I've had UC for ten years. My last flare started in March of this year. I had to be hospitalized for ten days in May and slowly...VERY slowly...have come out of the flare. For most of that time, I had to take prednisone. It seemed like whenever I was off the prednisone for two weeks...wham...blood, urgency, diarrhea returned. The end of September my GI doctor put me on 40 mgm of prednisone (he usually started me at 30 but it just wasn't doing the trick), with a taper of 10 mgm every week until I went to 20 mgm, then 5 mgm per week. I am now on 5 mgm and hopefully will be OFF the prednisone by the end of the week. He also increased my 6MP from 50 mgm to 75 mgm. For the month of October, I have been symptom free..yaaaaaa. Normal bowel movements, no blood. I now have to have monthly blood tests instead of every other month. This is to check my CBC and make sure my white count doesn't fall too low with the increase in 6MP. My liver tests have been normal, although my pancreatic enzyme level was very high when admitted to the hospital. I was taken off the 6 MP for a month because of that. My Amylase and Lipase returned to normal levels after my fifth day in the hospital and I wonder if it wasn't a lab error to begin with.
The doctor recommended I take probiotics and I take Powerdolphilus by Country Life, two daily. My other meds are listed below.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring. Afraid that I am pred dependant. Back on Pred 40 mgm for five days, then taper. Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.