Finally feeling better, probably in remission

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Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/24/2008 7:16 AM (GMT -6)   
The Rowesa (and Canasa when I can't keep in the former) seem to be helping a great deal. I think the inflammation in my tail end is finally getting under control. Had a meeting with my GI yesterday, he says the fatigue is just part of having a chronic inflammatory disease and if I get adequate sleep, stay hydrated and eat well it should be minimized. And yes, to try to get back to the gym. At this point I think it is just a matter of getting it back into my routine. So hard to get restarted.

Most days last week were pretty good, I had a couple of days where I was making constant trips to the bathroom and GI said when that happens to make note of what I ate the day before. I forgot one of them, but I did have a spaghetti and veggie meatball dinner with a new brand of sauce. I think the sauce may had more onions than I am used to. I'll try it again (when I am not too busy or away from a bathroom the next day!) to see for sure before I ban the sauce forever.

So, just wanted to share that since I definitely share when I feel like crap ;-)

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; Rowesa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/24/2008 9:12 AM (GMT -6)   
Glad to hear you're improving! If you can tolerate the rectal Mesalamine preparations, they can certainly be key in helping with the last bit of inflammation.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 10/24/2008 9:19 AM (GMT -6)   
Congrats...if the rowasa/canasa ever stops working Corti Foam has helped me quite a bit (just hope it doesn't stop working) and is much easier and cleaner to use than the rowasas.
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/24/2008 9:21 AM (GMT -6)   
I am so happy for you!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 10/24/2008 10:15 AM (GMT -6)   
Meesh...glad your feeling better.....do you feel the remicade has helped at all? I see you were on 10 infusions and it only now seems your better from rectals. I have had seven and this last couple of weeks has been better but still have symptoms.....only 2 movements this morning ...second one formed with no pain, but there was some blood.....doc says I have multiple internal hemmies, but it just does not seem right. Been using the proctofoam, which I am not sure does much, and I am intolerant to 5 asa meds. What do you think turned it around for you... the enemas or do you think the remi has helped?

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5189
   Posted 10/24/2008 12:09 PM (GMT -6)   
That's great news, Meesh! Take it easy with work-outs 'til you're finished with multiple daily bms. My 1st gastro advised me to start running in-place, but it was too soon & my UC flared anew. Stretching exercises are probably safer to resume than aerobics, for us middle-agers, anyway. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/24/2008 12:37 PM (GMT -6)   
That's great that you're already feeling better!

landcruiser--if Proctofoam doesn't help, you may want to try Anucort (steroid suppositories) or Cortifoam.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/24/2008 1:33 PM (GMT -6)   
Thanks all!! I am just back from the gym --for cardio, I took my dogs for a long walk first (having a good bathroom day, two this am and that seems to be that!). I just don't feel ready for the elliptical yet, then when I got to the gym I did the weight machine circuit.

My daughter and I practically had the whole place to ourselves, so I just took my time, used low weights. I took a Tylenol when I got home to ward off aches tomorrow. I will go back for another easy workout on Sunday, then try to go a couple of times next week. If I stick with this for a couple of weeks I'll step up the weights and maybe add some cardio at the gym, but I am thinking through the pleasant Fall weather I may as well keep my cardio workouts outdoors. I'll have happy dogs at least.

Landcruiser, the Remi infusions got just about all my colon into remission, my GI says I'm just down to the last 8 cm, and the targeted medicines ought to help. He also said there's no risk of overdoing the Rowesa or Canasa, so I used a suppository yesterday afternoon and when I used the enema last night I had absolutely NO problem keeping it in, I may do that again today. He said once the enemas get me to where I want to be I can switch to the suppositories to keep me there.

God I hope this lasts!!

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; Rowesa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/25/2008 10:25 AM (GMT -6)   
Congratulations Meesh! It looks like you've found the magical combo that will enable you to attain that mythical state called "Remission". It is so nice to see a post from someone who isn't feeling like crap. It gives me hope that I'll be able to find my way through the forest to gain remission as well. Whatever you're doing, keep it up!
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements:  Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema every other night, Prednisone (down to 5mg), flaxseed oil, L-glutamine.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 10/25/2008 11:12 AM (GMT -6)   
Yahoo, Meesh! It seems like several people have been helped over that hump by using the Rowasa along with the Remi. Great to hear...enjoy the day my friend!
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 

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