Scope done and good news...

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/28/2008 5:48 PM (GMT -6)   
This granny is very happy to report the scope went well - after not so fun night.  Nurses were not surprised at the blue stuff!
Dr. Gandhi - my gastro doc.  Said on his report - mild Ulcerative colitis confined to rectum and a few diverticula - now only 2CM.  Yipppeee!
Going to try just Proctofoam and hoping for best - that along with Align.  He thinks it will heal up the rest!!
I am very tired and have a "caffeine" headache!
Nite.
 
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda every other day and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess. Taking Reglan now for nausea, etc.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/28/2008 5:50 PM (GMT -6)   
Yay! I was worried you were going to be given a hard time about the blue, or even asked to come back another day! That would have been cruel.
Terrific news!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/28/2008 6:00 PM (GMT -6)   
Great news, Elaine! Sounds like the prep was worth it!
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 10/28/2008 6:03 PM (GMT -6)   
glad to hear it was a success
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/28/2008 6:36 PM (GMT -6)   
Congratulations, Elaine! That's wonderful news. Here's to a long and satisfying remission.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/28/2008 8:50 PM (GMT -6)   
So glad to hear things went well! I hope the steroid foam helps heal you up the rest of the way :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 10/29/2008 1:08 AM (GMT -6)   
Definitely good news! When do you go back for your biopsies?

Hope the proctofoam works for you..didn't you use it in the past?

Sleep tight!

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/29/2008 9:19 AM (GMT -6)   

quincy - biopsies?  Had those in June - don't think he did any yesterday.

Yes, I used the Proctofoam which helped - it was one of the first and I went to Rowasa to try to go further up.  This time he said it is localized to rectum and Proctofoam is easy for me to use and it should work.  He called it "mild" and said I could go to a stronger steroid enema if this does not work .  He wants to avoid steroids if at all possible in pill form or stronger enema. He does not like 6 MP and mentioned that I was not nearly bad enough to need anything that "strong" and with my age I sure hope he is right.

 He was very nice yesterday and very busy.  I have to call to ask about the Reglan and if I should be taking that.  Forgot!  My husband said when he said 2 cm he held up his fingers more like 5 or 6 cm. so not sure.  I like the 2 cm better. LOL

 ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/29/2008 9:31 AM (GMT -6)   
Elaine I am so happy for you! That's awesome!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/29/2008 10:17 AM (GMT -6)   
That's great, Elaine! I hope Proctofoam sends you into remission!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/29/2008 10:26 AM (GMT -6)   

Thanks everyone for the support.  I truly feel so bad when I read the problems you "young" people on here have and truly feel thankful I did not have UC so young.  I have dealt with IBS many years, however, and it never was fun!  Doc figures I may have had a mild case of UC for a while - just happy it never "grew" to anything more.  I feel very LUCKY!  One week is our vacation trip to Vegas so getting ready for that and then hoping to get the knee surgery scheduled!  Get that over before something else hits the fan.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/29/2008 11:02 AM (GMT -6)   
that is great news! What was the blue stuff?
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/29/2008 11:44 AM (GMT -6)   

Beth - if you read my saga about prep you would know that is was blueberry Powerade.  Instructions said no red drink - so I chose blueberry.  It tasted good but I threw it up near the end.  I hate regular Gatorade or anything lemon-lime, etc. so thought berry was good.  Everything that come out, including some mucous was BLUE - actually, it added a little humor to the whole thing and nurses did not seem surprised so I think they had seen that before. This was a followup to June so doc knew what/where to look so of course that helped.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 10/29/2008 2:12 PM (GMT -6)   
Elaine, 5 cm = 2 inches...that would sound about right...maybe the doc said cms but meant inches if he said 2.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/29/2008 2:27 PM (GMT -6)   
I live CM better but will take what I can get! Anyway, either is too much!
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/31/2008 2:47 AM (GMT -6)   
Elaine,

Glad to hear the good news! Remission, here you come!
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/31/2008 10:41 AM (GMT -6)   

Thanks Brandon and everyone.  You know at my age I feel the "urgency" (pun intended) to get into remission and stay there.  My life is shorter than most of you here.  I do wish everyone remission and FAST!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 

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