hey Vin, nothing to add here but just wanted to say I know how you feel. I just started Remicade, am currently in a bad flare, and am hoping it will kick in even a little bit within the week so I can have some hope and morale again. But I have exactly your concerns. I sort of assume I'll have to have surgery soon enough, am concerned re. long term effects, yet am so fed up with not being in remission that I am game for a break before going through the uniknowns and long recovery of pouch surgery. And who knows, maybe get a bunch of years to keep a colon, you never know. But playing wait and see if it even helps, for now. Good luck. It sure sounds great for many.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO,
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade next