lower back pain, but not in the joints

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ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 10/19/2008 8:19 PM (GMT -6)   
Does anyone else have this? It's not a bone/joint type pain, it's in my lower back lumbar region and it feels more like a nerve pain... Like a throbbing, radiating pressure originating from my spine. It usually happens when I'm sitting down and when I'm having a particularly bad stomach day. Just curious what it could be.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day, Azasan 100mg

 
 


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 10/19/2008 8:30 PM (GMT -6)   
Yup mad   I'm sure it's just another fun side effect rolleyes
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****Digestive Advantage IBS formula 2-4 a day


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 10/20/2008 2:39 AM (GMT -6)   
i had a herniated disc once and it pinched off my sciatic nerve. feels just like you're describing.
it eventually got worse and worse and the pain extended from my middle back down to my right foot.

i could only lay down or stand up as sitting was a no no.

you should get it checked out just in case. its crappy cuz you cant get to where the pain is actually coming from. like in the middle, but you cant poke it cuz its so far deep inside.
steph - 32 - female - gold coast australia - UC since 2000
severe UC in descending colon and sigmoid colon ONLY
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
prednisolone 25mg x1 a day (ick ick and did i say ick?)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
tumeric capsules - if i remember to take the bloody things.
i still eat what i want, when i want, if i feel like eating at all :(
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 10/20/2008 7:48 AM (GMT -6)   
I've had back pain forever and do have degeneration from since I was young (fell a lot on my tailbone and have slight scoliosis and lordosis) so it's nothing new for me....but when I'm flaring it can be worse and seems more specific and intense..especially before a bm.

Monthly cycles will cause back pain as well.

I agree to get it checked out in case there's anything else going on....especially if it's a new symptom for you.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 10/20/2008 11:59 AM (GMT -6)   
kazygirl, it's funny you should say that because often when the pain is bad it does go down my right leg to my foot, and sometimes I find myself trying to stretch or massage my thigh/hip area because it seems like it hurts there but then it doesn't help. I was interesting in getting another bone scan again anyway, perhaps I will set all this up and get it checked out. I wonder, would a bone density scan show problems like that as well or would you have to get something more like an MRI?

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day, Azasan 100mg

 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/20/2008 1:21 PM (GMT -6)   
When this happened to me, I was advised (by my golf coach, former Mr. California so knows lots about muscles) to get myofascial release therapy from a physican therapist or massage therapist. I tried both, and the massage therapist (make sure they have been trained on this) was better at it, but the physical therapist gave me ab exercises that helped too. They will pull on your legs and find trigger points where your fascia (sp?) is bound up, because what you describe is sciatic nerve pain (and it will stop you in your tracks!!).

My bone density was fine, and x-ray showed nothing. I got an MRI which showed a mildly bulging disk, which is something that can resolve itself in time (but still cause much pain and spasms). I had an epidural cortisone shot per doc's recommendation, but the M-R massage therapy had already worked pretty well so I didn't really know if that had any effect. Some seats irritate it, also standing for a long time or walking on hard surfaces.

In the meantime, ICE!! Aleve helps when I feel pain developing, and the oxycodone works really well but I'm conservative about using what I have left of the prescription. I'm starting to feel this again, and have another appointment with the massage therapist.

BTW, I get a throbbing feeling in my lower back when I'm on prednisone, it's different and goes away when the prednisone ends. I worried it was a kidney issue, but all always tested OK.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Winter
Regular Member


Date Joined Sep 2005
Total Posts : 210
   Posted 10/20/2008 2:52 PM (GMT -6)   
Every time I get a UTI, my lower back hurts. I have no other symptoms other than a lower backache.

Lialda 3 tablets  daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Align Probiotic
 


neednewbody
Regular Member


Date Joined Sep 2008
Total Posts : 59
   Posted 10/20/2008 6:36 PM (GMT -6)   
I have back pain (lower back pain) when I know I will have to go soon.. and I am flaring.  i think it is your colon pressure - sort of. but mine usually feels better about 20 minutes after the release

Liver transplant 2004 -- liver is only healthy part of me
Prograf 1mg bid for transplant
 
Remicade every 6 weeks - not working
pentasa 1500mg tid
palafer once daily
lomotil every day as needed
immodium every day as needed
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 10/20/2008 8:14 PM (GMT -6)   
edie.. if it is a pinched sciatic nerve, you cant really tell by bone scan (i dont think anyway). they had to do special xray or something (not sure) and they saw one of my discs slightly off center and pinching my nerve. the sciatic is in the middle and its hard to pinpoint the pain. it extends from the middle back down to the feet. one on each side.
mine was on the right side. but it could be either one. the pain is there usually all the time, but gets worse something. like it comes and goes.
i was cleaning my room one night and sneezed while bending over to pick up some clothes and BAM! straight to the emergency room. i couldnt move.
thats when they diagnosed what it was.
cant do much about it but rest and take muscle relaxers.

a few years ago in bali, i went to a reflexologist and told em i had back pain and a pinched sciatic. well they gave me the most painful massage of my life. it hurt for 3 days and then i have NOT had ANY PAIN in 5 years. all gone. and i had bad chronic back pain for ages.

might want to try it.
cant hurt (well kinda)
steph - 32 - female - gold coast australia - UC since 2000
severe UC in descending colon and sigmoid colon ONLY
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
prednisolone 25mg x1 a day (ick ick and did i say ick?)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
tumeric capsules - if i remember to take the bloody things.
i still eat what i want, when i want, if i feel like eating at all :(
 
 
 

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