I choose to accept my remission

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Pen Name
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/25/2008 4:29 PM (GMT -6)   
Hello, I'm a new member who has been reading here for the past few weeks. Just wanted to say that it really helps to see how others are dealing and coping. Lots of strength and positive attitudes. I've really learned a lot and share my sympathy.

Remission impossible...not here...
Turning 39 + 1 in Nov.
Diagnosed w/UC (2/3 colon) in May 2008.
Had symptoms about 15 yrs ago...GP led me to believe it was food poisoning. Huh?
Haven't been to doctor since.
Had a flare that wouldn't go away early this year...had no idea.
Finally went to a GI and here I am :).
Asacol - 5 twice a day. Lots of TP.
multivatamin & fish oil

Post Edited (Pen Name) : 10/25/2008 3:36:31 PM (GMT-6)


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/25/2008 4:44 PM (GMT -6)   
Welcome - sounds like you have a positive attitude yourself! Hope you continue to do better!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 10/25/2008 9:25 PM (GMT -6)   
Welcome to Healingwell, PenName! We are glad to have you join us, and have already found how helpful everyone is on this board. Sounds like you have a positive attitude and a lot of things to share. Again, welcome!
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Lavi
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 10/26/2008 11:58 AM (GMT -6)   
Hey everyone,

I was diagnosed with UC in summer of 2006.. Im 20 right now, and it sucks!!!!!!
I had a blood transfusion 2 weeks ago, and im on 800mg of asacol, iron pills... and now im on presidone of 40mg a day

I still get bleeding like 2-3 times a week, and it seems like none of the medication is working..
predisone did help for a while but the side effects are insane!!
i cant sleep at night some night,
i get joint pains
i never really had a problem with acne, just a few bumps here and there but with predisone its given me like a rash on my face, nothing pops out just little tiny tiny red spots, and now i wanna get off of predisone, ive been on the medication for about 4 weeks, and today im gonna stop taking it. But i was wondering, how long does it take for the predisone to actually clear out through your body?, and does anybody had/have the same problem and if so, how long does it take to disolve the side effects?

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 10/26/2008 1:53 PM (GMT -6)   

Lavi,

You do know that you have to taper off prednisone, right?  You can't just stop taking it suddenly, or you can have some nasty side effects.  Make sure you talk to your doc about the proper tapering schedule for the amount that you're taking. 

Good luck!!


Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 2X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed, Multivitamin.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


Lavi
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 10/26/2008 2:58 PM (GMT -6)   
The doctors here in winnipeg are Idiots!!!
My G.I Specialist always, and i mean always forgets who i am, whats wrong with me, what medication im on, and my family doctor just makes me always go check a blood check.
Anyways ive been on predisone for 4 weeks now, 40mg a day, and i wanna reduce it.. the only reason i was on it was because my stool hasnt been formed in like 4 months and finally it has been, and the bleeding is always gonna be there whether i like it or not, and whether which medication i take, its gonna be there...
so what my plan is im gonna reduce it by 5 mg per days
so:
5 days - 25mg
4 days - 20mg
3 days - 15mg
2 days - 10mg
1 day - 5mg

Pen Name
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/26/2008 6:18 PM (GMT -6)   
I'm not one to talk because I've always been reluctant to go to see a doctor until I absolutely had to this year (and my brother is an internist who believes in preventive care). Now I have no choice, and in a strange way, this is good for me. Since I had symptoms 15 years ago, I must have a colonoscopy every year (that I dread...and I mean dread). Anyway, it's important to listen to your doctor, especially when it comes to the medication. If you're not happy with your GI, I would find another one.
Turning 39 + 1 in Nov.
Diagnosed w/UC (2/3 colon) in May 2008.
Had symptoms about 15 yrs ago...GP led me to believe it was food poisoning. Huh?
Haven't been to doctor since.
Had a flare that wouldn't go away early this year...had no idea.
Finally went to a GI and here I am :).
Asacol - 5 twice a day. Lots of TP.
multivitamin & fish oil


Pen Name
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/26/2008 6:35 PM (GMT -6)   
Oh, also as Mr. Impatient, I've learned to be patient and give it time...lots of time! Yeah, months of blood, rushing to the boy's room, etc...thinking I'll never be "normal" again. Luckily the pain subsided after being on Asacol. I know, what works for one doesn't necessarily work for the other. I'm still learning...
Turning 39 + 1 in Nov.
Diagnosed w/UC (2/3 colon) in May 2008.
Had symptoms about 15 yrs ago...GP led me to believe it was food poisoning. Huh?
Haven't been to doctor since.
Had a flare that wouldn't go away early this year...had no idea.
Finally went to a GI and here I am :).
Asacol - 5 twice a day. Lots of TP.
multivitamin & fish oil


quincy
Elite Member


Date Joined May 2003
Total Posts : 30677
   Posted 10/27/2008 12:53 AM (GMT -6)   
there's no reason for a c-scope yearly if your biopsies are clear of precancer or cancer..

You should also be on rectal meds.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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