I've been on Remicade since June and my last cscope in August showed only 4 cm of inflammation, which I've been treating with rectal meds. Although I have no blood, I wouldn't say I'm in remission b/c I still have mucos and my BM's are unpredictable.
I understand your worries. I was doubtful about
starting Remicade b/c of all the scary side effects and was thinking that it would be better to just get rid of my colon. But there is uncertainty with surgery as well, so I decided to give Remicade a try. I talked to a GI at the Cleveland Clinic about
my worries w/ Remicade and he said that he only gives his patients Remicade for a year and then tries to wean them off on just 5ASAs; if that doesn't work, then go to surgery. I think I'm going to stick with that plan.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP, 1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort