Lialda experience....

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/18/2008 1:15 PM (GMT -6)   
I have searched through many of the posts about Lialda and side effects.  Most people who can't take mesalamines seem to have worsening UC symptoms as side effects.  This is what I read in the brochure for Lialda...
 

"LIALDA is an aminosalicylate, and symptoms of salicylate toxicity may include tinnitus, vertigo, headache, confusion, drowsiness, sweating, hyperventilation, vomiting, and diarrhea."

These are reactions I get to aspirin and NSAIDS after a period of time - not right away - maybe week or two.

When taking two a day I had all the above getting worse daily except hyperventilation, vomiting or diarrhea.  I also did have nausea with the sweating in the night.  Now taking one Lialda a day symptoms are less - mostly sweating, nausea and ear ringing!  Anyone else relate.  I told my doctor I would give this a fair shot - time to help with the UC. I also use one Canasa 1000 at night.  UC symptoms seem to be a tiny bit better.Hope to continue this doseage, etc. until my scope on the 28th.

 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/18/2008 1:48 PM (GMT -6)   
I didn't have any problems with Lialda, but I didn't have any problems Asacol (other than the fact it wasn't helping). If you're having trouble with mesalamines, I'm surprised your doctor hasn't given you Colazal or Sulfasalazine, which are 5 ASA drugs but not mesalamines if I understand correctly.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


KatieBwithUC
Regular Member


Date Joined Sep 2008
Total Posts : 121
   Posted 10/18/2008 2:31 PM (GMT -6)   
I haven't had any problems with the Lialda either. I don't feel like it does very much to help me, however....


Katie
Age 25
2 Lialda
20 Mg Prednisone (tapering)
Multivitamin
Remicade
Oscal

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/18/2008 3:53 PM (GMT -6)   
I had same reaction to Colazal which I used with Rowasa for a couple weeks and side effects same.  Colazal is a mesalamine and sulfasalazine is
 is a sulfa drug, a derivative of Mesalazine which I am not sure - but sounds the same. Never have tried any sulfa drugs.  My NP told me the doctor thinks I should just deal with the side effects (since they don't seem severe) and let the medication work.  He should feel the way I do - just once!
 
Well, we will see when I have the scope.  This has been going on since June and you guys here know how that can be!  I don't have severe as many here but should be in remission by now so I can have knee surgery.
 
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/19/2008 6:59 AM (GMT -6)   
I've been on Lialda for about 2 months now. I'm only taking 2 in the morning, but at one point my doc had me increase to 2 in the morn, 2 in the evening. I started to get a rash on my legs, neck, and stomach, so we cut back to just 2 in the morn, and the rash went away. No other goofy side effects from it since.

Previously, I used Asacol for two years. I was fine at first, but as time wore on, I developped a rash on my legs, and I was horribly exhausted and feeling run-down all the time. It kept my UC in control, but that doesn't do much good if you're asleep all the time. As soon as I stopped the Asacol, I had my first full-blown flare.

I'm hoping that the Lialda won't do the same thing, mainly because I'm taking a lower total dosage of the mesalamine (Asacol, 3 tabs, 3x day = 3600mg, Lialda 2 tabs 1x day = 2400mg). I'm still using a minimal dose of prednisone, plus hydrocortisone enemas every other night, but my flare seems to be going away. I'm going to stop the prednisone this week, and hope that things keep going smoothly.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC back in May '06
Meds & supplements:  Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema every other night, Prednisone (down to 5mg, YAY!), flaxseed oil, glucosamine.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/19/2008 10:30 AM (GMT -6)   

Good luck to you Brandon!

I am sure the next step for me would be steroids - who knows how I might react.  If my scope next week shows improvement I will definitely keep trying small does of Lialda or other 5ASA before going to prednisone.  I have seen my husband's reaction to it and hate the idea of what it would do for me.  ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/19/2008 3:50 PM (GMT -6)   
I've been tolerating the Lialda very well, and I really like that it's just once a day. The Asacol never really did anything for me, and taking the Colazal three times a day made me always have to think about being ill. And remembering to take the afternoon pills required me setting an alarm, making sure I had something to take them with. With the Lialda I've been able to maintain 100% compliance. Haven't had any side-effects. Also no side-effects with the Remicade infusions. Don't need any Benedryl with them, and feel fine the rest of the day.

Only meds I didn't tolerate well were the Prednisone, of course, and the Imuran.
The Imuran nearly did me in.

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; Rowesa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/19/2008 4:38 PM (GMT -6)   
Kopsda -

I think I remember you saying how your husband became after using prednisone, and that was pretty bad. Not everyone has the same reactions. It is true some people really become angry/moody, but not everyone is that way. Most people have to take it with food, but I do better with it on an empty stomach. Actually supresses my appetite for a few hours before I get the munchies.

I agree with you, wait until after the scope, but stay open to the possibility of using the pred. After my last scope, the doc recommended pred, and I suffered another couple of weeks before giving in. You can also request the rectal version if it is an option.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements:  Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema every other night, Prednisone (down to 5mg), flaxseed oil, L-glutamine.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/19/2008 6:00 PM (GMT -6)   
I tried Proctofoam - did nothing much!
No, I would never refused to TRY something like prednisone if my doctor thought that it was the next treatment. We will see what he says after the scope. Sometimes I react backwards to medication - like sleeping pills keep me awake, etc.
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/19/2008 7:56 PM (GMT -6)   
You could always try steroid rectal meds, like suppositories or liquid enemas if the proctofoam didn't work. I've never had any side effects from steroid rectal meds.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/19/2008 8:00 PM (GMT -6)   

Thanks maybe my doctor will have me try another rectal medication.  I have used Proctofoam, Rowasa and now Canasa suppositories.  Just have to wait and see what he thinks after scope.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/20/2008 4:52 PM (GMT -6)   
I've been using hydrocortisone enemas at night, which is helping me out a great deal. I'm almost off the pred, down to 5mg/day, no blood/mucuos, or d. You might want to give colocort a try.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements:  Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema every other night, Prednisone (down to 5mg), flaxseed oil, L-glutamine.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/20/2008 5:10 PM (GMT -6)   

Brandon - glad your medication is working for you.  If doctor prescribes steroid enemas I will try them.  See what he has to say!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 

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