Doctor told me I may have colitis

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New Member

Date Joined Oct 2008
Total Posts : 15
   Posted 10/29/2008 8:06 AM (GMT -6)   
Hi, I'm a new member, have some q's.
I had a mixture of diarrhoea and constipation for a period of 3 weeks and everytime I went to the bathroom there was ALOT of blood and a little mucas. I didn't really experience any pain with it. Been to the doctors and explained the situation, I have had some blood tests done (results through on friday) and he has scheduled a colonoscopy. He said he doesn't think it will be cancer or anything that frightening but that he thinks I may have colitis. The bleeding stopped 6 days ago but I'm now experiencing terrible stomach cramps and a feeling of needing to empty my bowels constantly even though I don't actually need to go. Is it normal to have cramps etc without the bleeding and vice versa? Also I have been reading a lot about people with colitis having problems when they eat certain foods. For the last year every time I eat egg I get severe stomach cramping for 2 days, plus huge amounts of diarrhoea and vomiting, do you think this could be related? I have had problems with bleeding in the past few years but only for one or two day periods so didn't think much of it but now I'm starting to worry I may actually be ill. Do you guys think this is going to turn out to be colitis?
Sorry for all the q's but I don't know who else to ask :(

Veteran Member

Date Joined Jul 2008
Total Posts : 823
   Posted 10/29/2008 9:06 AM (GMT -6)   
Wow - so sorry to hear about your problems. It does sound like it could be UC but you should know for sure after the colonoscopy. Yes, sometimes I have cramps without bleeding and sometimes bleeding without cramps - sometimes I have both at the same time. For me most foods do not seem to cause problems and my doctor has told me that I do not have to avoid any foods. I do have problems digesting some things like corn and popcorn though so I try to stay clear of those...and usually adding fiber and reducing carbs helps some. Food can certainly irritate some people's digestive system or trigger a reaction - overall though my doctors say this is not a food related disease. It is due to an autoimmune disorder. I am ANA positive so I know 100% in my case this is due to my immune system.
Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Just tappered off pred

New Member

Date Joined Jun 2008
Total Posts : 19
   Posted 10/29/2008 9:07 AM (GMT -6)   

Hi, I'm sorry you are struggling with this, you're scenario sounds so similar to mine. I was diagnosed with Proctitis in Sept 2006 and then 5 weeks ago discovered this lovely disease has spread much further along the colon. I have known for years that something was worng but had always been led to believe it was just IBS by doc's. Like you I would have 1 or 2 day periods of bleeding and I would have episodes of constipation that would sometimes last for 10 days and then 1 or 2 days of chronic diarrhoea. Unfortunately stomach cramps are par for the course for a lot of UC sufferers and the constant urge to go to the loo is called 'tenesmus' and I feel those symptoms during a flare and also often when I am feeling well. I feel my bowels often have a life of their own! 

With regards to the food thing - yep my big NO NO is egg and also banana. They both give me chronic stomach ache,cramps and leave me feeling sick. I find most food containing pips are a nightmare and I steer clear of nuts, most fruits and shop bought cakes and biscuits. I have recently started baking my own bread and have not had any bad effects.  Everyone is different, some people are unaffected by most foods and some need a gluten free diet, I am thankful I can still drink alcohol where's many people can't tollerate it.

It took me a good year to get into tune with what I can/cant eat and i'm still learning. I often seem to flare after visiting friends in Devon, perhaps the change of water? not sure. Many of us have unanswered questions about this disease and we are all learning new things everyday. The help here is great though and people will support you during this difficult time. If you do have Colitis you will learn to accept it (annoying as it is) and will become very in tune with what helps/hinders you. The guys on here are so much help and you soon realise you are not alone.

You didn't mention if your doctor has given you any meds yet?

Hope everything works out well for you, let us know how you go


Diagnosed with Proctitis in Sept 2006.
3 x 3 Colazide daily,Pentasa supp one a day,Predsol 1 x daily, vit c, ecinacea, aloe vera tabs, multi vit, pro-biot,pre biot, colofac and fish oil

Regular Member

Date Joined Aug 2008
Total Posts : 469
   Posted 10/29/2008 9:19 AM (GMT -6)   
Yes, to me it does sound like UC sorry to say. Your colonoscopy should give you the correct results. This is such a crazy disease - different w/ each individual. Eggs bother you - but they don't bother me. What one person can eat the other can't - crazy. The good news is that you have found the right place! You will learn and you have others that understand what you are going thru and they care!

Wishing you the best!

Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
Canasa 2x a day
Multi Enzyme
Mega Probiotic
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin

New Member

Date Joined Oct 2008
Total Posts : 15
   Posted 10/29/2008 12:45 PM (GMT -6)   
Thanks for the replies, nice to know I'm not alone :)
Doctor not given me any meds yet as he wants to wait for all test results to make sure it is colitis first. Still awaiting my colonoscopy date to come through so god knows how long it will take for me to find out though :(

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 10/29/2008 1:01 PM (GMT -6)   
Yes unfortunately it could be either ulcerative colitis or crohn's disease, be sure he does an upper GI series as well as colonoscopies are not a tell all for every patient. Crohn's can affect the colon (and any part of the GI tract from mouth to anus) it's referred to as crohn's colits, however there are differences in the inflammation patterns between UC and CD and sometimes the docs cannot tell for sure via colonoscopy which IBD a patient has which is why stool, blood and upper GI tests should also be done.

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Jul 2008
Total Posts : 83
   Posted 10/29/2008 2:30 PM (GMT -6)   
Yes it sounds like UC. Sorry but the clan is here if it is. This is a lame and horrible clan to join. Just make sure you try not let UC get to you. The first year is always the hardist.
19 years old, College Student ~WAHOO GO CATS=)
Diagnosed in 2004
Currently on:
Imuran 3pills/day
And other over the counter meds.

New Member

Date Joined Oct 2008
Total Posts : 15
   Posted 10/29/2008 2:49 PM (GMT -6)   
Well it's good to know that it is probably uc because at least I have a better idea of what I'm dealing with. I think I jinxed myself earlier with saying the bleeding has stopped, it's now back with the worst stomach pain I have had all week. Never mind!

Regular Member

Date Joined Feb 2008
Total Posts : 214
   Posted 10/29/2008 10:59 PM (GMT -6)   

That is the ultimate jinx, when you think UC is gone, it comes back with a vengance, hope your docs can find the right answer for you



diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily


New Member

Date Joined Oct 2008
Total Posts : 15
   Posted 10/31/2008 10:51 AM (GMT -6)   
Well, doctor just called with blood test reults:
Liver and Kidney function fine, blood sugar levels fine.
I do however have anaemia which isn't really surprising due to the blood loss I have had.
Anyway they are definitely pushing on with the colonoscopy so we shall see what that brings eh?

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 10/31/2008 11:24 PM (GMT -6)   
Start keeping a food diary, it sounds like you might have certain foods that trigger more urgency, etc.
Once you can identify triggers (my primary ones are iceberg lettuce and some tomato sauces, and gluten per food sensitivity testing; many say sugar or high fat) it will make it a lot more manageable.

Slo FE is easiest iron supplement on the gut. Consider B-12 shots or supplements, too.
That's what I know!! I hope you can get some answers soon.

Check in when you have your colonscopy prep, you'll get lots of support here for that!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.

Veteran Member

Date Joined Dec 2006
Total Posts : 517
   Posted 11/3/2008 12:06 AM (GMT -6)   
Sounds like UC, but I'm not a doctor. One thing I do know for sure is that it sure is scary when you start losing blood and mucous like that.  The worst case scenario always flashes in your head.  You'll know after the scope.
about certain foods making you feel worse...I'm sure you've heard this lots, but this disease is really individualized to each person. You mention eggs killing you, but eggs are my bland breakfast most days. I try to flavor them up with some fake-soy-bacon, so I at least feel like I'm eating like a normal person.

Talk to us again after the prep, and find out what the doc had for you. I'm sure you'll have more questions, and if we don't have answers, you'll at least have a sympathetic ear or two to relate with you.

36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.

Post Edited (beartooth) : 11/2/2008 10:09:15 PM (GMT-7)

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