Preparing for surgery

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Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 10/19/2008 2:50 PM (GMT -6)   
My surgery is set for tomorrow at 8:00am. I had the last week off work to prepare our house for winter. I would normally do this in the first few weeks of November but I don’t think I’ll have the strength then. The doctor told me no heavy lifting for 2 months after surgery. I put the patio furniture and gas grill away, brought the hoses inside and turned off the outside water. I cleaned the garage so I can put the car inside. I mowed the lawn for the last time this year. I even did minor repairs on the snow blower and started it to make sure it is ready for the first snow, usually the end of November or beginning of December. My next door neighbor said he will clear my snow for me. I told him he can use my snow blower for both my driveway and his. I also caught up on a little painting.

Last night I saw a movie on the movie network that I think most people going into surgery wouldn’t want to see, “Awake” staring Hayden Christensen and Jessica Alba. The description of the movie said: “A patient suffers "anesthetic awareness" and finds himself awake and aware, but paralyzed, during surgery”. I couldn’t resist so I watched the movie. It really wasn’t as hard to watch as I first thought.

Yesterday for dinner we went to Kelsey’s restaurant and I had a 12 oz sirloin steak dinner. It was delicious. This morning at 9:00am I drank the first glass of Fleet phosphasoda. It tasted terrible but it was only one small glass. I have been drinking water all day long. I will take the second and last one in another 15 minutes.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 10/19/2008 4:17 PM (GMT -6)   
Paul, I'll be thinking of you! Just think..no more COLON!!! yeah
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****Digestive Advantage IBS formula 2-4 a day


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/19/2008 5:10 PM (GMT -6)   
Good luck, Paul! Here's to a quick recovery and no more UC.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 10/19/2008 6:14 PM (GMT -6)   

I'll be thinking you!  Best of luck for a quick recovery.  And when you do recover, go out there and live it up like the rest of us would if we could!!!  yeah

 

What are you looking forward to eating the most when you're well?


Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 2X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed, Multivitamin.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 10/19/2008 7:45 PM (GMT -6)   
Thanks everyone. I have to be at the hospital at 6:00am. I will have to get up at 4:45am. A little early for me, especially when I have to take Cipro and Flagyl at 10:00 pm tonight. They told me the timing is important.

Katie, I look forward to getting back to my regular diet. My UC doesn’t appear to be effected by diet. I look forward to reducing my bowel movements, urgency, and pain.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/19/2008 7:52 PM (GMT -6)   
Good luck Paul! You'll soon be UC-free!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 10/19/2008 7:52 PM (GMT -6)   
Paul, you will be in my thoughts and prayers tomorrow and in the coming days. Please post an update when you can.

I sounds like you are well prepared and what a sweet neighbor you have.
Julie

Mom of Son 17 UC dx 07/02, Sulfasalazine, Imuran, Cortafoam, folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


Apetro
Regular Member


Date Joined Aug 2008
Total Posts : 95
   Posted 10/19/2008 8:16 PM (GMT -6)   
Good luck Paul! I wish you a speedy recovery.
http://asilentocean.blogspot.com/  -> My blog
 
Diagnosed 7/27/08
 
Prednisone 20mg/day 40mg/day and tapering again....


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 10/19/2008 8:27 PM (GMT -6)   
Good luck and get well soon!
UC since age 22, now 27.  Several huge flares since then.
 
Currently tapering prednisone(35 mg from 80 mg).  Also just starting 6mp again and lialda.   I definately am not liking these drugs.  Maybe surgery one day?


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 10/19/2008 9:16 PM (GMT -6)   
Wishing you a speedy recovery, minimal pain, and a healthy, happy life ahead of you. Please keep up posted when you can. Our prayers and thoughts are with you.

--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 10/19/2008 9:22 PM (GMT -6)   
Next Stop UC FREE!!!
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 10/20/2008 3:10 AM (GMT -6)   
Thanks everyone. We are on our way to the hospital. Talk to you when I get out.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 10/20/2008 6:16 AM (GMT -6)   
Good luck Paul and I wish you a speedy recovery!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 10/20/2008 6:50 AM (GMT -6)   
Paul...healing well thoughts sent your way! Happy dreams while under..lol!

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 10/20/2008 7:00 AM (GMT -6)   
Good luck please keep us posted on how things go
Ian

Currently in no mans land between flare and remission


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/20/2008 7:07 AM (GMT -6)   
Paul, you should just about be going into surgery now. Have sweet dreams and a very successful surgery. Looking forward to hearing that you're WELL!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 10/20/2008 7:52 AM (GMT -6)   
Paul, you are one amazing person! By now you are in prepping for surgery, but just know that all my thoughts and good vibes are heading to you right now. Take care and when you feel up to it, let us know how you are doing.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 10/20/2008 9:53 AM (GMT -6)   
Best wishes, Paul, for a smooth hospital stay & the fastest possible recovery! You are a real trooper, winterizing the house before yucky prep & major surgical ordeal. Hoping to hear from you again ASAP! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 10/20/2008 12:26 PM (GMT -6)   
Best wishes and a speedy recovery
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


teacupsunderfire
Regular Member


Date Joined Jul 2008
Total Posts : 46
   Posted 10/20/2008 1:41 PM (GMT -6)   
Good Luck Paul. I will keep you on my mind today.

Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/20/2008 1:48 PM (GMT -6)   
thinking about you today. Said a prayer for you~

Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 10/22/2008 5:44 PM (GMT -6)   
Thanks everyone. I’m still alive and without a colon. I found out they have wireless internet access here at the hospital so I called my wife and had her bring our laptop. I won’t be typing much today because of the position I need to be in. I’ll give you more information tomorrow.


Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 

Post Edited (Paul L) : 10/23/2008 7:39:04 PM (GMT-6)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/22/2008 5:56 PM (GMT -6)   
Congratulations on being CURED of your UC! Rest well, and don't be afraid to take pain medication when you need it.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 10/22/2008 6:54 PM (GMT -6)   
Hi Paul!

Here's a link to a great ostomy handbook:

http://www.ostomy.evansville.net/ostomyhandbook.htm

It's a bit of a transition until your j-pouch surgery. But here's a great j-pouch website:

http://www.j-pouch.org/

My aunt has had hers for 20 years now and is doing great. I have crohn's and have a permanent ilieostomy so ask me any questions. For the ostomy smell try putting white tic tacs in the bag after you dump the contents!
Erica
Crohn's and Ostomy in 2004


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 10/22/2008 8:53 PM (GMT -6)   
Congrats!!! Not only are you colon free but UC FREE!!!! : ) : ) : )
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

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