1st flare since diagnosis????

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Michelle8871
Regular Member


Date Joined Sep 2008
Total Posts : 90
   Posted 10/30/2008 10:22 AM (GMT -6)   
I "think" I am having my 1st flare since being diagnosed in August.
I have been doing good (only 1 bm each day) since reducing my prednisone down to 10mg last week and staying on 12 Asacol per day. I have been using Culturelle and taking other vitamins.
 
about 4 days ago I have started with more urgency and 8-10 diarrhea bm's per day.
No pain and only had blood on one bm.
 
I called the Dr. and he wants me to back up to 40mg of prednisone until I see him next week.
 
Since I was just diagnosed in August this is still soooo new to me.
 
Do you think it is a flare after only being diagnosed in August? or do you think it is because I am down to only 10 mg on prednisone?
 
One odd symptom I have is that it feels like I am having hunger/rumbling sounds in my butt!  It doesnt feel like gas but it's like a rumbling down there.   Is this normal??????
 
FYI...I have not had a colonoscopy yet. Diagnosis was made based upon symptoms and blood/stool samples.  Dr. has been waiting to do colonoscopy until things calmed down in there.  Looks like its going to being even longer until he can finally see what things look like.
Newly diagnosed August 2008
Currently on 15mg prednisone, 12 Asacol per day, Mesaline enema nightly,Multi vitamin, Omega 3 and Calcium
Realizing that disease is a real pain in the ass!
Mother of a 5 year old and 12 old trying to get through each day with a smile on my face!


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/30/2008 10:43 AM (GMT -6)   
Sounds as if the Prednisone was keeping your flare under control and the symptoms came back as you decreased it. This is very frustrating, I know, but don't give up. Sometimes a bit longer course and a slower taper will be successful. I'm glad to see that your doctor is also using rectal medications for you.

Sorry, I'm not familiar with "rumbling." Maybe this will sound familiar to someone else.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


kickboxer
Regular Member


Date Joined Sep 2007
Total Posts : 123
   Posted 10/30/2008 10:55 AM (GMT -6)   
The stomach rumbling is the most annoying thing for me. I dont know waht causes it, I suspect maybe I have a gluten sensitivity. Even today, i'm out of a flare, but my stomach just wont stop making all these noises, its like a low growling
VSL#3
Progressive - Calcium and Magnesium supplement
FibreSmart - fibre supplement
New Chapter Organics - Unbound Energy, Multivitamins


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 10/30/2008 10:57 AM (GMT -6)   
very normal for things to change when you adjust prednisone. Hang in there!
Lori
38/F
lower left UC diagnosed 1991
Asacal, zoloft, levoxyl, Azathioprine 100m (started 1/9/08)


Michelle8871
Regular Member


Date Joined Sep 2008
Total Posts : 90
   Posted 10/30/2008 1:00 PM (GMT -6)   

I hate being back up on the prednisone! I have been on it so many times over the years for asthma related issues and although I know its a great medicine - It sucks!

Just when I thought I was doing okay...bam....I take 2 steps backwards!

Is this typical????

Like I said...this is so new to me since I just got diagnosed in August.  Still so unsure of how this disease is going to affect me and the progression it will take.

I am just so grateful that I am not in any pain like I was in August. The pain is the only reason I went to the ER - which ended up with the eventual lovely diagnosis!

Thanks to all for your care,good wishes and support!

 

 


Newly diagnosed August 2008
Currently on 15mg prednisone, 12 Asacol per day, Mesaline enema nightly,Multi vitamin, Omega 3 and Calcium
Realizing that disease is a real pain in the ass!
Mother of a 5 year old and 12 old trying to get through each day with a smile on my face!


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 10/30/2008 5:42 PM (GMT -6)   
I know how you feel about the prednisone=--- I have tried just about everything and I vowed I would not go back on Prednisone. I have not had any effects from any medication except Prednisone. I become very irritable, have to go to bathroom ( #1) in the middle of the night and have night sweats. I also get migraines.
And guess what, you can't take prednisone for a long time-- so as soon as I taper the symptoms come back- so what is the point????

Since you are new - you still have many treatment options and the odds are something is bound to work. There are a few of us that don't react to anything...

I do wish you the best of luck :)))
Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, colazal 3x3, Sythroid, Protonix, Rowasa suspension

Remicade 10th infusion- Sept. 30th


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/30/2008 9:09 PM (GMT -6)   
Michelle8871,

I know that way-down-low rumbling you're talking about. I've had it a few times during this flare. It's disconcerting, because it does sound like it should be coming from your stomach, but it's definitely not! Now, whether or not it's normal, that I can't answer...

Best to you,
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 10/30/2008 11:56 PM (GMT -6)   
I also have that way-down-low rumbling. It sounds and feels like you have a lot of bubbles and liquid in your rectum. That rumbling is usually the first sign for me that I have a flare up. The noise and the feel of that rumbling is a dead giveaway for bad things to come in my case. I only have that way-down-low rumbling at the beginning of a flare. When the flare advances, it goes back into the tummy and especially into the left side of the colon.
Pancolitis since 3/1997
Worst flare of my life since 8/2008, finally showing improvement!!
 
Meds (as in 10/2008)
12 x Asacol a day
40 30 25 mg Prednisone
Align (just started)
Flintstones Complete Vitamins (just started - tummy doesn't like the "adult" vitamins)
Cortenema


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 10/31/2008 12:50 AM (GMT -6)   
michelle...were you still on the enemas nightly or did you taper them?

I get the rumbling in the rectum when it's inflamed.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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