RATS! Still flaring, I guess. How's everybody else doing?

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emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/28/2008 4:39 PM (GMT -6)   
Things were going really well for a couple of weeks - no urgency, mucus, or blood. Then one bloody mucus plug out of the blue, then fine for a few days, so last Thursday I called my doctor (well, nurse) to ask if I was ready to taper off hydrocortisone. She thought so, and recommended I go to every other day for about ten days, then discontinue. Well, wouldn't you know it, that very afternoon I start to notice just a smidgeon of that gross yellow mucus. I waited until Saturday to skip the morning hydrocortisone suppository, and symptoms didn't get much worse, but definitely terrible gas and a little mucus. I've used the HC every morning since. It probably didn't help that I went to parties on Saturday and Sunday where the food choices weren't exactly bland.

But I'm bummed that every time I think things are coming under control, wham! Return of the Mucus.

Called the nurse again today and she recommended waiting at least 3-4 weeks before trying to taper again, especially since she says it's been a really bad month for colitis people in our area (western Montana; ironic, because it's been an incredibly beautiful October). Has anyone else heard this from their healthcare providers? I guess with this in mind, I should be grateful to be doing as well as I am. Remission would certainly be welcome, though.

Best to everyone, and thanks for listening to my complaints --
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 10/29/2008 1:33 AM (GMT -6)   
It could be a combo of UC and IBD oops, I mean IBS...did you have urgency as well?.

I wouldn't suggest to taper to every second night then off.

Definitely do another month and see how that goes.

the food could definitely have added to the mucus if you're not used to eating some of the foods.


Hang tough....how many times a day are you having bms..

quincy


*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 10/29/2008 1:27:35 PM (GMT-6)


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/29/2008 9:44 AM (GMT -6)   
Emory, I am sorry for your frustrations and being bummed - I can certainly understand that. I am feeling much better, headed toward remission I think, but do get frustrated when I see the mucus back after not seeing it for awhile. I haven't heard anything about colitis being up in our area or any area. I have read on some threads that for some people it is seasonal. Suppose I am to new to this disease to know.

Hope your feeling better soon!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/29/2008 10:08 AM (GMT -6)   
Quincy and Gigi1227,

Thanks for commiserating!

Glad you're feeling much better, Gigi, and hope that remission is around the corner.

Quincy, how are you? I hope your back is 100% better!

Did you mean IBS instead of IBD? I don't really have urgency (though I always wonder where you draw the line between regular "hmm, guess I should go to the bathroom now" and "better run!" urgency). I'm having 3-4 BMs a day now; had been down to 1-2. Last weekend's food was greasier, richer, and more plentiful than I've been eating lately, so it might have been a little much for the system. Generally I'm feeling good; I would just like to stop taking the hydrocortisone. (Canasa is another matter. I have no plans to stop it before the new year at a minimum.)

When the time arrives, should I taper every third night for a week or two first, then every other? That's what I was thinking of doing.
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/29/2008 10:15 AM (GMT -6)   
I'm sorry the mucos returned! It's so annoying to be close to remission but not they're yet! I would keep taking the HC for at least another few weeks before starting to taper it; I'm going into my 3rd month of HC and my GI doesn't have a problem with it.
 
I've been doing okay. I'm having no blood, but still mucos and unpredictable BM's (like one day 5+ w/in the span of a few hours, next day only mucos, etc.). So I'm having my inflammatory levels (?) checked to see if we need to increase my Remicade dosage in order to get into remission.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 10/29/2008 2:43 PM (GMT -6)   
hi emory...yes, I meant IBS...stupid keyboard, haha!

Greasy foods will/can increase bms...if you ate a lot more food, your body will break it down at whatever pace it's used to. As well, taking the Metamucil smooth will bulk it up more giving you more bms, so all in all, it seems it could be the food intake.

You can also increase the metamucil during this time to twice daily...maybe at noon if you're not taking any meds at that time.

When you consider to taper, do it every second night, but add the Canasa to the nights where you're not using it.

I have a cold since Thursday, laryngitis since Saturday (after my flu shot on Wednesday...but I was fighting something anyway and didn't tell my doc) and as of yesterday a sinus infection. I'm ticked off, cancelled my clients and will be seeing the doc tomorrow. I'll beg for zithromax. I was hoping to get rid of this myself, but with all the stuff I'm taking, I can't do it alone or afford emotionally to take more time off. Plus we've had new flooring countertop..been stressful packing stuff away because eventually we'll be painting, etc. and nothing is perfect, the living room has to be redone because the stupido put an obvious seam right down the centre of the room.. It's all new for us, too much at the same time, that's all. But UC is fine for now..

My back is actually fine. Go figure....

It's been a tough few months and I'm feeling a bit down about it....but nothing like experience..bwahahahaaaaaaaa.

Oh, back to the tapering for you...yes, I'd do it as you say, but replace them with the Canasa.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/29/2008 9:17 PM (GMT -6)   

Hi!  Hope you get feeling better in days to come.  I know I feel better not taking any medication for the colonoscopy but tonight doing the Canasa until I get the Proctofoam again. 

I wanted to comment on Metamucil or any fiber supplement.  I ask the doctor about it - he told me if I was taking it to continue - if not, don't add it as everything is going so well with firm stools and one or two a day - even with blood most every day streaking the stool.  I think the Align probiotic is the best thing I have added over the months.  Many think that it is not enough but seems to work for me - if it ain't broke I guess I won't try to fix it.  Just hope the new foam will heal the rest of my rectal UC.  If not, he mentioned 6MP or steroids.  NO! At least I hope not.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 10/29/2008 9:41 PM (GMT -6)   
Ugh, sorry to hear you are flaring! It always hits me this time of the year too. I was in remission for about 2 years..so I got used to feeling good.. and then whammo! I wonder how we can put up with so much misery for so long sometimes. My doctor told me he's not happy with how this treatment is going and I need to have a colonoscopy Friday to see whats going on in there. I am running a low grade fever(99.0-99.8), nausea, joint pain, headache, gas, strong left sided/upper abdomen pain, 5-7 bm's a day(increasing). I had to be bumped up to 25 mg of pred and I am still on 75 mg of 6mp. He's saying I might need remicade and at this point we are trying to save my colon :(.


Vin
UC since age 22, now 27.  Several huge flares since then.  3/4 colon diseased. 
 
Currently tapering prednisone(10 mg from 80 mg).  Also just starting 6mp again(75 mg) and lialda.   I definately am not liking these drugs.  Maybe surgery one day?


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/29/2008 9:47 PM (GMT -6)   
ComedyDork, glad you're doing alright. It sounds like you may be poised on the brink of remission as well. Fingers crossed for both (all!) of us...

Elaine, hope the Proctofoam will do the trick for you. At the risk of sounding like a broken record, I want to point out once again that Proctofoam has much less steroid (8 mg) than even the hydrocortisone suppository (25 mg) I'm taking; Cortifoam has way more (80 mg). My first doctor didn't know that; he thought Proctofoam and the hydrocortisone suppository were about the same. Just wanted to make sure that you're aware of these other two options; they might be preferable to 6MP or oral steroids. Thanks for passing along the info on Metamucil and Align. I may have to give Align a try.

Quincy, what a bummer! I hate colds so much. And what a lot you've had going on. Good thing your back is okay; I'd guess you've been hauling around a lot of stuff for the remodel. Also glad your UC is behaving itself. Always so glad to have your advice (and "hear" your voice). If/when I taper, I'll keep in mind replacing the HC with a second Canasa (logical, but expensive, at almost $10 per Canasa vs 50 cents per HC). What price health, right?

Take care, all --
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/29/2008 9:56 PM (GMT -6)   
Arghh, Vin, my miseries pale in comparison to yours! I really feel decent much of the time, it just feels like such a long time since May when this flare started, and I'd really like to get it under control for a while. I know you must be bummed about increasing your pred again; hope it will make a difference. Sorry to hear that you're going to have to prep for a colonoscopy when you're already feeling rotten, but it will be good to find out what's going on in there. I'll be thinking of you these next couple of days and waiting to hear what you find out. Hang in there --

emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 10/29/2008 10:12 PM (GMT -6)   
Thanks. I've hung in there for a while... whats a little more time :) I am nervous because this colonoscopy is going to dictate the next treatment. I just feel sick all the time and it has to change. It almost doesn't feel real! To go from so healthy and in shape at the beginning of this year..to suffering the panic disorder over the summer.. to now getting this latest and greatest flare. Its like i am floating through a dream. Hope it behaves like a dream, because when I wake up... i don't want to remember it!

Vin
UC since age 22, now 27.  Several huge flares since then.  3/4 colon diseased. 
 
Currently tapering prednisone(10 mg from 80 mg).  Also just starting 6mp again(75 mg) and lialda.   I definately am not liking these drugs.  Maybe surgery one day?


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/29/2008 10:33 PM (GMT -6)   
It really is shocking how we take our health for granted for years, figuring we're taking good care of ourselves, and then out of the blue, health becomes something we're fighting to regain. Fingers crossed that this will soon be just a bad memory, Vin --
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/30/2008 9:22 AM (GMT -6)   

emory - yes, my doctor said try the Proctofoam first and then I can go to stronger rectal med with more steroids.  He does not want me to get "involved" with steroids of any form so be very conservative per my request.  I would rather it take a LONG time than those side effects of any kind.  You would not believe how great I have felt (other than the UC) for the last two days without any UC medication.  Feel like myself without all the side effects, nausea/sweating/headache, etc. etc.

By the way, emory, I found one of your "mucous plugs" today.  You know the scope always messes one up a little until I get back to my probiotics, etc. etc.  I will be ok (hopefully) by tomorrow.  Took 1/2 Imodium because I have to go out with my husband today.  Going to Vegas next week so lots to do. 

I plan on giving Proctofoam a good chance.  It worked  before - just not up far enough he said and now it is low in rectum and should do the trick - we will see.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 10/30/2008 5:52 PM (GMT -6)   
CortiFoam works for me.
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 10/30/2008 6:29 PM (GMT -6)   
I can relate to everything you guys are saying... When I went into my only remission march-may I thought I had beat the disease. Believe or not, I even starting forgetting how horribly sick I had been.

Since then I have been SOOOO sick... now I am back on prednisone which I vowed I would not go back on. My GI ( who has admitted to me he doesn't know what else to do with me) has now referred me to another GI who is a specialist in IBD.

If it weren't for this site, I really think I would lose my mind.

So a big thank you
Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, colazal 3x3, Sythroid, Protonix, Rowasa suspension

Remicade 10th infusion- Sept. 30th


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/30/2008 7:54 PM (GMT -6)   

bbc - when reading about Cortiform which has more steroid than Proctofoam I see why my doctor does not prescribe that unless necessary.  With my age - 68 - and high blood pressure, fungal infections often and a husband with cancer - there are a lot more risks involved.  Hoping the Proctofoam will heal me so I don't have to go stronger and take all those chances. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Michigoose
Regular Member


Date Joined Oct 2008
Total Posts : 64
   Posted 10/30/2008 8:07 PM (GMT -6)   
Boy Howdy as they say--
 
I know what you mean--to be so close to remission and finish my pred taper only to go right back where I began.  I was hoping to avoid Remicade,  but I guess that's where we're going now.  First infusion set for a week from today. 
 
On the way to the doc's office today, I stopped by Walmart and don't you know, got hit with an urgent message that said find the john NOW.  That did it--right there I mentally gave in and decided to go ahead with the Remicade if doc said it was time, and he did.
 
I'm just sooo tired of fighting it--you all know how depressing it gets after a while.
shakehead
Well, I'll try to focus on the good Remicade might do for me and not worry so much about possible side-effects right now.  I've just got to get better--4 horses, 4 dogs, and a bunch of cats and other critturs rely on me and give me a good reason to keep going. rolleyes
 
God bless us all.
 
Michigoose
 
Moderate to severe left-sided UC, Dx 1991
Just switched from Asacol 3x2 daily to Lialda 2/day.
Prednisone for flares. SCD recipe yogurt daily for probiotics.
Fish oil caps and Multivitamin and Bee Pollen


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/30/2008 9:58 PM (GMT -6)   
Elaine, fingers crossed that Proctofoam will do it for you. Vegas next week -- have fun!

Jblue65 and Michigoose, sorry you're in such bad flares. Sending good thoughts your way --
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 10/30/2008 9:59 PM (GMT -6)   

Thanks Emory-

Surgery may be the way to go for me....

Jackie


Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, colazal 3x3, Sythroid, Protonix, Rowasa suspension

10 infusions of Remicade- doesn't work
tried 6MP - taken off because of health concerns

Prednisone and Levaquin added- October 30th


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/30/2008 11:20 PM (GMT -6)   
Well, I'm glad that some people are getting their UC under control, but really sorry to see so many that are still struggling. This disease can really take a toll on a person.

I've been working on tapering my prednisone lately, got down to 5mg every other day, 10mg the other days. Since last week, I've felt like a semi-truck hit me. I've been exhausted, joints all aching, gassy, head aches, back aches, and did I mention totally exhausted? Sleeping 12 hours a night, waking up for a hour, napping, still tired...lethragic would be the correct word I guess. Oddly enough, my UC is doing better. 1 or 2 bms in the morning, no problems.

Time to go lay down again. Happy Halloween everyone!
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


badtummydays
Regular Member


Date Joined May 2007
Total Posts : 41
   Posted 10/30/2008 11:49 PM (GMT -6)   
Emory, I hope you start feeling better. I feel like I've been in a flare for 3 yrs. But lately It has been much worse. (Last couple of months). I've started drinking mint tea before bed. I think its helping.
I grew up in Montana, Eureka.(Very Northwestern). If you don't mind me asking, were are you from?
 Tisha

  dx Dec.03 pancolitis 

  slowly getting worse.

  *new update* 4/15/08

  start first remicade 4/16/08

  500mg sulfasalazine 4x a day


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 10/31/2008 2:05 AM (GMT -6)   
Wow emory...did't realise the cost was that dramatically different. I don't buy the supps (salofalk), but I do remember them as being costly. But, what isn't with 5ASA meds it seems, which is a pity.

I'm on zithromax for 5 days...thankfully....can't do another week of this stuff. For sure then my butt will start reacting...lol!

Ah, normal.

Hope you feel better soon.

I would still suggest to consider increasing the Metamucil smooth to twice a day...

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/31/2008 10:25 AM (GMT -6)   
My system is getting back to normal (whatever that is) from the scope on Tuesday.  I am sure getting back on the probiotics has helped.  I have to wait to pick up the Proctofoam tomorrow.  My pharmacy is small and has to order a lot of medication - usually comes in one day.  I have been using the Canasa in the meantime to have medication UP there! 
 
From reading post after post here I would like to give my thought on surgery.  I knew a young woman (well, I was young then too) many years back who had her colon removed for whatever reason and was thrilled to have her life back - she bowled twice a week.  If your doctor thinks it is time for surgery to get your quality of life back - worth considering for sure and this comes from one who sees surgery as ONLY IF DYING!  But, if I was 20 or 30 I would definitely consider the new surgeries they have now and get back to living!!  I have mild proctitis now and dealing with this is hard enough without what most of you have to deal with.
 
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 11/1/2008 9:13 PM (GMT -6)   
Hey everyone,

I have been blessed with my second cold of the season (can't believe it!) and feel a ltitle under the weather. I hope this is not a sign of things to come for the winter! I don't suffer colds gladly.

Beartooth, sorry to hear you've been so exhausted and sore. Am assuming that's the pred taper? Glad that at least your UC is doing well!

Tisha, I'm from Missoula. Where are you now? I've always heard Eureka is a beautiful place, but haven't been up there.

Quincy, yes, the Canasa is terribly expensive (especially for what you get -- 1000 mg). I've been wondering if there's a sulfa version of the mesalamine suppositories; presumably that would be a lot cheaper. And that would help, since it seems I'll be on these for a good long while. Hope the zithromax is doing the trick for you!

emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 11/2/2008 1:11 AM (GMT -6)   
emory....I can truly feel for you!! Hope yours doesn't last too long and it's without any sinus or chest infection.

The zithromax has worked awesomely...today I'm feeling totally normal. yesterday was like blowing shards of glass through my sinuses..never had anything like that in my life.

Weird how colds affect us and which parts they seem to settle in. Don't know if some cold viruses attack particular parts or if its random where the weakest areas are...
It never went into my chest or ears...

The sulfa in sulfasalazine is used as a vehicle to carry the 5ASA to the colon, bo in effect, its the 5ASA that does the work...yes, it's cheaper, but I don't think it would be considered for use in rectal meds since the sulfa isn't the component that's used to treat UC. At least that's how I understand it.

Maybe they will come up with 5ASA generic supps eventually.

Get well soon!
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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