I need to find a new GI, and I want to do it before I have another flare because I don't even want to talk to my current doc.
I moved out of state, away from my original GI. At my first visit with my new GI (during a minor flare), he told me he wanted to switch me from Asacol (6 per day) to Canasa (1 every 3 days) based on my diagnosis of ulcerative proctitis 3 years prior. He said the Asacol gets released throughout my colon before reaching the area I needed the medication (rectum), so it wasn't the appropriate med. That sounded logical, so we cut out Asacol entirely. Four months later, I had a moderate flare, which was resolved with Rowasa. In August, I had a severe and debilitating flare, with extreme abdominal pain, blood, mucous, etc. I had never had a flare even half as bad as that. For the first time, I was prescribed prednisone and eventually hospitalized. They did a colonoscopy during the flare (is that a good idea?) and it revealed pancolitis. I now suspect that even if the switch to Canasa did not cause the spread of my UC, not being on Asacol certainly made the flare much worse. I practically had to beg to go back on the Asacol.
My GI also seems to have a very narrow view of what works with UC--only wants to discuss traditional meds and clinical trials. Seems dismissive of diet modification and homeopathic supplements, probiotics, etc. On top of all of that, the nurse practitioner I usually see there has a poor bedside manner.
Of course, I will have to go with a GI who is in my health insurance network, but I guess I'm looking for ways to figure out if a doctor is open minded about treatment. Right now, I don't even feel like I can mention the other things I'm trying, and that is potentially dangerous since that means they won't be aware of potential interactions b/t meds and suplements.
Has anyone out there found a great GI without relying on luck? Should I just give up and add a naturopath to my team of health care providers?
28 yr old Female
Diagnosed with mild-moderate Ulcerative Proctitis 2005
Colonoscopy 2008 revealed Pancolitis -- after GI replaced Asacol w/Canasa :(
Asacol 400 mg x8
Vitamin B stress complex
Evening Primrose Oil