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jordanko
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/20/2008 9:10 PM (GMT -6)   
hi ive been tapering off the steriods and I've been on 10mg of the hydorcortisone for about a week and a half.  my stools have been good mostly formed but today i had a acceident on the way back to my dorm.  it was mostly mucus and then i went again today and it was kind of formed with a little blood.  my stomach was very rumbly last night but it seems better tonight.  i really dont want to got back on the steriods and ive been on humeria for about two months now and i think it is working.  should i wait it out or go back up on the steriods.     

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/20/2008 9:31 PM (GMT -6)   
Maybe you could bump up for just a couple of days, then go right back down. But I say that without knowing much about you, you probably need to ask your doctor.
Sounds like you might benefit from keeping a food diary and find out it you had a trigger food.
Sorry you are struggling!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 10/20/2008 9:37 PM (GMT -6)   
I agree about the food diary, but also talk to your doctor about other medicine along with Humira. I'm on 2 medications for my UC, Imuran and Humira. That works for me. I'm not that familiar with prednisone, I was on it a lot last year, but didn't really see the effects of it. How r u handling the Humira? Is it working for you? I love that drug, it's a life saver for me, I can't stop bragging about it.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


jordanko
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/20/2008 9:52 PM (GMT -6)   
well i think im going to see how tomorrow goes and if its similar to today then ill bump it up for a day or two. I actually really like the humira i think its working(hope its working), im taking it instead of remicade. does it take a while to really kick in or does it work right away? thanks for the advice. i think what threw me off is that i went home for fall break and had pizza one night and a hot dog another night. also i tend the same thing at college a bagel and cream cheese for lunch and mac and cheese or a turkey sandwich for dinner. and when i went home i ate more.

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 10/20/2008 10:05 PM (GMT -6)   
I think for me it took about 2-4 months for me to see the effect. Be cautious about the food you eat until you totally feel the remission kick in. But, for me I'm a little paranoid about getting out of remission, so I watch my diet in general. I lean on fruits and veg when I don't feel balanced out. Glad to hear you like the Humira. Hope you are better tomorrow.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)

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