The cause of UC is not known for certain. There is a genetic component to it, as people with family members who have UC or Crohn's are more likely to have UC, but it isn't directly inherited like, say, blue eyes. It's believed that environmental triggers are necessary to activate the disease. Often the trigger is stress; some people feel their disease was triggered by something in their diet, medication they took or other life events.
There are other causes of colitis - infections, for instance - which resolve. Ulcerative colitis is a chronic disease for which there is no medical cure. It sounds as if you're doing well at this time, just be alert
for changes and do call the doctor if you see any. The longer you let symptoms go on, the longer it can take to bring them under control. The majority of people with UC are able to live normal lives with maintenance medication.
Diet will vary for us, as the disease isn't the same for all. Commonly, most of us find that when we're having symptoms that really high-fiber, fatty and spicy foods will bother us. Lactose and gluten intolerance are also more common in people with UC; if you seem to have problems with these your doctor can test. One of the best ways to find out what foods (if any) bother you is to keep a food diary for a few months. Note what you ate and any symptoms. If you find that one food consistently causes you difficulty, you may want to eliminate that from your diet. Personally, now that I'm in remission I eat everything I ate before UC.
Welcome to HealingWell, and remember as you read the posts here, most of us are here because we're having trouble right now and need help. The majority of people with UC aren't posting here because they're out living their lives and not thinking about
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
Co-Moderator UC ForumPlease remember to consult your health care provider when making health-related decisions.
Posted 10/30/2008 1:18 PM (GMT -7)
Hi, Minna! I am also 31 and the mom of an 18 month old. I've at time experienced a sort of vagueness with my GI and have considered changing docs, but usually if I push I can get the info I need out of her. I would have a hard time with that much uncertainty and would likely seek a second opinion. If you are having symptoms and just let them go on, you are only doing more damage to your colon.
Nobody here can tell you if you have UC, only a doctor who examines you and the results of your tests can tell you that. I am somewhat surprised they took you off of the meds, though. I do agree with some previous posters--don't expect much dietary advice from your doc. Most of them just don't do it for some reason.
Good luck to you!
Posted 10/31/2008 8:48 AM (GMT -7)
Thank you for your replies. I know much of what has been posted as I have been reading a lot, so I guess it boils down to self-discovery and sharing/comparing notes with other UCer's.
"Welcome to HealingWell, and remember as you read the posts here, most of us are here because we're having trouble right now and need help. The majority of people with UC aren't posting here because they're out living their lives and not thinking about UC."
I guess I need to get out of here and live my life!!! Thanks again!
Posted 10/31/2008 11:30 AM (GMT -7)
Welcome, you will find the best group of people on here! They have been my saving grace! When I was diagnosed, I didn't pay much attention to it as far as research and such. I believed I had developed an allergy to food in general. I started a log of everything I ate and it's effect. I soon discovered my danger foods and I stay away from them completely. Cheating isn't worth it for me. Stress is my biggest enemy and haven't yet discovered how to control that. When my daughter was diagnosed with Crohn's, I starting researching everything and anything to help her. I have learned a lot about
both UC and Crohn's. Quite a bit has come from this forum. Unfortunately, everyone is different and therefore are not going to be affected the same either. I live a pretty normal life. With that being said, UC is part of my life so I know where all the restrooms are in a large radius =) I have 4 children ranging from 16 - 2 whom keep me very busy. With 2 of us in our home with an IBD, poo is a normal conversation. We always be sure to have extra time in case one of us has to make a pit stop, lol. Many people don't understand our issues which seems to be our biggest obstacle and you will find tremendous support on here with that. I hope you find the answers you are looking for. Make sure to eat a healthy diet and live your life! I will add you to my IBD family prayer list. Much love & laughter to you!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07- she had surgery for abcesses 11/07. She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa 500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3
Posted 10/31/2008 12:41 PM (GMT -7)
Minna, You say you have inconvenient cramping and just some itching? That sounds kinda mild considering what other folks have.
You don't mention that you have bloody mucousy loose stools, that are frequent.
I'm talking 10 to 15 times a day to the potty. Trust me, that happens.
And the cramping is more then inconvenient, they are quite painful.
I've been watching my son suffer for a long time with this. Maybe you don't even have colitis! That would be wonderful, if it is only an infection or something else that can be fixed. You only mention the ulcers in the colon for now. So, get another opinion and ask the doctor lots of questions. Good luck and let us know the outcome.
Posted 11/6/2008 7:19 AM (GMT -7)
I have this theory of my own concerning my diagnosed "non-descript" colitis...I know self-diagnosis is not always a good thing but I feel that something else is up. I am currently scheduled for sinus surgery for a deviated septum & a cyst in my left sinus based on my chronic sinusitis. I am starting to wonder if I haven't been over-medicated with antibiotics due to this condition. There were several instances when I couldn't kick an infection with less than 6 weeks of antibiotics! The cyst and septum were preventing proper drainage and harboring the infection longer. Could this colitis stem from the flora in my gut being completely out of whack? I started probiotics and have felt great since. Little to no cramping, no urgency, which I didn't have much of anyway. (When my family doctor gave me antibiotics the mucus and frequency would stop completely on the two instances it happened.) I don't know. I keep reading, researching, chatting and hoping doctors will point me in the right direction.
Posted 11/6/2008 3:56 PM (GMT -7)
That is the theory/explanation I get from my Naturopathic doc. He has made a lot of sense out of this for me. Hopefully you have nipped it with the probiotics!! That would be great.
And I hope your sinus surgery goes well, you'll probably be soon feeling better than you have in a long time!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills.
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
Posted 11/7/2008 12:41 PM (GMT -7)
Thanks so much! I have hoping to improve my quality of life all around. I'm tired of being tired, KWIM?
Currently it is Thursday, December 13, 2018 4:39 AM (GMT -7)
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