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KatieBwithUC
Regular Member


Date Joined Sep 2008
Total Posts : 121
   Posted 10/28/2008 6:55 AM (GMT -6)   
Hello. I have been released from the hospital for almost a month now (Had to go in because of bad flare) and currently I am down to 10 mg of prednisone and I seem to be doing okay....(crosses fingers) I've been sticking to a pretty good diet. However, I miss coffee. Does anyone drink coffee and not have a problem? I hear it is bad for stomach cramping but I really want to incorporate coffee back into my life, at least just in the morning. Just wanted to hear other thoughts....

Apetro
Regular Member


Date Joined Aug 2008
Total Posts : 95
   Posted 10/28/2008 7:13 AM (GMT -6)   
I still drink coffe, I can't live without the stuff. I don't notice any cramps from it but some on the board say it will increase your D if you're going through a nasty flare.
http://asilentocean.blogspot.com/  -> My blog
 
Diagnosed 7/27/08
 
Prednisone 20mg/day 40mg/day and tapering again....


run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 10/28/2008 7:29 AM (GMT -6)   
Hi, Katie!  I really missed coffee, too--but I couldn't stand what it was doing to my stomach.  I switched to tea instead and that seems to be a lot more gentle on my stomach while still giving me my warm caffeine in the morning. 
 
You can always try a weakly brewed coffee and see how you feel. 

thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 10/28/2008 8:01 AM (GMT -6)   
Coffee does not seem to bother me...but honestly, with a few exceptions, most foods/drinks do not seem to bother me. Cutting out things like corn, popcorn, and high sugar/high carb foods helps me a little...overall all though if I am going to flare I just do and cutting out foods does not do a thing to stop it...
Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Probiotics
Just tappered off pred


perach
Regular Member


Date Joined Apr 2007
Total Posts : 116
   Posted 10/28/2008 8:13 AM (GMT -6)   
I drink one cup at home in the morning a few hours before I leave-I actually thinks it helps me the rest of the day because it helps get "everything" out.  I find if I then eat lightly at work I can get through (severe flares excepted).  Other than helping me to get going in the morning, I haven't seen negative side effects.

-Lialda (4 pills/day), canasa, Align probiotic, kefir, multivitamin, calcium with vitamin d, iron


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/28/2008 8:56 AM (GMT -6)   
I love it but I know it bothers me. I keep to one (big) cup in the morning, starting at least an hour before I have to leave. My Naturopath said it is an irritant, but "allowed" it. It does clean you out!!

Tea is better, I agree, so I try to do that instead sometimes.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 10/28/2008 9:45 AM (GMT -6)   
I haven't ever really had a problem with coffee. However even people without and IBD have problems with it. I know folgers makes a type that is supposed to be easier for the stomach to digest. Maybe you could try that?
Sam 19 year old college student
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Effexor XR for anxiety
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/28/2008 10:43 AM (GMT -6)   
I can't have any type of coffee while flaring even decaf I think it's the acidity, it increases my bm's and urgency.

I limit it when not flaring b/c I love it, but if I have too much I get symptomatic again.

Try drinking tea, I still get the caffeine and am ok with it.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


jenjim
Regular Member


Date Joined Apr 2008
Total Posts : 55
   Posted 10/28/2008 11:47 AM (GMT -6)   
I drink a cup or two each morning, I think I'd be a zombie without it because of the drugs Dr (not GI) has me on that I take at night but still has effects in he a.m. Coffee doesn't give me diarrhea, but I never really have diarrhea in a flare. It may speed along anything that's going to happen in the a.m., but that's about it.
Hope you can find a balance and enjoy some coffee without upsetting your GI system!
Jenjim

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/28/2008 11:48 AM (GMT -6)   
Coffee is a natural bowel stimulator basically because of the caffeine...try decaff and see how it goes.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 10/28/2008 12:31 PM (GMT -6)   
Because I love it I still drink about 2 6 oz  (not a huge mug!) cups a day.  When I'm flaring, though, I back down to about 1/2 cup a day and just gradually increase it as I feel better. 

Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) pm rowasa every other day 
culturelle, benefiber wafers  generic acidophilus, metamucil wafers, activia yogurt, spinach & sunflower diet, primadophilus reuteri
children's vitamin, Vitamin E 400 mg, omeprazole 2xday
oxazepam when needed, lomotil or ImodiumAD when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 10/28/2008 12:32 PM (GMT -6)   
I drink coffee, but not all coffee agrees with me. Starbucks...horrific taste and effects!

i would try milder coffee...there's a brand for sensitive stomachs I believe..folgers..worth a try.

Yes, coffee is a bowel stimulant, but if you have it in the mornings, it's good to get the constitution going. That's the best time for bms for me...

If I have coffee during the day, they don't trigger bms..but if I were flaring, I wouldn't drink as much as to keep my butt quiet.

Decaf or mixing half and half might be the way to go for you...make sure it's one that tastes good to you.

Experiment.
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/28/2008 4:48 PM (GMT -6)   
Try instant coffee, it is much less harsh. Tasters Choice makes a vanilla flavor that's good
I know, coffee aficianados will be horrified.
I also can't do Starbucks, too strong for me.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


KatieBwithUC
Regular Member


Date Joined Sep 2008
Total Posts : 121
   Posted 10/28/2008 7:27 PM (GMT -6)   
Thanks everybody for the input. I think I might wait and see though for a little while longer.... I'm still a little nervous about it. Plus I'm still on the prednisone with makes me jittery enough. Probably don't need to add coffee to that right now....




Katie
Age 25
Diagnosed UC March 2008
2 Lialda daily
10 mg prednisone (tapering)
Remicade every 6 weeks

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/28/2008 11:35 PM (GMT -6)   
If you're not allergic to ragweed, why not try chamomile tea everyday...it's a natural anti-inflammatory, I drink a couple of cups first thing when I wake up before eating anything (I don't usually eat until much later in the day anyways when my gut gets a little more settled).

I was a big coffee drinker but stopped it all together and traded it for tea, much better for me.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Pen Name
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/29/2008 5:09 AM (GMT -6)   
I love coffee but stick to 1 big cup early in the morning. It does get you going in more ways than one. Better at home than on the way to or at work!
Turning 39 + 1 in Nov.
Diagnosed w/UC (2/3 colon) in May 2008.
Had symptoms about 15 yrs ago...GP led me to believe it was food poisoning. Huh?
Haven't been to doctor since.
Had a flare that wouldn't go away early this year...had no idea.
Finally went to a GI and here I am :).
Asacol - 5 twice a day. Lots of TP.
multivitamin & fish oil


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 10/29/2008 8:37 AM (GMT -6)   
     When in a flare I cannot drink anything with caffeine.  Now in remission, I drink one cup in the morning....love it!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring.   Afraid that I am pred dependant.  Back on Pred 40 mgm for five days, then taper.  Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/29/2008 8:39 AM (GMT -6)   
When I was at the beginning of my flare and at the worst part of it coffee did bother me. However, it was one thing I couldn't give up! A gluten for punishment! I did do everything else the doctor advised me to do like eat a bland diet. Now that I am heading toward remission the coffee isn't bothering me.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 10/29/2008 9:56 AM (GMT -6)   
I have found that i can only tolerate Organic Coffee. Regular brands bother me right away, but I do just fine on 1 cup of Organic a day.
Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Entocort 9mg daily
800mg Asacol 3X daily


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 10/29/2008 12:37 PM (GMT -6)   
Coffee seems to increase frequency for me, I think decafe has the same effect but I'm not sure.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Mesaamaline (sp) Retention Enemas, herbal meds in the search to regain full health.

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