I'm new to the UC forum

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J B
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/22/2008 10:19 PM (GMT -6)   
Hello!
I was diagnosed back in 1995, when I was 15. Now 13 years and one child later, my condition hasn't worsened. It's always been mild to moderate. (At times I wondered what severe felt like.....cuz I dealt with a LOT of pain)
 
I've been one of the blessed not to have had many serious problems with my ulcerative colitis. I deal with pain, bloating, bm 2x day, and gurgling, but for the most part that is all. I had to have a few blodd transfussions after losing too much blood. Also - I haven't paid much attention as to what sorts of foods make me feel bad, but realize that after living with uc for 13 years, it could soon change.
 
Sometimes people don't understand when I don't feel well, thus I joined the group. Plus I gained a TON of weight over the years because of prednisone therapies. I had to take it the entire time I was pregnant with my daughter, and a few other times after having her to get me back into remission. That weight is SO hard to lose. I find it hard to stay on a healthy diet and exercise has put me into a flare up before. Very frustrating.
 
Anyone had these issues? I'd LOVE to hear from you. And thanks for allowing me to join your group!
 
Jennifer

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/22/2008 10:53 PM (GMT -6)   
Welcome to HealingWell, Jennifer. I'm sure our group will have a lot of experience to share with you. We're glad to have you here.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/22/2008 11:27 PM (GMT -6)   
Hi, Jennifer. I can definitely relate to the issue of people not always understanding when I don't feel well, and I'm sure everyone else here can, too! I haven't had to take prednisone, so can't help you there, but like you, I have one daughter, so there's something in common. Mine's five and just started kindergarten this fall.

Welcome to the forum!
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 10/23/2008 7:05 AM (GMT -6)   
Hi and welcome :) I, too, know what it's like to not have people understand but I don't expect anything less. It's hard for a normal healthy person to understand what it's like to live with a debilitating chronic illness unless they have one themselves.

We are glad to have you and should you have any questions, concerns or experiences; don't hesitate to post. And never worry about being too graphic here - we are used to it because after all it is the nature of Uc and can't be avoided.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


J B
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/23/2008 10:47 AM (GMT -6)   
Thanks for the warm welcomes. I notice at the end of your posts you have background info on your condition, medications, and whether or not your in remission. How can I add that info to my posts?

I've been in remission for 2.5 years, not on any meds, and have had uc for 13 years.

emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/23/2008 4:14 PM (GMT -6)   
To add your background info, up at the top of the page, on the left-hand side of the blue bar it says "control panel" -- you can create your signature there.

You know, as far as exercise is concerned, have you ever tried mat pilates? I would think it would be a good way to lose weight -- certainly helps the waistline -- and I've been able to do it MOST of the time I've been flaring this summer, even when I had to give up some other forms of exercise because I was too weak and exhausted.
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/25/2008 7:18 PM (GMT -6)   
Prednisone weight is awful, and so was that feeling of being so hungry all the time!
I do really, really well with the Atkins diet, so does my husband. You don't have to eat bacon all the time, you can eat pretty healthy (except I miss fruit). And of course it's good if you have gluten issues, like I do and apparently lots of people do and don't know it! I have never gotten worse, but have gotten better while doing it.

I don't like cardio so I just do a little of that, but I like to lift weights to try to keep strong and hit long golf shots (and it's a quick workout). I would love to take Pilates but there is no place convenient enough for me.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

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