Haileys letter

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haileys letter
Regular Member

Date Joined Nov 2006
Total Posts : 296
   Posted 10/26/2008 9:24 AM (GMT -6)   
          It has been two years today that my daughter has been better. Her doctor calls her 
 a  "success story." She was facing colon surgery and was very ill.
      For my daughter antibiotics made her better and she has been well for two years now. This disease is very confusing because antibiotics may help for some and may make others worse.
   Hailey was sick for sick years straight. I took her to the BEST doctors all over the state trying to find answers for her. Every doctor just kept giving her different medications to "control the inflammation" or " depress the immune system".
             I put trust in so many doctors for so many years. I still follow Dragonpack.com Just the other day there was a post on there that literally broke my heart.
The title of it is " Sit down before you read" It is about a parent with a very sick child that has put her trust in the doctors to do the best for her son. She recieved a phone call informing her that there are now confirmed cases of Hepatic T cell cancer seen in the mix of Remicade/ Methotrexate. It makes me so sad and so angry at the same time.
 I know what it feells like to put your trust in someone to help your child and then to get a phone call like that. I am sorry it its unacceptable.
    Hailey does not realize how sick she was , but she does know she loves feeling better. It is nice for me to put her on the school bus and not have to worry if she will have an accident before she gets to the school. Little things just like being about to go trick or treating today , something she could not do just two years ago.
    We still pray for the people and the little kids that are controlled by this disease. We have recieved many emails from people that say there children have gotten better from antibiotic treatment.
   Please take the time to read Haileys letter under my signature. It is what my family went through for six years straight. I wish you all well.
Dave & Kelly
Daughter 8
Diagnosed at 15months with UC (pancolitis) then  Selective IgM defiency
Took many medications, no relief,GI wanted to start her on Imuran.
Took her to a natural doctor. He did a detox on her body.
Going to the restroom 15 times a day, developed pneumonia,recieved shots of Rocephin (wide sprectrum antibioitic) within24 hours of Rocephin bowels were formed.Since October 26 2006 she has been well without any medications. She takes Forvia multi vitamin ,Natures Way Primadophilus Reuteri, Viactiv calcium chew daily.

Post Edited (haileys letter) : 10/26/2008 9:51:36 AM (GMT-6)

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