My husband lost his mother 5 years ago and they were super close, it was very difficult as I am sure it must be for everyone who loses someone. I think it is that my husband just cannot imagine that I will not be ok and that he will lose me. I will be ok but he does not understand that just b/c I am not dying does not mean that there are points where I feel like I am.
I have found with him it's best if I just sit him down and explain it to him. I found out my last flare up that I really did not tell him much, I tried to handle it all on my own and expected him to know how I felt, when we talked about it I was just very matter of fact about it and explained it the best I could. He's a very optomistic person, I consider myself realisitic.
You can get through this, you just need to find a way to communicate to eachother your feelings and needs.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07. Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 2.5mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!