I was lucky that my first GI was a medical faculty/researcher, and the drug study with 5ASA saved my colon. It was being studied for Chrohns and he got a special protocol from FDA to let me try it.
My GI now (I moved) is OK and accomodating but certainly not very imaginative. I learned more that made sense (and worked) in an hour with the Naturopathic Doctor -- much of what has been confirmed here by folks -- than I learned in 20 years from the GIs.
It is such a relief to be able to talk and hopefully help, here. I hope my employer doesn't notice how often I check in! My husbands appears to get excited as me about
small, weird victories, but he can't really understand.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills.
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.