UC and joint pain

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Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 10/29/2008 8:14 AM (GMT -6)   
Do any of you think there may be a correlation of UC and joint pain?
During a flare I know my body gets inflammation in joints as well, especially during the initial onset of a flare. Like now. I started flaring shortly after my prednisone taper and my mid back and neck have been bothering me big time. Things in my neck and back have been getting a little better and my UC symptoms have also been getting a little better.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/29/2008 8:19 AM (GMT -6)   
Absolutely, and you'll find a lot of threads on this, even in the past week or so. It's a temporary (hopefully) arthritis. I took an arthritis med (Voltarin) when it was bothering me in my rib cage and that worked well. I also take Aleve pretty regularly, but it can irritate the colon.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/29/2008 8:33 AM (GMT -6)   
Most definitely - When I was in the worst part of my flare, I w ould wake up in the middle of the night and the bottoms of my feet would even ache! I am still mildly flaring - headed towards remission I believe, but I am still stiff and when I wake in the a.m. my hands feel swollen.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/29/2008 8:50 AM (GMT -6)   
Joint pain is one of the documented possible extra-intestinal manifestations of UC. It may flare and recede with the UC symptoms or it may not. My joint pain actually started well before my UC symptoms.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5181
   Posted 10/29/2008 9:46 AM (GMT -6)   
Absolutely! Joint pain is probably the most common extra-intestinal manifestation of UC. I've used a lot of BenGay arthritis formula ointment when my neck, shoulders, sacrum, or hip joints have acted up. Usually it helped quickly. Make sure you're getting enough calcium + vitamin D daily because that also can relieve joint symptoms, in addition to preventing osteoporosis. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 (generic) Colazal daily for maintenance of remission)

Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 10/29/2008 12:28 PM (GMT -6)   
Thanks Old Hat!
Hey Judilyn I had heard it could be caused by UC but I am like you in that I experienced joint pain well before UC. I have had joint pain since high school and college so I know UC isn't the cause and joint pain the effect. I mean my joint pain isn't an "extra-intestinal manifestation" caused by UC, but it does seem to be related some how.
I think that is one of the reasons I think Diet plays such a big factor with me. A certain diet is beneficial for arthritis and inflammatioin not to mention healthy eating helps prevent all kinds of diseases. So I have had success with my UC with a change in my diet.

Buckeyeinfl
Regular Member


Date Joined Oct 2006
Total Posts : 114
   Posted 11/8/2008 11:46 AM (GMT -6)   
Hi, it's been a while since I've posted, but I do check back every now and again to see if people are posting about joint pain, so I wanted to reply to this post just to give you all something else to consider and raise awareness..not to scare you. This is one of the extremely frustrating things about IBD. The joint pain can come from the disease itself, from the medications, or from one of the side effects from all of the drugs that an IBD patient must take. I'm well aware of the affects of stress and anxiety on a person who has IBD, but knowledge is key to becoming your own best advocate for good healthcare, so, please take this for what it is, an attempt to raise awareness and not to upset anyone or cause panic. I wish we'd had this information when my daughter first became ill with UC...maybe I'd have been able to ask more questions of her doctors and asked about ways to protect her bone health.

My daughter had a particular nasty attack of UC that sent her to jpouch surgery within 3 months of getting it. She spiraled out of control and became refractory to all drug treatment. During that time, the highest dose of Prednisone that she was on was 90mg a day of IV solumedrol. Roughly a year later, she started having knee pain/swelling and a clicking noise when she'd sit or stand up. Her primary sent us for xrays which showed nothing. We then went to pt which didn't help. He then sent us to the rheumy whose tests all came back neg for RA and Lupus and vit D levels were fine. "Just in case," she sent her for an MRI which showed "bone infarcts." That's when our world started to spin out of control...again.

Long story short, she's been diagnosed with Osteonecrosis (aka Avascular Necrosis) meaning "bone death." After finding out that this disease does not show up in xrays early on, I found an orthopedic surgeon who specializes in treating this disease. He recommended aggressive MRI of all major joints because of the Prednisone use, and it was after all of those MRI's that we now know that she has it in her right shoulder, both elbows, both wrists, both knees, and both ankles. So far, her hips have come back negative but are being monitored with MRI. We were/are devastated. We feel that we were not warned, and what warnings are there on the pharmacy monograph allude to Osteoporosis which is bone loss not bone death. The medical community has known for over 30 years that this drug causes this disease..and if you are one of the unlucky ones to get it, you are considered collateral damage by the medical and legal professions. This disease affects over 7,000 people a year as a result of Prednisone use and is not talked about enough. People should be warned so that when/if their joints start hurting, if they've been treated with steroids, they should insist on having an MRI which will either confirm or put your mind at rest. Early treatment can halt the progression of this disease and prevent the collapse of your bones if you have it.

Please don't shoot the messenger...she was where you all are at one time trying all of the different medications, supplements, diets and various other treatments. I gained so much knowledge, caring and support from the members of this site and have only admiration for all who struggle with UC or Crohn's. I wish you all well and hope that your next remission is just around the corner and if you're in remission...I hope that your days are filled with joy.
20 yo daughter w/ Pancolitis
diagnosed 8/30/06
Step 1 colectomy/jpouch creation 11/27/06
Step 2 takedown 2/9/07
VSL #3 DS
21 yo Daughter diagnosed with right shoulder,
bilateral elbow, bilateral knee, and bilateral ankle avascular necrosis
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/10/2008 4:32 PM (GMT -6)   
I've taken a lot of prednisone over the past 23 years, yet my bone density tests and an MRI showed no problems (other than a slightly bulging disc, which is what causes my back pain).

I've been lucky, but please know that bad things don't always happen!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

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