   
I would not bother with it after read so many bad things about it here.
Go with the probiotics and hopefully that will help.

What is the suppressant? Was his diagnosis Ulcerative Colitis?? I hope you know it is not contagious.
Poor little guy, that must have been awful for him and for you.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 5:26 AM (GMT -6)
There are a total of 3,005,040 posts in 329,219 threads.
View Active Threads

Who's Online
This forum has 161762 registered members. Please welcome our newest member, fdgdfhdff88.
238 Guest(s), 4 Registered Member(s) are currently online.  Details
alltheway, Darla, Saipan Paradise, colja