I need some comfort

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Strawberriesyum
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/30/2008 1:54 AM (GMT -6)   
I am kind of going through a tough time right now. I am 22 years old and I just got diagnosed with ulcerative colitis this past august.  Then I went back up to college and when I went there I got got an infection called C-Def and so I had to leave college and go home because it was so horrible and hospitalized me for a couple of days. I lost 28 pounds in 3 weeks during this time. Now I am back at college and I feel so alone. I feel like no one understands what I went through and my friends don't understand my disease because they always want to go out for pizza or drink alcohol. I'm just wondering how much does this disease affect your alls life? Can i live a normal life? Can I ever drink alcohol again and enjoy pizza like I used to? Or are the good ol days gone? I just feel so down because I am so afraid of my next flare up, the first one was horrible. During my flare up(I also had the infection at the same time) I almost felt like I wanted to die just so the pain would end. I am also on prednisone right now and I wake up every night in the middle of the night for like 2 hours. Does this happen to anyone else? Is this disease really serious? How will it affect my life? I just feel alone because I don't know anyone who has it. Could someone tell me how it has affected their life and how to not be depressed at not having a normal life ever again? cry

UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 10/30/2008 5:45 AM (GMT -6)   
Everything you described is "normal" feelings given your circumstances. Pretty much everyone on this board can share similar stories with you and more importantly tell you that life goes on.

If you are SERIOUSLY thinking of harming yourself please go talk to your school counseling resource etc.

The current college environment you are in makes things tough on a new uc diagnosis. You will make it through this and likely be a stronger, wiser and empathetic person because of it. Your life is not over, you just are opening the door to some new experiences that have you freaked out. My toughest time with all of this was the initial diagnosis and working to control the uc. It gets better or easier. It has for me.
 


paindrain
Regular Member


Date Joined Oct 2008
Total Posts : 22
   Posted 10/30/2008 7:55 AM (GMT -6)   
going through college with uc is rough... esp once you have to give up pizza and beer.. maybe you can find some (or one..depending on your energy level) new activity that will help you meet new people, or take advantage of all of the resources at your school and find a yoga class... good luck with everything!

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 10/30/2008 9:04 AM (GMT -6)   
Welcome to HealingWell Strawberriesyum! I'm sorry you are feeling so poorly right now, and yes, it's very hard to come to grips with being diagnosed with this illness. But, with a good GI doctor and the right meds, many have been able to achieve remission and go on living life. We come to this forum because not many people do understand this illness...and we are free to talk about most anything here and everyone is very supportive and understanding. Please don't hesitate to ask questions or even vent; or even post the good days you are having. We are all in this together so don't feel alone. I know going through the college days and having this are rough, but there are quite a few younger folks that are in your same position, and I'm sure they would be happy to chime in to tell you about their experiences and how they deal with certain things.
And one more thing to add; prednisone can sometimes make you feel a little more emotional than normal so if you are feeling depressed, you might want to seek counseling as UCDude mentioned. This is a tough thing to deal with no doubt, and we've all been in your shoes at one time or another so we know how you are feeling. Take care, and again...welcome!
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 10/30/2008 11:39 AM (GMT -6)   
This is a serious disease, but that doesn't mean you can't live a normal life. With the right meds. you can get back to normal, or close to. I had a bad flare over a year ago and no meds seemed to work. I was on prednisone for over a year. Then I started Imuran and that got me out of a flare and pretty much back to normal. I'm definitely eating pizza and drinking beer again (though the beer in moderation.) Keep your head up.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


jenjim
Regular Member


Date Joined Apr 2008
Total Posts : 55
   Posted 10/30/2008 12:00 PM (GMT -6)   
I'm guessing that you got an extra bad sample of what flares are like since you had c-diff with it. I hope you can get on the right meds and not have another flare for a really long time, but if you do have a flare sometime in the future, I'm guessing it wouldn't be quite the same since you probably wouldn't have c-diff with it.
If the insomnia is really bad you could always try taking a supplement (as long as it is safe to take with your meds) or a Rx to help with the sleep issues while you are on Pred.
I hope you are feeling better soon and I'm glad you were able to get back to school after this episode.
If possible, try treating yourself to a little gift, a walk at a park where the leaves are turning colors, a movie with a friend, or whatever would perk you up a little!
Jen

TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 10/30/2008 12:03 PM (GMT -6)   
I feel your pain. During flares i fealt like a normal life was a thing of the past. I honestly felt like it would never end. Now, every day i am well i truly am greatful! You dont appreciate your health until its gone. I too am back to "pizza and beer" (well whisky!) If you ever need someone to chat with you can email me or we can chat on aim or msn or whatever. Let me know.

** Lori; I had to edit out your email address per forum rules which are for your protection.

Post Edited By Moderator (Loneylane) : 10/30/2008 12:19:00 PM (GMT-6)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/30/2008 2:56 PM (GMT -6)   
So sorry you are sad. You will learn to manage it (advice on this site will help!) and once you are through this time of healing you should be able to get out and do lots more, maybe everything! (I play golf which would seem kind of crazy sport for someone with UC). Consider it a time of peace for yourself.

Yeah, prednisone will keep you from sleeping well. But you might not be feeling tired, is that right? Just bored in the night! I get lots of stuff done around the house when I'm on it.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Strawberriesyum
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/30/2008 6:21 PM (GMT -6)   
Thank you guys so much for replying! You have really given me comfort with the things you all said. Thank you for caring. I actually have thought about taking a yoga class and now I think i will do it. So the prednisone makes you depressed? That makes sense because I usually am not an emotional person, but ever since i started on it I've been an emotional rollercoaster. I think I will be alright. I'm so glad I found this website.

ChristinaC
New Member


Date Joined Oct 2008
Total Posts : 8
   Posted 10/30/2008 8:40 PM (GMT -6)   
Welcome to the forum Strawberriesyum. I know exactly what you are going through. I was diagnosed with UC my junior year in high school and that was really tough on me because everyone thought I was making up symptoms to get out of doing things. I too felt very alone when most of my friends turned their backs on me. It really is a hard thing to go through when you are first diagnosed, because you never know who you can turn to for help. I had this disease for 8 1/2 years before I was able to find something to help me. The doctors I went to gave me just about every medicine out there and they only worked for me for about 3 to 6 months before I would have another flare. I recently had surgery and now I feel so much better. It stopped the bleeding and I can eat the foods and drink all the drinks that made me have flare-ups.
Now, the medicine can work for some people. I just happened to have a worse case, and the medicine couldn't control it. I was very scared for a while about having the surgery, but I needed to do something.
Your best bet is to talk to your GI about every possibility out there and get a good idea about what can be done. Just keep a open mind and remember that it WILL get better. That's what seemed to really help me. As for the Prednisone...... Try to find something to keep your mind off stressful sistuations, Prednisone seems to intensify your reaction to things that would normally not upset.
Good luck with everything and just be as optimistic as possible.
Christina
 
Currently in a lot of pain since the doctor has me off all medicine to get ready for the surgery. I am ready to live a real life!

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