Posted 10/30/2008 10:13 AM (GMT -6)
no big plans, just staying home handing out candy
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)

Posted 10/30/2008 12:12 PM (GMT -6)
I live in a drop off neighborhood, everyone comes and I usually end up running out of candy around about a 1/2 hour before it ends. Last year we had over 200 pieces of candy.

I am going to a halloween party on Sat and am dressing up as Sarah Palin and my husband is dressing up as her pregnant daughter. I am going to make some button's that say things like, "Alaskans do it better", "Is that the north pole or are you just happy to see me".

I will also be making kitty litter cake, it looks so gross but tastes so good! I shape tootsie rolls into cat turds and put them on top of cake. I make the top of the cake look like kitty litter using food coloring on crumbled up cookies and I use a kitty liner in the bottom of the cake dish and put a pooper scooper in it.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

Posted 10/30/2008 12:57 PM (GMT -6)
Beth - after seeing your post about dressing up as Sarah Palin, I noticed on my iGoogle home page that the wikihow of the day was how to look like her.
Here's the link if you need any help with your costume:
 
I'll just be handing out candy this year.
 
Tara
-F/33 -diagnosed June 2006
-last 25cm of colon affected
-Salofalk enemas stopped working
-xylocaine enemas put me in remission
-Asacol 2 800mg pills 2x/day
-budesonide enemas as needed

Posted 10/30/2008 1:14 PM (GMT -6)
Company dress up party and BBQ lunch then taking my 2yo trick-or-treating with her mother. I was lucky to find her the last pink princess dress at walmart her size. yay!
I wish I could hand out candy. that would be fun seeing all the costumes and little kiddos. I have a lot of neighborhood kids, 5 right next door, but everyone goes to the richer side of town or to trunk-or-treats at church parking lots.
Oh yeah i'm going to be a biker dude with skull tattoo sleeves and a long haired bandana with skulls.hehe.
Posted 10/30/2008 2:42 PM (GMT -6)
thanks Tara, I just need the glasses and also I wanted to get a baby doll to carry around too.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

Posted 10/30/2008 2:48 PM (GMT -6)
GHOST HUNTERS - LIVE from Fort Delaware (Civil War POW camp) !! All night!! Sci Fi channel, it's a hoot, we watch every year.

Otherwise, we have no kids but we'll give out lots of candy.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

Posted 10/30/2008 7:46 PM (GMT -6)
We don't have trick or treaters where we live - we're too old to go to parties, as I am asleep by 8 or 9 everynight, but will be taking a treat over to our grandson who is 5 yrs. old.  Our other two grandaughters live in another town.
 
I sure hope you have fun and enjoy your party Saturday as well!
 
Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 

Posted 10/30/2008 8:08 PM (GMT -6)

Same as you Gigi.  Our neighbor girl may come over for treats so I have a little candy (the kind my husband likes LOL).  We are way out in the country so not many kids come anymore.  I decorate the house some and lights in the window - I always liked the ghosts and goblins!

Getting ready for our week in Vegas - yipppeeee!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 

Posted 10/31/2008 7:56 AM (GMT -6)
Sounds like some of you have great plans! :) When I have my Halloween party tomorrow, I am dressing up as a pirate, my hubby is going to be that squid/octopus headed guy from Pirates of the Caribean, my daughter is going to be a raspberry shortcake girl and my son is going to be a corpse. I am expecting around 30 adults and 15 kids/teens.

We sometimes have a lot of kids and sometimes don't for Halloween night. It depends on the weather really and tonight is supposed to be around 60 so I imagine we will have quite a few kids. They also like to come back to check out my hubbys 8ft bat costume. Last year, his costume even made the evening news so he got his 3 seconds of fame! :)

You all have a safe Halloween and for the ones that have kids - take it easy on the candy!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 

Posted 10/31/2008 9:08 AM (GMT -6)

I am not dressing up this year but I usually like to make all the costumes. For myself, I like to make costumes that are a play on words. One year I went as a "cereal killer". I took individual cereal boxes, stuck plastic knives in them, painted some red nail polish on them and pinned them to my clothes. Another year I was a "spelling bee". I dressed as a bee and pinned words all over.

My youngest son is dressed as a Beatle from Sgt. Peppers Lonely Hearts Club Band. We bought a womens suit from the thrift store. I sewed on different trimmings to make it look similar to what the Beatles wore on the album cover. He added glasses and is carrying around the album cover today.

My oldest son is an auto mechanic. He hiked his pants up today, added a bowtie, nerdy glasses, and safety earmuffs. He looks like such a goof. He was going to walk in to work and act like nothing was different. Wish I could be there to see that!

Bratcat's high school sponsors Safe Halloween each year. They invite all the elementary school kids to trick or treat safely inside the school. Each club gives out candy and usually has something fun for the kids to do. She's dressed as a cat. It was a costume I made her when she was about 5 years old. Ears, wristlets, anklets, a tail and a bowtie.

Since it is a Friday, I expect we will have more kids trick or treating in our neighborhood than usual.


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp

Posted 10/31/2008 9:56 AM (GMT -6)
my boyfriend and i are going as beavis and butthead...hee hee
Winni, 25

Diagnosed UC july 2006.
medications: colazal 9 daily, 6mp 75 mg, canasa 1,000mg 2x daily
supplements:calcium, aloe gel, pro-biotics, bee propolis, omega 3 oil, kombucha, metamucil fiber wafers.
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro

Posted 10/31/2008 10:21 AM (GMT -6)
My plans for Halloween are to stay in bed at the hospital. This will be the first year I was unable to take my 6 year old daughter out trick or treating. My wife will have to do it this year and no one will be at home to give out candies to the kids.
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 

Posted 10/31/2008 10:46 AM (GMT -6)

Paul L. - just think how wonderful next year will be - you will feel wonderful and make a great costume and go with your daughter!!  Right now healing is your JOB!!  She may not understand right now but she will when she has her DAd for many years to come.  My DAd will be 96 in Feb. and doing quite well.  Dad's are very important to daughters!!  I am so lucky and happy to have mine so long!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 

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