UC blood test?

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TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 10/30/2008 12:12 PM (GMT -6)   
I understand there is a blood test to test for UC?  How accurate is it?  My 17 yr old worries she may have it since I do.  But should we bother finding out?  She has no symptoms.  So finding out may just be depressing.  Would there be a benefit to knowing??
Lori
38/F
lower left UC diagnosed 1991
Asacal, zoloft, levoxyl, Azathioprine 100m (started 1/9/08)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/30/2008 1:04 PM (GMT -6)   
I believe you're thinking of the Promethius test, which is expensive and probably wouldn't be covered by insurance. It's usually used to differentiate between UC and Crohn's. The reliability isn't very good, in fact a lot of GI's never use it as part of their diagnosis.

The only suggestion I can make is for your daughter to eat a colon-healthy diet with plenty of fiber and fluids. She also could be taking probiotics daily to help maintain healthy intestinal bacteria.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 10/30/2008 6:47 PM (GMT -6)   
If your daughter has no symptoms, I wouldn't get tested. She shouldn't live in fear of getting it. It can be genetic but not always. No one in my family has UC, I'm one of 22 cousins and I'm the only lucky one with UC..lol. I'm not sure if a test can say that you have UC if you're not having symptoms anyway and even if it can, what is she going to do about it? You can't prevent the disease from happening.
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 10/30/2008 10:06 PM (GMT -6)   
I took the Prometheus test; I think it was $500. It said I didn't have IBD, when my UC had already been confirmed by sigmoidoscopy and biopsy. (Then why did I take the test? I've never had a full colonoscopy thanks to a weird bend at my hepatic flexure, so I wanted to try to rule out Crohn's.) I know of at least one other person on here (beartooth) who also got a negative result.

The Prometheus printout claimed about 90% accuracy for my results. My GI said he thought it was more like 80% at best. I worry about my own daughter, who's 5, but if she were 17, I don't think I'd invest in this test. I think Judilyn's advice is right on target.
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/30/2008 11:48 PM (GMT -6)   
I'd have to agree with all. If your daughter isn't showing any symptoms, why do the test? It really is expensive, and not completely accurate. UC can be/is genetic, but no one else in my family has it. Just because you have UC doesn't mean your daughter will. Let her live life and be happy, and if she one day shows symptoms, then start thinking about getting her tested.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.

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